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National Hemophilia Foundation

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National Hemophilia Foundation

National Hemophilia Foundation
Address: 
116 W 32nd Street
11th Floor
New York, NY 10001
United States
Phone: 
212.328.3700
Fax: 
212.328.3777

The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. Established in 1948, the National Hemophilia Foundation has chapters throughout the country. Its programs and initiatives are made possible through the generosity of individuals, corporations and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention (CDC).

Advocacy Efforts

File Date
Capitation of Hemphilia Treatement
HR 460
Federal Hemophilia Programs
Specialty Pharmacy And Sole Source
Standardization Of Prior Authorization
Removal of Travel Ban For Persons With HIV August 5, 2009
Legislation To Create A Regulatory Pathway For The Approval Of Biosimilar August 5, 2009
The MSM Blood Ban June 9, 2010
SB 1536 Proposing To Reduce Funding For State Hemophilia Program March 15, 2011
HB 552 Standards Of Care For Persons With Bleeding Disorders May 17, 2011
Patient Assistance Programs June 9, 2011
Support Of HB 153 June 17, 2011
Hemophilia Program Funding September 9, 2011
Changes In Pharmacy Reimbursement September 22, 2011
Proposed Changes To Medicaid Reimbursement October 11, 2011
Exemption of Clotting Factor From Medicaid Provider Cuts November 30, 2011
Essential Health Benefit Benchmark Plans February 9, 2012
Proposed Specialty Drug Rule February 16, 2012
Essential Health Benefit Benchmark Plans June 15, 2012
Essential Health Benefit Benchmark Plans June 28, 2012
Essential Health Benefit Benchmark Plans July 10, 2012
Essential Health Benefit Benchmark Plans August 1, 2012
Essential Health Benefit Benchmark Plans August 1, 2012
Essential Health Benefit Benchmark Plans August 1, 2012
Essential Health Benefit Benchmark Plans August 9, 2012
Essential Health Benefit Benchmark Plans August 9, 2012
Essential Health Benefit Benchmark Plans August 9, 2012
Essential Health Benefit Benchmark Plans August 16, 2012
Essential Health Benefit Benchmark Plans August 20, 2012
Essential Health Benefit Benchmark Plans August 20, 2012
Essential Health Benefit Benchmark Plans August 21, 2012
Essential Health Benefit Benchmark Plans August 28, 2012
Essential Health Benefit Benchmark Plans September 11, 2012
Essential Health Benefit Benchmark Plans September 12, 2012
Essential Health Benefit Benchmark Plans September 14, 2012
Essential Health Benefit Benchmark Plans September 14, 2012
Essential Health Benefit Benchmark Plans September 19, 2012
Essential Health Benefit Benchmark Plans September 20, 2012
Essential Health Benefit Benchmark Plans September 25, 2012
Enrollment In 340B Program September 28, 2012
Proposed Rule To Require Higher Cost Share For Non-Preferred Drug in CHIP February 21, 2013
2013 Letter To Issuers On Federally Facilitated And State Partnership Marketplaces March 15, 2013
FY 2014 Proposed Federal Funding For Healthcare Programs April 16, 2013
Patient Assistance Programs August 5, 2013
TOP$ 2013 Proposed Medicaid Supplemental Rebates September 6, 2013
TOP$ 2013 Proposed Medicaid Supplemental Rebates September 6, 2013
TOP$ 2013 Proposed Medicaid Supplemental Rebates September 6, 2013
TOP$ 2013 Proposed Medicaid Supplemental Rebates September 6, 2013
TOP$ 2013 Proposed Medicaid Supplemental Rebates September 6, 2013
TOP$ 2013 Proposed Medicaid Supplemental Rebates September 6, 2013
TOP$ 2013 Proposed Medicaid Supplemental Rebates September 6, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Magellan Proposed Medicaid Supplemental Rebates November 15, 2013
Federal Funding For The Division Of Blood Disorders January 2, 2014
Patient Assistance Programs June 9, 2014
Patient Assistance Programs June 9, 2014
Patient Assistance Programs June 9, 2014
Patient Assistance Programs June 9, 2014
TOP$ 2014 Proposed Medicaid Supplemental Rebates July 25, 2014
TOP$ 2014 Proposed Medicaid Supplemental Rebates July 25, 2014
TOP$ 2014 Proposed Medicaid Supplemental Rebates July 25, 2014
TOP$ 2014 Proposed Medicaid Supplemental Rebates July 25, 2014
TOP$ 2014 Proposed Medicaid Supplemental Rebates July 25, 2014
TOP$ 2014 Proposed Medicaid Supplemental Rebates July 25, 2014
TOP$ 2014 Proposed Medicaid Supplemental Rebates July 25, 2014
TOP$ 2014 Proposed Medicaid Supplemental Rebates July 25, 2014
Proposed Medicaid Reimbursement Changes August 1, 2014
Patient Assistance Programs August 5, 2014
Patient Assistance Programs August 5, 2014
Patient Assistance Programs August 6, 2014
Patient Assistance Programs August 6, 2014