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NYLI

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NYLI

NYLI

Program Goal

The goal of the National Youth Leadership Institute (NYLI) at the National Hemophilia Foundation (NHF) is to provide youth (18-24 years old) in the bleeding disorders community with leadership opportunities to encourage personal growth, effect change, and positively influence others.

Program Overview

The National Youth Leadership Institute is a three-year program designed to assist young people from the bleeding disorders community to become well-trained, recognized leaders. In addition, NYLI provides an amazing opportunity for youth to learn and share experiences of living with a bleeding disorder. NHF achieves these outcomes by providing young adults with training, support, and opportunities to provide education to the bleeding disorders community.

As of January 2015, the NYLI program has implemented a new three-year curriculum. The program will continue to provide youth with the same opportunities to become established leaders and speakers in the bleeding disorders community, while also providing them with the tools to implement more direct programs at the local level.

Each year of the program will focus on developing specific skills through a variety of in-person trainings, webinars, and year-round communication. The 1st year of the program is dedicated to developing individual and professional skills, including public speaking, leadership techniques, communication styles, and even resumé building. In the 2nd year of the program, NYLI will further develop these skills by selecting one of three areas of focus – or “tracks” – that will shape the remainder of their time in NYLI:

  1. Outreach Track: Deliver direct, in-person educational programming to NHF chapters and HTCs. 2015 workshops have included Steps for Living workshops (“Do You Bleed Like Me?” and “Off to College”) and the Artistically Speaking art workshop.
  2. Advocacy Track: Learn how to speak with elected officials, help run advocacy and legislative events for chapters, and train youth to become better advocates. This track was formerly known as the “Future Leaders” program.
  3. Non-Profit Development Track: Provide youth with a snapshot of what it takes to run a non-profit organization by serving local NHF chapters in a leadership capacity (e.g. serving on a board, developing a fundraising or awareness campaign, managing a chapter program).

In their 3rd and final year of the program, NYLI members will primarily be out on the ground, delivering in-person workshops and programs for NHF chapters and HTCs at the local level.

Applications will be available in late September, with a deadline of October 31st. Applicants will be notified of their acceptance by mid-November. More information on deadlines and eligibility will be available soon. Youth may remain in the program for three years total, but they are requested to renew their membership annually by completing a renewal form. 

Program Objectives

  1. Develop leadership and communication skills
  2. Provide education for the bleeding disorders community
  3. Engage the bleeding disorders community as a representative of NHF
  4. Create and facilitate programs on bleeding disorders education, advocacy, fundraising, and awareness at the local level

Below is a list of the activities members will be expected to take part in. Each year, all NYLI members will attend the NHF Annual Meeting, which includes educational training components, volunteering to engage the greater bleeding disorders community, and speaking opportunities. In addition to the trainings below, NYLI may also be invited to attend additional trainings and meetings throughout the year.

1st Year:

  • Leadership Training (New York, NY – January 2016)
  • NHF Annual Meeting (Orlando, FL – July 2016)

2nd Year:

  • Washington Days Training (Washington, D.C. – February 2016)
  • Regional Leadership Seminar or Outreach Training
  • NHF Annual Meeting (Orlando, FL – July 2016)
  • Submit a proposal for delivering programs and/or working with NHF chapters in 3rd year

3rd Year:

  • Washington Days Training (Washington, D.C. – February 2016)
  • NHF Annual Meeting (Orlando, FL – July 2016)
  • Deliver and/or continue developing programs for NHF chapters