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Collaborating in Care: Communication with Your Provider About Pain-An Educational Program Based on Findings from the HERO Study

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Collaborating in Care: Communication with Your Provider About Pain-An Educational Program Based on Findings from the HERO Study

September 18, 2014
2:30 PM to 3:30 PM
Audience: 
Consumer/New Family

The Hemophilia Experiences, Results and Opportunities (HERO) survey was developed to facilitate understanding of the psychological components influencing the lives of patients with hemophilia. This initiative was conducted in more than 1,200 adult and child patients across 10 countries. While many people who live with hemophilia control their condition well and lead the lives they wish to, for others the condition can pose challenges. Psychosocial issues often critically affect the lives of people with hemophilia and their families. The HERO study found that people with hemophilia and their caregivers said that bleeding that caused pain and joint damage decreased their quality of life. This session will provide resources for communicating with your provider about pain to ensure that pain associated with bleeding and joint damage is addressed adequately and appropriately.

Speakers: 
Georgia Panopoulos, PhD
Kim Baumann, MPT