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Other Bleeding Disorder Organizations

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Other Bleeding Disorder Organizations

Other Bleeding Disorder Organizations

Bleeding Disorders Association of Southern Tier
Jon Davis, President
PO Box 538
Binghamton, NY  13902
607.761.1665
www.bdast.org

Brandywine Valley Hemophilia Foundation
Ms. Nancy Olson
443 Bayberry Lane
West Grove, PA  19390
610.388.2969

Central New York Bleeding Disorders Association, Inc.
Audrey Benetati, President
PO Box 703
Manlius, NY  13104
315.481.9698           
http://www.cnybleeders.8m.com
cnybleeders@aim.com

FAMOHIO, Inc
834 West Third Avenue, Suite A
Columbus, OH  43212
614.429.2120

HEDGE
Ms. Anne Kelly, Executive Director
P.O. Box 1575
Plains, PA  18705
866.77.HEDGE           
granigirl@aol.com

Hemophilia and von Willebrand Education Network (HAVEN)
Jackie Lucas, Executive Director
1147 West 24th Street
Erie, PA  16502
814.455.3037
jackiemac53@yahoo.com

Hemophilia Association of Guam
123 Chalan Kareta, Route 10
Mangilao, Guam 96913
Phone: 671.735.7168
Fax: 671.735.7103
Contact Roselie Zabala,
roselie.zabala@dphss.guam.gov

Hemophilia Association of New Jersey
Ms. Elena Bostick
Executive Director
197 Route 18 South, Suite 206 N
East Brunswick, NJ  08816
732.249.6000
fax – 732.249.7999
hemnj@comcast.net
http://www.hanj.org

Hemophilia Association of New York, Inc
Linda Mugford
Executive Director
104 East 40th Street, Suite 506
New York, NY  10016
21.682.5510
fax 212.983.1114
http://www.hemophilia-newyork.org
hany@bestweb.net

Hemophilia Council of California
Heidi Scanlon, Project Director
1507 21st Street, Suite 206
Sacramento, CA  95811
Phone 916.498.3780
Fax 916.498.3782
http://www.hemophiliaca.org
hccassist@aol.com 

Hemophilia Federation of America
Kimberly Haugstad, Executive Director
Tracy Cleghorn, President
820 First Street, NE
Suite 720
Washington, DC  20002
800.230.9797           
http://www.hemophiliafed.org
info@hemophiliafed.org

Hemophilia Foundation of Arkansas, Inc.
351 Valley Oak Lane
Austin, AR  72007
501.941.3109
888.941.4366
Angie Clark, President
Angieclark1315@sbcglobal.net

National Blood Clot Alliance
Alan Brownstein
Chief Executive Officer
120 White Plains Road
Suite 100
Tarrytown, NY  10591
914.220.5040           
www.info@stoptheclot.org

Puerto Rico Hemophilia Association
Johnny Marquez, President
PMB 633
PO Box 29029
San Juan, P.R. 00929
nijota7472004@yahoo.com 

Snake River Hemophilia & Bleeding Disorders Association
Chad Stevens, President
PO Box 203
Newdale, ID  83436
208.458.9884
www.srhbda.org

The Coalition for Hemophilia B, Inc.
Kim Phelan, Vice President
825 3rd Avenue, Suite 226
New York, NY 10022
212.520.8272
http://www.coalitionforhemophiliab.org
hemob@ix.netcom.com

The Committee of Ten Thousand
236 Massachusetts Avenue NE # 609
Washington,  DC  20002-4971
800.488.2688
phone 202.543.0988
fax 202.543.6720
www.cott1.org 
cott-dc@earthlink.net 

World Federation of Hemophilia USA
Mike Rosenthal, National Director
PMB 142, 911 Central Avenue
Albany, NY  12206-1304
602-512-9047
http://www.wfhusa.org
mike@wfhusa.org