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ATHN Research: A Briefing for the Patient Community

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ATHN Research: A Briefing for the Patient Community

September 19, 2014
9:30 AM to 10:30 AM
Audience: 
Consumer/New Family
Chapter Staff

More than 20,000 patients have joined in building the American Thrombosis and Hemostasis Network (ATHN) dataset, a secure HIPAA-compliant resource to support research and public health. In addition, more than 4,000 patients have shared their perceptions of care delivered through hemophilia treatment centers (HTCs). Come hear what was learned through these projects and how the results will be used to advance the science and delivery of care.

Speakers: 
Steven W. Pipe, MD
Ann Forsberg, MA, MPH
Diane Aschman, MS
Moderators: