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Item GUID Title Image Icon Body Start Date End Date Start Time End Time Audience Moderators Speakers Session Type Sponsor File Title URL Path Published Promoted to front page
Session80 Accentuate the Positive: Living Well with a Bleeding Disorder

Finding joy in life can sometimes be difficult because of common everyday stressors further compounded by a bleeding disorder in the family. The power of a positive attitude cannot be overstated. During this session we will review some of the common stressors found in daily life and explore key ways to improve our attitudes.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 3:15pm 2015 - 4:45pm Consumer/New Family Dave Robinson, PhD LMFT Families /Events-Meetings/Annual-Meeting/Sessions/Accentuate-the-Positive-Living-Well-with-a-Bleeding-Disorder Yes No
Session117 Adapting the Knee Injury Prevention Program for Individuals with Bleeding Disorders Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 11:30am 2015 - 1:15pm Physical Therapists /Events-Meetings/Annual-Meeting/Sessions/Adapting-the-Knee-Injury-Prevention-Program-for-Individuals-with-Bleeding-Disorders Yes No
Session109 Advocacy: Open Enrollment and Insurance Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 9:30am 2015 - 12:00pm Consumer/New Family Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Advocacy-Open-Enrollment-and-Insurance Yes No
Session96 Afterglow Lounge Friday, August 14, 2015 Friday, August 14, 2015 2015 - 9:00pm 2015 - 11:00pm Chapter Staff, Consumer/New Family, Nurses, Pharmacists, Physical Therapists, Physicians/Researchers, Social Workers, Teens, Victory for Women /Events-Meetings/Annual-Meeting/Sessions/Afterglow-Lounge-2 Yes No
Session36 Afterglow Lounge Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 9:00pm 2015 - 11:00pm Chapter Staff, Consumer/New Family, Nurses, Pharmacists, Physical Therapists, Physicians/Researchers, Social Workers, Teens, Victory for Women /Events-Meetings/Annual-Meeting/Sessions/Afterglow-Lounge-1 Yes No
Session134 Art Therapy for Couples

Join us for an intimate creative experiential based session. In this session you and your partner will get your creative juices flowing! You will be led through an experiential session that will bring you closer to your partner and increase your communication skills.

Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 3:15pm 2015 - 4:45pm Consumer/New Family Sarah E. Watson, LPC & Art Therapist Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Art-Therapy-for-Couples Yes No
Session127 Ask the Experts: Ankle Issues Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 3:00pm 2015 - 5:00pm Physical Therapists /Events-Meetings/Annual-Meeting/Sessions/Ask-the-Experts-Ankle-Issues Yes No
Session85 Ask the Experts: Inhibitors Friday, August 14, 2015 Friday, August 14, 2015 2015 - 4:00pm 2015 - 5:30pm Consumer/New Family Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Ask-the-Experts-Inhibitors Yes No
Session39 ATHN Research 2015 and Beyond: A Briefing for the Patient Community Friday, August 14, 2015 Friday, August 14, 2015 2015 - 9:30am 2015 - 10:30am Consumer/New Family Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/ATHN-Research-2015-and-Beyond-A-Briefing-for-the-Patient-Community Yes No
Session50 Basics of Hemophilia

During this session we will focus on the basics of hemophilia including inheritance, symptoms, and management. With a thorough overview of the condition, you will have a better understanding of joint bleeds, the rationale for prophylaxis and practical approaches to common issues.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 10:45am 2015 - 11:45am Consumer/New Family Janna Journeycake, MD Families /Events-Meetings/Annual-Meeting/Sessions/Basics-of-Hemophilia Yes No
Session27 Basics of VWD for Families

This session will provide an overview of von Willebrand disease (VWD), and how diagnosis and treatment affect the whole family. You will receive information on coping with the diagnosis, managing the disorder, and specific challenges during childhood and adulthood. Find out about available medications and therapies for treatment and prevention of bleeding episodes. By the end of the session you will learn what to expect during the progression of VWD from infancy to adulthood, the benefits of the family working together to support each other's health and how best to use your medical team at the hemophilia treatment center (HTC).

Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 3:30pm 2015 - 4:30pm Consumer/New Family Andrew Wilson, RN, CPHON Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Basics-of-VWD-for-Families Yes No
Session31 Be the Like the Cool Kids: NYLI & Future Leaders

Hear four inspiring members form our National Youth Leadership Institute (NYLI) share stories about how their involvement in the bleeding disorders community has affected their personal, academic and career aspirations. From serving on a board to designing trainings and sessions at this very Annual Meeting, NYLI plays a critical role in delivering NHF programming. Learn all about NYLI and how you can get involved!

Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 4:00pm 2015 - 5:00pm Consumer/New Family Nikole Scappe Patrick Cordova, Carson Ouellette, Lauren O'Doherty Young Adults /Events-Meetings/Annual-Meeting/Sessions/Be-the-Like-the-Cool-Kids-NYLI-Future-Leaders Yes No
Session83 CDC Surveillance Update Friday, August 14, 2015 Friday, August 14, 2015 2015 - 4:00pm 2015 - 5:00pm Consumer/New Family Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/CDC-Surveillance-Update Yes No
Session77 Challenging Case Studies in Inhibitors and Rare Bleeding Disorders Friday, August 14, 2015 Friday, August 14, 2015 2015 - 3:00pm 2015 - 5:00pm Nurses /Events-Meetings/Annual-Meeting/Sessions/Challenging-Case-Studies-in-Inhibitors-and-Rare-Bleeding-Disorders Yes No
Session44 Chapter Fundraising Roundtables: Tribute! How to Honor Donors, Non-Events

The dynamic of donor relationships are experiencing a revolution unlike any seen before. Communicatins are no longer segmented, stark, and costly mailings; we now look toward a present and future filled with rich, bold, all- encompassing communications that grab and engage donors and prospects where they are. The real value of this new paradigm, however, is in the genuine, authentic conversations that exist. Regardless of affinity, organization hierarchy, structure or budget, the standards exist, and at a minimum these should be a core function of every well-performing development team. What sets the high achieving team apart is their ability to take calculated risks, embrace failure, and innovate. We will learn how to navigate this changing landscape together to move forward and inspire others to join our mission of innovation.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 9:30am 2015 - 11:00am Chapter Staff Lynne Wester /Events-Meetings/Annual-Meeting/Sessions/Chapter-Fundraising-Roundtables-Tribute-How-to-Honor-Donors-Non-Events Yes No
Session2 Chapter Leadership Reception Wednesday, August 12, 2015 Wednesday, August 12, 2015 2015 - 6:00pm 2015 - 7:30pm Chapter Staff /Events-Meetings/Annual-Meeting/Sessions/Chapter-Leadership-Reception Yes No
Session66 Chapter Program Roundtables

Family Camp, Spanish Speaking Initiatives, Advocacy, Creating a Teen Program

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 1:00pm 2015 - 2:45pm Chapter Staff /Events-Meetings/Annual-Meeting/Sessions/Chapter-Program-Roundtables Yes No
Session86 Chapter Roundtables: What Makes a Good Organization?

Personnel Manual, HR Policies, Performance Objectives & Evaluations for EDs

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 3:00pm 2015 - 5:00pm Chapter Staff /Events-Meetings/Annual-Meeting/Sessions/Chapter-Roundtables-What-Makes-a-Good-Organization Yes No
Session88 Creative Social Work Planning Friday, August 14, 2015 Friday, August 14, 2015 2015 - 5:00pm 2015 - 6:00pm Social Workers /Events-Meetings/Annual-Meeting/Sessions/Creative-Social-Work-Planning Yes No
Session6 CSO Business Meeting and Luncheon Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 11:30am 2015 - 12:45pm Chapter Staff /Events-Meetings/Annual-Meeting/Sessions/CSO-Business-Meeting-and-Luncheon Yes No
Session81 Embracing Your Inner Geezer: Aging

During this session we will focus on the health issues that affect older hemophilia patients and the evolving nature of comprehensive care. We will also discuss cardiovascular disease, rheumatologic disease, and the importance of cancer screening and orthopaedic referrals. By the end of the session you will learn to identify symptoms of gout, heart disease and other ailments, and how to help your HTC get you the resources you need.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 3:30pm 2015 - 4:30pm Consumer/New Family Randall G. Curtis, MBA Barbara Konkle, Dr., Patrick Fogarty, MD Adult Men /Events-Meetings/Annual-Meeting/Sessions/Embracing-Your-Inner-Geezer-Aging Yes No
Session120 Embracing Your Inner Geezer: Retirement Planning Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 12:00pm 2015 - 1:00pm Consumer/New Family Adult Men /Events-Meetings/Annual-Meeting/Sessions/Embracing-Your-Inner-Geezer-Retirement-Planning Yes No
Session130 Embracing Your Inner Geezer: The Care Continuum Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 3:15pm 2015 - 4:15pm Consumer/New Family Adult Men /Events-Meetings/Annual-Meeting/Sessions/Embracing-Your-Inner-Geezer-The-Care-Continuum Yes No
Session73 Emerging VWD Treatment Products

See the Medical Track for Physicians and Researchers Conference Program for details.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 2:30pm 2015 - 3:30pm Consumer/New Family Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Emerging-VWD-Treatment-Products Yes No
Session106 Ethical Slippery Slopes in HTC Nursing (closed session)

This session is open to hemophilia treatment center nurses only. This dynamic interactive session will focus on identification of ethical dilemmas commonly encountered in hemophilia treatment center nursing and the application of ethical principles. Through case presentations ethical principles and their application will be demonstrated with a goal of fostering integrity through ethical behavior while promoting awareness of ethical issues. Upon completion attendees will be able to identify common ethical dilemmas encountered by hemophilia treatment center nurses, describe how to apply ethical principles to ethical dilemmas, and describe how collaborative problem solving with the application of ethical principles enhances the HTC nurses ability to effectively manage ethical dilemmas.

Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 9:30am 2015 - 11:15am Nurses Lori Wagner, RN, MSN, FNP-C Kristie Ostash, MD, Sabrina Farina, LMSW, James Munn, RN, MSN /Events-Meetings/Annual-Meeting/Sessions/Ethical-Slippery-Slopes-in-HTC-Nursing-closed-session Yes No
Session20 Ethics = Choices: Not Always Clear, Not Always Easy Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 2:15pm 2015 - 3:15pm Consumer/New Family Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Ethics-Choices-Not-Always-Clear-Not-Always-Easy Yes No
Session56 Ethics: Friends with Benefits – HIPAA & Social Media Friday, August 14, 2015 Friday, August 14, 2015 2015 - 11:30am 2015 - 1:15pm Social Workers /Events-Meetings/Annual-Meeting/Sessions/Ethics-Friends-with-Benefits-HIPAA-Social-Media Yes No
Session46 Ethics: Go to Dinner, Go to Jail? Friday, August 14, 2015 Friday, August 14, 2015 2015 - 9:30am 2015 - 11:15am Social Workers /Events-Meetings/Annual-Meeting/Sessions/Ethics-Go-to-Dinner-Go-to-Jail Yes No
Session9 Everyone Counts: Camp and VWD

Bleeding disorders camp should be for everyone – but how does it feel when a kid with VWD attends “hemophilia camp?” Unconscious biases towards education and celebration of self-infusion can leave some boys and girls with VWD feeling like outsiders in their own community, especially when the specific needs of their own disorder are ignored or glossed over. This session feature a panel of experts and ex-campers who can speak to both the positive and negative experience of attending a camp as a kid with VWD, and will give advice to chapters, parents and campers on how to make bleeding disorders camp an empowering experience for all.

Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 1:00pm 2015 - 2:00pm Consumer/New Family Katherine Rosenblatt, LMSW Madonna McGuire-Smith, Kai Stinson, Megan McDonald Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Everyone-Counts-Camp-and-VWD Yes No
Session59 Exhibit Hall Lunch Friday, August 14, 2015 Friday, August 14, 2015 2015 - 12:00pm 2015 - 1:30pm Chapter Staff, Consumer/New Family Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Exhibit-Hall-Lunch Yes No
Session33 Exhibit Hall Opening Reception Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 6:30pm 2015 - 9:30pm Chapter Staff, Consumer/New Family, Nurses, Pharmacists, Physical Therapists, Physicians/Researchers, Social Workers, Teens, Victory for Women /Events-Meetings/Annual-Meeting/Sessions/Exhibit-Hall-Opening-Reception Yes No
Session24 Fact(or) Fiction Game

Do you know the myths and facts about bleeding disorders? Come test your knowledge in a fun trivia game show. You'll be quizzed on topics related to bleeding disorders, treatments and history. There's no million dollar prize, but you can win bragging rights!

Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 2:30pm 2015 - 3:30pm Consumer/New Family Grant Hiura Amy Board, Michael Drab Families /Events-Meetings/Annual-Meeting/Sessions/Factor-Fiction-Game Yes No
Session123 Family Health History: Bleeding Disorders and Beyond

During this session we will focus on the importance of knowing your family health history, both in regard to hereditary bleeding disorders and other inherited conditions. We will review the process and questions that need to be asked to compile a family health history, and explain how to draw this information in a pedigree, or a pictorial family tree. We will also discuss appropriate medical professionals to contact with questions about family health history. Finally, we will discuss strategies regarding how to initiate discussions with other family members about bleeding disorders or other family health history concerns.

Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 12:00pm 2015 - 1:00pm Consumer/New Family Michelle Alabek, MS, CGC, Tahnee Causey, MS, CGC Families /Events-Meetings/Annual-Meeting/Sessions/Family-Health-History-Bleeding-Disorders-and-Beyond Yes No
Session67 Family Roundtables

1. Advocacy in the ER 2. Ready, Set, Infuse; 3. Pain Management for Kids; 4. Pressure to Switch Products

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 1:00pm 2015 - 3:00pm Consumer/New Family Families /Events-Meetings/Annual-Meeting/Sessions/Family-Roundtables-2 Yes No
Session49 Family Roundtables

Can I Leave My Child With You? 2. Stress Free Travel 3. Time Out!! Discipline How To’s 4. How to Navigate School Issues 5. Making the Grade: Academics

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 9:30am 2015 - 11:30am Consumer/New Family Families /Events-Meetings/Annual-Meeting/Sessions/Family-Roundtables-1 Yes No
Session100 Fathers & Daughters Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 9:30am 2015 - 10:30am Consumer/New Family Families /Events-Meetings/Annual-Meeting/Sessions/Fathers-Daughters Yes No
Session139 Final Night Event Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 5:00pm 2015 - 9:00pm Chapter Staff, Consumer/New Family, Nurses, Pharmacists, Physical Therapists, Physicians/Researchers, Social Workers, Teens, Victory for Women /Events-Meetings/Annual-Meeting/Sessions/Final-Night-Event Yes No
Session135 Finding the Laugh: Coping Through Comedy Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 3:15pm 2015 - 4:45pm Consumer/New Family Young Adults /Events-Meetings/Annual-Meeting/Sessions/Finding-the-Laugh-Coping-Through-Comedy Yes No
Session30 Fit Livin' For All Ages - It's a Family Affair

Find your passion and achieve a healthy lifestyle! Learn how to create a healthy and supportive enviroment, set realistic goals, eat a healthy, nutrient0-rich diet, create a cardiovascular base and improve strength, flexibility and balance for the whole family. A unique approach to health and wellness you won't want to miss!

Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 3:45pm 2015 - 4:45pm Consumer/New Family Matt Shade, Stacie Akins, PT Families /Events-Meetings/Annual-Meeting/Sessions/Fit-Livin-For-All-Ages-Its-a-Family-Affair Yes No
Session98 Fit 'n' Fun Walk/Run Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 8:00am 2015 - 9:00am Chapter Staff, Consumer/New Family, Nurses, Physical Therapists, Social Workers Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Fit-n-Fun-Walk-Run Yes No
Session89 Flash That Smile: Dental Care

A great smile gives you confidence, and a healthy mouth is the gateway to a healthy body. This presentation will address the unique oral health challenges that people with bleeding disorders face. We will learn what causes cavities and periodontal disease and how to prevent them. Attendees will get advice on choosing a dentist, talking with him/her about your bleeding disorder and planning safe treatment. We will talk about daily oral health, dietary choices, and how to maintain that great smile and healthy mouth from infancy through the golden years.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 5:00pm 2015 - 6:00pm Consumer/New Family Rebecca Schaffer, DDS Families /Events-Meetings/Annual-Meeting/Sessions/Flash-That-Smile-Dental-Care Yes No
Session90 Genetics: Testing in Hemophilia Care Friday, August 14, 2015 Friday, August 14, 2015 2015 - 5:00pm 2015 - 6:00pm Nurses /Events-Meetings/Annual-Meeting/Sessions/Genetics-Testing-in-Hemophilia-Care Yes No
Session72 Getting Your Art On

The ART STARS panel discussion will cover clinical evidence surrounding the efficacy of art therapy in chronic conditions, unique implementations of creative success in the bleeding disorders community and an Art Stars programming overview. We'll discuss how and why integrating art therapy as a part of your care plan can increase positive health outcomes, share personal experiences and advice for working within the creative economy and examine the affect programs like the Art Stars Exhibition can have when used to recognize alternative versions success--from arts and music to activism and ingenuity. You'll learn examples of creative activities to try at home, an understanding of how working creatively can be sustainable, gain the confidence to encourage creative success, and reach an awareness about how images are used to represent our community and how we can reclaim those images for ourselves.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 2:15pm 2015 - 3:45pm Consumer/New Family, Teens Justin Levesque, BFA Sarah E. Watson, LPC & Art Therapist, Patrick James Lynch, Michael Davidson, PhD Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Getting-Your-Art-On Yes No
Session45 Half-Life: How it Works Friday, August 14, 2015 Friday, August 14, 2015 2015 - 9:30am 2015 - 11:00am Consumer/New Family Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Half-Life-How-it-Works Yes No
Session118 Health Insurance Literacy Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 11:30am 2015 - 1:15pm Nurses /Events-Meetings/Annual-Meeting/Sessions/Health-Insurance-Literacy Yes No
Session29 Healthy Cooking on Budget

This session is designed to show you quick, and easy ways to a more healthful manner without breaking the bank! You will come away with ideas on menu planning and where to find delicious and nutritious recipes.

Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 3:30pm 2015 - 4:50pm Consumer/New Family Tina Willis, MA, RD Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Healthy-Cooking-on-Budget Yes No
Session124 Healthy Steps: Just Dance! Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 12:30pm 2015 - 1:20pm Consumer/New Family Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Healthy-Steps-Just-Dance Yes No
Session101 Healthy Steps: Tai Chi

Rick is a sixty year old hemophiliac, B, severe, diagnosed at birth. A survivor of limited treatment availabilities in the 50's and 60's, and the blood borne diseases of the 80's and 90's. He is married, and a father of five children, with a daughter, in college who is also a moderate B. A student of the martial arts for over 40 years, attaining the rank of First Dan in Tae Kwon Do, in the 80's. A student of Tai Chi now, instructor in TaiJiFit, owner of Meditation in Motion, he now speaks nationally as a proponent of Tai Chi and the martial arts in hemophilia. He resides in Haigler, Nebraska with his wife of 28 years.

Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 9:30am 2015 - 10:30am Consumer/New Family Rick Starks Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Healthy-Steps-Tai-Chi Yes No
Session25 Healthy Steps: Yoga

Yoga is a discipline that unites physical postures (asanas) with breathing techniques (pranayamas) to create a balance of mind, body and spirit. It helps the individual develop body awareness, build strength, improve balance and boost confidence. Research has shown that stress is a factor in suppressing the body's immune functions and thereby weakening its ability to fight disease. By lowering the body's overall stress, anxiety and pain, it can help strengthen a person's body naturally and improve the quality of life.

Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 3:15pm 2015 - 4:15pm Consumer/New Family Kate Garrett, CCLS, RYT Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Healthy-Steps-Yoga Yes No
Session131 Helping Volunteers Find Happiness, Purpose and Success Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 1:00pm 2015 - 2:00pm Chapter Staff Jenne Fromm /Events-Meetings/Annual-Meeting/Sessions/Helping-Volunteers-Find-Happiness-Purpose-and-Success Yes No
Session47 Hemophilia A-Z: A Review and Update of Core Concepts for PTs Friday, August 14, 2015 Friday, August 14, 2015 2015 - 9:30am 2015 - 11:15am Physical Therapists /Events-Meetings/Annual-Meeting/Sessions/Hemophilia-A-Z-A-Review-and-Update-of-Core-Concepts-for-PTs Yes No
Session79 Hemophilia Genetics 411 Friday, August 14, 2015 Friday, August 14, 2015 2015 - 3:00pm 2015 - 5:00pm Social Workers /Events-Meetings/Annual-Meeting/Sessions/Hemophilia-Genetics-411 Yes No
Session17 Hepatitis C Updates Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 2:15pm 2015 - 3:15pm Consumer/New Family Adult Men /Events-Meetings/Annual-Meeting/Sessions/Hepatitis-C-Updates Yes No
Session61 HIV Treatment Updates Friday, August 14, 2015 Friday, August 14, 2015 2015 - 1:00pm 2015 - 2:00pm Consumer/New Family Adult Men /Events-Meetings/Annual-Meeting/Sessions/HIV-Treatment-Updates Yes No
Session18 Hola y Bienvenido! Spanish Meet & Greet

Bienvenidos, esperamos que disfruten de esta sesion. Hola! Las sessiones son excelente para aprender y conocer a nuevas familias que ustedes pueden relacionar y apoyarse uno al otro. Estamos aqui para ayudar y responder cualquier preguntas que puedan tener."

Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 2:15pm 2015 - 3:15pm Consumer/New Family Karla Espinosa, Blanca Ramirez, Sonia Roger Español /Events-Meetings/Annual-Meeting/Sessions/Hola-y-Bienvenido-Spanish-Meet-Greet Yes No
Session26 How to Become a Chapter of Excellence

The new iteration of the Chapter Charter Agreement has a new level of accountability. There are "required" standards, and there are Chapter Standards of Excellence that chapters are encouraged to meet. These standards have been established to provide guidance and structure for chapters that are working to increase effectiveness and improve outcomes for those they serve. These best practices are a from which to build and grow. Learn about how the Chapter of Excellence Evaluation Report (CHEER) works and how CHEER can help you be recognized by NHF.

Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 3:15pm 2015 - 4:45pm Chapter Staff /Events-Meetings/Annual-Meeting/Sessions/How-to-Become-a-Chapter-of-Excellence Yes No
Session8 HTC Staff Meeting Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 12:00pm 2015 - 2:00pm Nurses, Physical Therapists, Physicians/Researchers, Social Workers /Events-Meetings/Annual-Meeting/Sessions/HTC-Staff-Meeting Yes No
Session51 I Don't Live Near an HTC! Can Telemedicine Work for Me?

Telemedicine offers HTCs new and effective ways for delivering healthcare. They can reach far beyond current services and think creatively about meeting your healthcare needs. Advancements in technology and communication are transforming access to medical care. Hear from a rural HTC leader who is currently providing telemedicine services in Northern Michigan and the impact telemedicine is having on patients. Information on how states regulate telemedicine will be presented to address the availability of this practice at your HTC.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 10:45am 2015 - 11:45am Consumer/New Family Margaret Hall, MSN, RN, FNP-BC, Jennifer M. Guy, J.D. Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/I-Dont-Live-Near-an-HTC-Can-Telemedicine-Work-for-Me Yes No
Session22 Impaired Balance and Falling Issues: Assessment and Management Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 2:15pm 2015 - 4:45pm Physical Therapists /Events-Meetings/Annual-Meeting/Sessions/Impaired-Balance-and-Falling-Issues-Assessment-and-Management Yes No
Session35 Industry Symposia Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 7:30pm 2015 - 9:45pm Nurses, Physical Therapists, Physicians/Researchers, Social Workers /Events-Meetings/Annual-Meeting/Sessions/Industry-Symposia-2 Yes No
Session3 Industry Symposia Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 8:00am 2015 - 11:30am Chapter Staff, Consumer/New Family, Nurses, Pharmacists, Physical Therapists, Physicians/Researchers, Social Workers, Teens, Victory for Women /Events-Meetings/Annual-Meeting/Sessions/Industry-Symposia-1 Yes No
Session97 Industry Symposia Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 7:00am 2015 - 9:00am Chapter Staff, Consumer/New Family, Nurses, Pharmacists, Physical Therapists, Physicians/Researchers, Social Workers, Teens, Victory for Women /Events-Meetings/Annual-Meeting/Sessions/Industry-Symposia-3 Yes No
Session37 Industry Symposium I Friday, August 14, 2015 Friday, August 14, 2015 2015 - 7:00am 2015 - 9:00am Chapter Staff, Consumer/New Family, Nurses, Pharmacists, Physical Therapists, Physicians/Researchers, Social Workers, Teens, Victory for Women /Events-Meetings/Annual-Meeting/Sessions/Industry-Symposium-I Yes No
Session38 Industry Symposium II Friday, August 14, 2015 Friday, August 14, 2015 2015 - 7:00am 2015 - 9:00am Nurses /Events-Meetings/Annual-Meeting/Sessions/Industry-Symposium-II Yes No
Session110 Inhibitors and You Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 10:45am 2015 - 11:45am Consumer/New Family Families /Events-Meetings/Annual-Meeting/Sessions/Inhibitors-and-You Yes No
Session48 Inhibitors: Current Trends

During this session we will focus on the development and current trends in the treatment of inhibitors. Chris Guelcher, CPNP, states approximately 25% of patients with hemophilia A and 5% of patients with hemophilia B will develop antibodies (inhibitors) to the factor replacement product making management of hemophilia far more complicated and expensive. Patients with inhibitors do not respond to standard factor replacement and often require bypassing agents to manage suspected bleeding. Although inhibitor patients to do necessarily bleed more often, the bleeds are more difficult to manage and patients are at higher risk for developing more sequelae.
The CDC is interested in learning more about why some people develop inhibitors and hot they could be prevented. Dr. Soucie will give an update on the research taking place.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 9:30am 2015 - 11:15am Nurses Susan Purdie, RN Mike Soucie, PhD, Chris Guelcher, MS, APRN, PPCNP-BC /Events-Meetings/Annual-Meeting/Sessions/Inhibitors-Current-Trends Yes No
Session11 It’s Your Time: Make a Difference Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 1:00pm 2015 - 2:00pm Consumer/New Family Jennifer M. Guy, J.D., Jorge de la Riva Young Adults /Events-Meetings/Annual-Meeting/Sessions/Its-Your-Time-Make-a-Difference Yes No
Session107 LGBT and Aging: Cultural Competence Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 9:30am 2015 - 11:15am Social Workers /Events-Meetings/Annual-Meeting/Sessions/LGBT-and-Aging-Cultural-Competence Yes No
Session114 LGBTQ Rap Session Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 11:15am 2015 - 12:15pm Consumer/New Family /Events-Meetings/Annual-Meeting/Sessions/LGBTQ-Rap-Session Yes No
Session108 Looking from the Outside In: Musculoskeletal Ultrasound for Physical Therapy

This session will review MSKUS as a clinically applicable tool for physical therapy evaluation, management and treatment of bleeding disorders. The participant will be introduced to 4 different types of imaging and will compare their cost and clinical utility. Users will review the process for skill acquitition for physical therapists.

Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 9:30am 2015 - 11:15am Physical Therapists Ruth Mulvany, PT, DPT, MS Annette von Drygalski, MD, Karen Strike, MSPT /Events-Meetings/Annual-Meeting/Sessions/Looking-from-the-Outside-In-Musculoskeletal-Ultrasound-for-Physical-Therapy Yes No
Session99 MASAC Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 8:00am 2015 - 6:00pm Physicians/Researchers /Events-Meetings/Annual-Meeting/Sessions/MASAC Yes No
Session5 Meet the 2015 Judith Graham Pool Postdoctoral Research Fellows Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 10:15am 2015 - 11:15am Chapter Staff /Events-Meetings/Annual-Meeting/Sessions/Meet-the-2015-Judith-Graham-Pool-Postdoctoral-Research-Fellows Yes No
Session121 Meet the NHF Board of Directors Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 12:00pm 2015 - 1:00pm Chapter Staff /Events-Meetings/Annual-Meeting/Sessions/Meet-the-NHF-Board-of-Directors Yes No
Session91 Mr. VWD: Men and Boys

During this session, we will focus on issues relevant to boys and men with von Willebrand disease (VWD). We will discuss coping with VWD in a community where hemophilia is the predominant bleeding disorder; differences for those who are mild, moderate or severe; important reasons for boys and men to get diagnosed and learn about self-care.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 5:00pm 2015 - 6:00pm Consumer/New Family Cathy Tiggs, MSSA, LISW Kai Stinson, James Hammel, MD, MA, MSc, FAPA Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Mr-VWD-Men-and-Boys Yes No
Session128 Musculoskeletal Ultrasound in Hemophilia: the Radiologist Perspective Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 3:00pm 2015 - 5:00pm Nurses /Events-Meetings/Annual-Meeting/Sessions/Musculoskeletal-Ultrasound-in-Hemophilia-the-Radiologist-Perspective Yes No
Session15 New Families Reception

If you're new to the world of bleeding disorders, this reception is the place to be. Come meet new parents and participants, learn, socialize and have fun!

Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 1:15pm 2015 - 2:15pm Consumer/New Family Families /Events-Meetings/Annual-Meeting/Sessions/New-Families-Reception Yes No
Session63 New Frontiers in Safe Sex: It's More Than Condoms

This session will provide new data about Pre-Exposure Prophylaxis (PrEP) and the impact on "safe sex" guidelines for HIV+individuals, HIV-partners and anyone who wants to know more about hep C sexual transmission, risk, and lessons learned from HIV. We will also discuss new data, CDC recommendations about PrEP and updated "safe" sex guidelines. We will discuss safe conception options for HIV-affected couples looking to start a family, and sexual expression as part of living a long and healthy life. By the end of the session you will learn new options for protecting yourself and your partners from HIV and hep C transmission, and where to find more information to help you make informed decisions about your sexual health and expression.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 1:00pm 2015 - 2:15pm Consumer/New Family Susan Hartmann, Judy Levison, MD, MPH Partners and Spouses /Events-Meetings/Annual-Meeting/Sessions/New-Frontiers-in-Safe-Sex-Its-More-Than-Condoms Yes No
Session64 New Treatments and Gene Therapy

This session will describe advancements in the treatment of bleeding disorders. The next advancement in clotting factor products for the treatment of hemophilia A and B, products which last for a prolonged time in the body, are approved for use and will be described. Alternatives to FVIII and FIX replacement, which may be effective in individuals with inhibitors, are in clinical trials and will be discussed. Finally, addition of a correct factor VIII and IX gene to the liver to provide sufficient protein to cure hemophilia are advancing. Multiple small clinical trials are ongoing for hemophilia B, which some encouraging results, while preparations are underway for initial human testing of very similar technology in hemophilia A. This is a very ripe discovery period, which is beginning to transition to improved therapies for bleeding disorders.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 1:00pm 2015 - 2:30pm Consumer/New Family Glenn Pierce, MD, PhD Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/New-Treatments-and-Gene-Therapy Yes No
Session40 New Wheels: Joint Replacement and Fusion Friday, August 14, 2015 Friday, August 14, 2015 2015 - 9:30am 2015 - 10:30am Consumer/New Family Adult Men /Events-Meetings/Annual-Meeting/Sessions/New-Wheels-Joint-Replacement-and-Fusion Yes No
Session126 NHF Annual Meeting and Awards Luncheon Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 1:30pm 2015 - 3:00pm Chapter Staff, Consumer/New Family, Nurses, Pharmacists, Physical Therapists, Physicians/Researchers, Social Workers, Teens, Victory for Women /Events-Meetings/Annual-Meeting/Sessions/NHF-Annual-Meeting-and-Awards-Luncheon Yes No
Session4 NHF Chapter Update Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 9:00am 2015 - 10:00am Chapter Staff /Events-Meetings/Annual-Meeting/Sessions/NHF-Chapter-Update Yes No
Session19 NHF Education Department Programs for Chapters

NHF is dedicated to providing tailored, quality programs that can be integrated into your annual meetings, education days or camps. This session will update you on programs such as the Collaborating in Care series, Steps for Living, Work on Purpose, Art Workshops and Victory for Women, and how you can work with NHF to bring these programs to your next chapter event.

Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 2:15pm 2015 - 3:15pm Chapter Staff Dawn Rotellini Kate Nammacher, MPH, Sarah Forman, MPH, Jessica Morrison /Events-Meetings/Annual-Meeting/Sessions/NHF-Education-Department-Programs-for-Chapters Yes No
Session102 NHF’s Partnership with the CDC & What It Means for You Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 9:30am 2015 - 10:30am Chapter Staff /Events-Meetings/Annual-Meeting/Sessions/NHFs-Partnership-with-the-CDC-What-It-Means-for-You Yes No
Session55 NHF's Victory for Women: Genetic Counseling for Hemophilia Carrier Status

Knowing whether or not a woman is a carrier of hemophilia can have potential implications for her own health, as well as that of her children and other family members. This session will focus on learning how to identify women who are carriers or potential carriers of hemophilia. We will review how to identify carriers and potential carriers using family history, as well as ppropriate testing options that are available for determining carrier status. Finally, we will discuss options available to carriers regarding family planning, such as prenatal testing, postnatal testing, and birthing plans.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 11:15am 2015 - 12:15pm Consumer/New Family Michelle Alabek, MS, CGC, Tahnee Causey, MS, CGC Women with Bleeding Disorders /Events-Meetings/Annual-Meeting/Sessions/NHFs-Victory-for-Women-Genetic-Counseling-for-Hemophilia-Carrier-Status Yes No
Session10 NHF's Victory for Women: I'm Unique and Important!

In a world where von Willebrand disease and hemophilia are the most common terms, where is our place when we have diagnoses such as Glanzmann's thrombasthenia disease, Factor V Leiden, a platelet disorder, or a combination. Join us for this engaging session and hear about the experiences of women who have these unique diagnoses and their perspectives.

Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 1:00pm 2015 - 2:00pm Consumer/New Family Cathy Marquez, Karla Brown Women with Bleeding Disorders /Events-Meetings/Annual-Meeting/Sessions/NHFs-Victory-for-Women-Im-Unique-and-Important Yes No
Session93 NHF's Victory for Women: It’s Gettin’ Hot In Here: Aging & Menopause Friday, August 14, 2015 Friday, August 14, 2015 2015 - 5:15pm 2015 - 6:15pm Consumer/New Family Women with Bleeding Disorders /Events-Meetings/Annual-Meeting/Sessions/NHFs-Victory-for-Women-Its-Gettin-Hot-In-Here-Aging-Menopause Yes No
Session74 NHF's Victory for Women: Learning the Lingo: Newly Diagnosed Women & Girls

During this session we will focus on the latest updates in HIV therapy. We will discuss the new classes of drugs for HIV and their side effects. By the end of the session you will learn what HIV treatments are available and the importance of using a team of specialists to find the right therapy for you.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 2:45pm 2015 - 3:45pm Consumer/New Family Women with Bleeding Disorders /Events-Meetings/Annual-Meeting/Sessions/NHFs-Victory-for-Women-Learning-the-Lingo-Newly-Diagnosed-Women-Girls Yes No
Session111 NHF's Victory for Women: Real Talk: Sex and Bleeding Disorders (Women only)

This session is for women with bleeding disorders only. This will be an open and frank discussion on bleeding disorders, sex and intimacy. Our speaker will initiate the discussion on how bleeding problems may affect intimacy decisions and complicate sex. Learn how communication styles can promote intimacy, honesty and disclosure. No industry representatives are permitted at this session.

Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 10:45am 2015 - 11:45am Consumer/New Family Tina Whitehead, MS, LMFT-Associate Women with Bleeding Disorders /Events-Meetings/Annual-Meeting/Sessions/NHFs-Victory-for-Women-Real-Talk-Sex-and-Bleeding-Disorders-Women-only Yes No
Session28 NHF's Victory for Women: Women and Wellness: Taking Care of Yourself Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 3:30pm 2015 - 4:30pm Consumer/New Family Women with Bleeding Disorders /Events-Meetings/Annual-Meeting/Sessions/NHFs-Victory-for-Women-Women-and-Wellness-Taking-Care-of-Yourself Yes No
Session68 Nurses Luncheon Friday, August 14, 2015 Friday, August 14, 2015 2015 - 1:30pm 2015 - 2:45pm Nurses /Events-Meetings/Annual-Meeting/Sessions/Nurses-Luncheon Yes No
Session113 On My Own: Overcoming Adversity Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 10:45am 2015 - 12:00pm Consumer/New Family Young Adults /Events-Meetings/Annual-Meeting/Sessions/On-My-Own-Overcoming-Adversity Yes No
Session16 One In A Million: Rare Bleeding Disorders

Join us for this session in which we will uncover some of the rarer bleeding disorders. We will discuss the signs, symptoms and mechanics of the disorders; available treatments; and issues faced by patients.

Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 2:00pm 2015 - 3:00pm Consumer/New Family Miguel Escobar, MD Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/One-In-A-Million-Rare-Bleeding-Disorders Yes No
Session32 Opening Session Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 5:00pm 2015 - 6:30pm Chapter Staff, Consumer/New Family, Nurses, Pharmacists, Physical Therapists, Physicians/Researchers, Social Workers, Teens, Victory for Women /Events-Meetings/Annual-Meeting/Sessions/Opening-Session Yes No
Session7 Orientation and Welcome Session

Is this your first time attending an NHF Annual Meeting? Please join us as we introduce you to NHF and provide an overview of this three-day event. We will offer suggestions for how to get the most out of the conference, highlight sessions options, describe the Exhibit Hall and social opportunities, and explain where to go if you need help. Get to know other newcomers and our host chapters, Texas Central Hemophilia Association and Lone Star Chapter of NHF. Also joining us is Jorge de la Riva, Chair of the Board. We look forward to greeting you at your first exciting session of the 67th Annual Meeting!

Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 12:00pm 2015 - 1:00pm Consumer/New Family Michelle Witkop, DNP, FNP-BC, Lisa Maxwell Families /Events-Meetings/Annual-Meeting/Sessions/Orientation-and-Welcome-Session Yes No
Session104 Out of the Woods: Coping with Anxiety and Depression Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 9:30am 2015 - 11:00am Consumer/New Family Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Out-of-the-Woods-Coping-with-Anxiety-and-Depression Yes No
Session129 Pain Management: Medical Marijuana; Substance Misuse Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 3:00pm 2015 - 5:00pm Social Workers /Events-Meetings/Annual-Meeting/Sessions/Pain-Management-Medical-Marijuana-Substance-Misuse Yes No
Session122 Pasos para Vivir: Hermanos Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 12:00pm 2015 - 1:00pm Consumer/New Family Español /Events-Meetings/Annual-Meeting/Sessions/Pasos-para-Vivir-Hermanos Yes No
Session69 Physical Therapists Luncheon

When the meds fail, the docs prescribe music! In this illuminating, informative, and interactive session, participants will discover that the medical field is now acknowledging what we have all intuitively understood all along--music is powerful and can be used as an effective clinical tool to manage physical and emotional pain. Come learn why and how this old friend called music is so effective in this fun, entertaining and empowering session. Participants will learn specific techniques they can immediately implement as well as the science behind the art of music, and why your body can’t resist it.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 1:30pm 2015 - 2:45pm Physical Therapists /Events-Meetings/Annual-Meeting/Sessions/Physical-Therapists-Luncheon Yes No
Session13 Platinum Preview Lounge

Get a sneak peek at our top sponsors before the Exhibit Hall opens. This is your opportunity to network, have a snack and meet representatives from our Platinum Sponsors: Baxter, Bayer Health Care, Biogen Idec, Novo Nordisk and Pfizer Hemophilia. Take a moment to thank them for supporting the Annual Meeting!

Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 1:00pm 2015 - 4:00pm Consumer/New Family Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Platinum-Preview-Lounge Yes No
Session71 Powerful Partnerships

During this session we will focus on the ups and downs of relationships and marriage when one partner has a bleeding disorder, and ways to maintain strong partnerships. We will discuss ways that bleeding disorders can add challenges to a relationship when managing day-to-day treatment, finances, insurance and medical logistics, parenting, and medical crises. We will also hear stories from a panel of couples in the bleeding disorder community who will share their experiences and lessons learned along the way. You will learn effective strategies to foster strong relationships that support both affected and non-affected partners, particularly during stressful times or emergency medical events.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 2:15pm 2015 - 3:15pm Consumer/New Family Susan Hartmann, Dana Francis, MSW, Dan Hartman, Nikole Scappe, Robert Hagen Jr., Sharon Ingram, MA, Warren Ingram Partners and Spouses /Events-Meetings/Annual-Meeting/Sessions/Powerful-Partnerships Yes No
Session23 Precon: Medical Abuse and Neglect Through the Lifespan Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 2:15pm 2015 - 4:45pm Nurses, Social Workers /Events-Meetings/Annual-Meeting/Sessions/Precon-Medical-Abuse-and-Neglect-Through-the-Lifespan Yes No
Session1 Precon: Telling Your Organization's Story with Data Visualization

Visualizing data through charts, graphs, and diagrams helps you deliver bite-sized information that viewers will understand at a glance and retain for the long run. The goal of this workshop is to equip participants with critical thinking skills and technical know-how to create visualizations faster and easier than ever thought possible. The workshop is designed to facilitate experiential learning of techniques using Microsoft Excel, and therefore participants should bring their own laptops to this session.

Wednesday, August 12, 2015 Wednesday, August 12, 2015 2015 - 2:00pm 2015 - 5:00pm Chapter Staff Ann K. Emery /Events-Meetings/Annual-Meeting/Sessions/Precon-Telling-Your-Organizations-Story-with-Data-Visualization Yes No
Session115 Protecting Your Child’s Financial Future Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 11:15am 2015 - 12:15pm Consumer/New Family Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Protecting-Your-Childs-Financial-Future Yes No
Session92 PT Considerations: Across the Lifespan Friday, August 14, 2015 Friday, August 14, 2015 2015 - 5:00pm 2015 - 6:00pm Physical Therapists /Events-Meetings/Annual-Meeting/Sessions/PT-Considerations-Across-the-Lifespan Yes No
Session138 Rap Session for Geezers Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 4:30pm 2015 - 5:30pm Consumer/New Family Adult Men /Events-Meetings/Annual-Meeting/Sessions/Rap-Session-for-Geezers Yes No
Session42 Rap Session: African-Americans Friday, August 14, 2015 Friday, August 14, 2015 2015 - 9:30am 2015 - 10:45am Consumer/New Family /Events-Meetings/Annual-Meeting/Sessions/Rap-Session-African-Americans Yes No
Session43 Rap Session: en espanol Friday, August 14, 2015 Friday, August 14, 2015 2015 - 9:30am 2015 - 10:45am Consumer/New Family Español /Events-Meetings/Annual-Meeting/Sessions/Rap-Session-en-espanol Yes No
Session125 Rap Session: VWD Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 12:30pm 2015 - 1:20pm Consumer/New Family Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Rap-Session-VWD Yes No
Session136 Rap Session: WWBD Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 3:15pm 2015 - 4:45pm Consumer/New Family Women with Bleeding Disorders /Events-Meetings/Annual-Meeting/Sessions/Rap-Session-WWBD Yes No
Session57 Rare Bleeding Disorders: XIII, X Friday, August 14, 2015 Friday, August 14, 2015 2015 - 11:30am 2015 - 1:15pm Nurses /Events-Meetings/Annual-Meeting/Sessions/Rare-Bleeding-Disorders-XIII-X Yes No
Session62 Remembrance and Celebration of Life Friday, August 14, 2015 Friday, August 14, 2015 2015 - 1:00pm 2015 - 2:00pm Chapter Staff, Consumer/New Family, Nurses, Physical Therapists, Social Workers Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Remembrance-and-Celebration-of-Life Yes No
Session60 Research Fellows Luncheon Friday, August 14, 2015 Friday, August 14, 2015 2015 - 12:30pm 2015 - 1:30pm Physicians/Researchers /Events-Meetings/Annual-Meeting/Sessions/Research-Fellows-Luncheon Yes No
Session95 Research Posters Reception Friday, August 14, 2015 Friday, August 14, 2015 2015 - 5:30pm 2015 - 6:30pm Chapter Staff, Consumer/New Family, Nurses, Pharmacists, Physical Therapists, Physicians/Researchers, Social Workers, Teens, Victory for Women /Events-Meetings/Annual-Meeting/Sessions/Research-Posters-Reception Yes No
Session82 Significant Others/Caregivers Rap Session Friday, August 14, 2015 Friday, August 14, 2015 2015 - 3:45pm 2015 - 4:45pm Consumer/New Family Partners and Spouses /Events-Meetings/Annual-Meeting/Sessions/Significant-Others/Caregivers-Rap-Session Yes No
Session41 Single Parents: How Do I Juggle It All?

When you are a single parent, it is hard enough to juggle quality time with the kids, school expectations, extracurricular activities, and your job demands…now let's add a bleeding disorder to the mix. Hear the stories shared by these single parents whose children have bleeding disorders and how they manage the juggling act while celebrating the good days, accepting the bad days and maintaining a positive outlook with it all. Learn from an HTC social worker some great tips and techniques to help you find balance in your life and responsibilities.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 9:30am 2015 - 10:30am Consumer/New Family Kathaleen Manns-Schnur, MSW, LSW Kelly Champagne, Dawn Rotellini Partners and Spouses /Events-Meetings/Annual-Meeting/Sessions/Single-Parents-How-Do-I-Juggle-It-All Yes No
Session70 Social Workers Luncheon

Some people have difficulty developing their independence and leaving home. Join us for a lively discussion about the dynamics of "preparing to launch" with a bleeding disorder. We'll explore the psychosocial issues between parents and kids when there's a chronic illness involved. We will also investigate practical and psychosocial resources and programs available to assist with the launch. And finally, we will examine pertinent cultural issues that affect patient independence.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 1:30pm 2015 - 2:45pm Social Workers /Events-Meetings/Annual-Meeting/Sessions/Social-Workers-Luncheon Yes No
Session65 Spanish Taller

1. Dad’s Involved 2. Navegando el Seguro Medico

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 1:00pm 2015 - 2:30pm Consumer/New Family Español /Events-Meetings/Annual-Meeting/Sessions/Spanish-Taller Yes No
Session53 Succession Planning for Board & Staff Friday, August 14, 2015 Friday, August 14, 2015 2015 - 11:00am 2015 - 12:00pm Chapter Staff /Events-Meetings/Annual-Meeting/Sessions/Succession-Planning-for-Board-Staff Yes No
Session119 Suicide Assessment and Intervention Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 11:30am 2015 - 1:15pm Social Workers /Events-Meetings/Annual-Meeting/Sessions/Suicide-Assessment-and-Intervention Yes No
Session78 The Continuum of PT Care Among Healthcare Settings: Steps to Care from Bleed to Fix Friday, August 14, 2015 Friday, August 14, 2015 2015 - 3:00pm 2015 - 5:00pm Physical Therapists /Events-Meetings/Annual-Meeting/Sessions/The-Continuum-of-PT-Care-Among-Healthcare-Settings-Steps-to-Care-from-Bleed-to-Fix Yes No
Session132 The Power is Yours: Personal Responsibility and Being a Good Consumer Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 3:15pm 2015 - 4:15pm Consumer/New Family Families /Events-Meetings/Annual-Meeting/Sessions/The-Power-is-Yours-Personal-Responsibility-and-Being-a-Good-Consumer Yes No
Session14 The Power of One: Clinical Trials Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 1:15pm 2015 - 2:00pm Consumer/New Family Families /Events-Meetings/Annual-Meeting/Sessions/The-Power-of-One-Clinical-Trials Yes No
Session75 The Promise of Revolutionary Science: Insights from My Life, Our Future

For years, the bleeding disorders community has been waiting for a greater understanding of hemophilia, including scientific insights that may advance care. During this interactive session, learn more about how My Life, Our Future is pursuing those innovations. My Life, Our Future (MLOF) is a partnership between the National Hemophilia Foundation (NHF), American Thrombosis and Hemostasis Network (ATHN), Bloodworks Northwest (formerly Puget Sound Blood Center), and Biogen Idec. MLOF offers free genetic testing to patients with hemophilia A and B, and builds a central repository of blood samples and data from those individuals who consent to contribute to research. Session speakers will discuss why every individual “yes” to participate equals progress, and how enrolling 5,000 people may lead to the breakthrough treatments of tomorrow.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 2:45pm 2015 - 3:45pm Consumer/New Family Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/The-Promise-of-Revolutionary-Science-Insights-from-My-Life-Our-Future Yes No
Session21 The Secret Handshake: Finding a Role for "Other"

Not everyone in the bleeding disorders community has a bleeding disorder: there are unaffected siblings, unaffected children, and partners and spouses who do not have a bleeding disorder. Often, these people in this category of "other" c can feel like they don’t bring value to the community. This session will focus on the experience of the “other” in the bleeding disorders community and the challenges they face when seeking to join in chapter events and outreach efforts. We will hear stories from a panel of “others” who will share their experiences as outsiders, and the ways they have been moved to serve, fundraise and become active members of the community. This session will illustrate the power of an inclusive community, and how your experience as “other” can benefit the bleeding disorders community as a whole.

Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 2:15pm 2015 - 3:15pm Consumer/New Family Charlene Cowell Susan Hartmann, Robert Hagen Jr., Jessica Carter Partners and Spouses /Events-Meetings/Annual-Meeting/Sessions/The-Secret-Handshake-Finding-a-Role-for-Other Yes No
Session12 Tips and Tricks for Chapter Newsletters Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 3:15pm 2015 - 4:15pm Chapter Staff /Events-Meetings/Annual-Meeting/Sessions/Tips-and-Tricks-for-Chapter-Newsletters Yes No
Session54 To Infuse or Not to Infuse: What’s the Outcome? Friday, August 14, 2015 Friday, August 14, 2015 2015 - 11:15am 2015 - 12:15pm Consumer/New Family Young Adults /Events-Meetings/Annual-Meeting/Sessions/To-Infuse-or-Not-to-Infuse-Whats-the-Outcome Yes No
Session140 Von Willebrand Disease Precon Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 9:00am 2015 - 12:00pm Consumer/New Family Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Von-Willebrand-Disease-Precon Yes No
Session34 VWD Family Celebration Thursday, August 13, 2015 Thursday, August 13, 2015 2015 - 7:00pm 2015 - 8:30pm Consumer/New Family Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/VWD-Family-Celebration Yes No
Session52 VWD, HTCs and You Friday, August 14, 2015 Friday, August 14, 2015 2015 - 10:45am 2015 - 12:15pm Consumer/New Family Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/VWD-HTCs-and-You Yes No
Session105 Walking the Tightrope: Finding Work/Life Balance

What does it mean to find balance in our lives? It is different process for every individual, but it is even more of a challenge when living with a bleeding disorder. During this session we will focus on how to define goals for work-life balance and identify current obstacles and challenges. Participants will practice mindfulness and relaxation techniques and learn task management techniques to organize daily activities. This session will also provide resource to create a concrete work life balance plan to maintain self care.

Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 9:30am 2015 - 11:00am Consumer/New Family Partners and Spouses /Events-Meetings/Annual-Meeting/Sessions/Walking-the-Tightrope-Finding-Work-Life-Balance Yes No
Session103 We Are Family: African American Voices

Join us for an interactive discussion with and for African American families affected by bleeding disorders. We will discuss the role of culture and the importance of open communication for better healthcare outcomes. We ARE family! Let's be a community--come and join us!

Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 9:30am 2015 - 10:30am Consumer/New Family Cathy Tiggs, MSSA, LISW Sharon Ingram, MA, Val D. Bias, Connie Montgomery, Matthew Gates /Events-Meetings/Annual-Meeting/Sessions/We-Are-Family-African-American-Voices Yes No
Session133 What's in a Label: Mild, Moderate, Severe Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 3:15pm 2015 - 4:15pm Consumer/New Family Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/Whats-in-a-Label-Mild-Moderate-Severe Yes No
Session84 When Culture Influences Caregiving Friday, August 14, 2015 Friday, August 14, 2015 2015 - 4:00pm 2015 - 5:00pm Consumer/New Family /Events-Meetings/Annual-Meeting/Sessions/When-Culture-Influences-Caregiving Yes No
Session58 Women With Bleeding Disorders: Is There a Role for PTs? Friday, August 14, 2015 Friday, August 14, 2015 2015 - 11:30am 2015 - 1:15pm Physical Therapists /Events-Meetings/Annual-Meeting/Sessions/Women-With-Bleeding-Disorders-Is-There-a-Role-for-PTs Yes No
Session87 Work on Purpose: Finding Your Dream Job

When you have a bleeding disorder, you may feel like your career opportunities are limited to those that provide traditional notions of stability and security. Considering your dream career may feel impossible. In this presentation, we will focus on some of the key personal components related to finding a career that matches who you are a whole person and keeps in mind your unique health factors. We will discuss how values, interests, interpersonal needs, skills and work personality fit into choosing a career. This session will provide you resources and strategies to explore potential careers that are a fit for the whole you.

Friday, August 14, 2015 Friday, August 14, 2015 2015 - 4:45pm 2015 - 5:45pm Consumer/New Family Lisa Orbe-Austin, PhD Young Adults /Events-Meetings/Annual-Meeting/Sessions/Work-on-Purpose-Finding-Your-Dream-Job Yes No
Session112 Workplace Programs Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 10:45am 2015 - 11:45am Chapter Staff /Events-Meetings/Annual-Meeting/Sessions/Workplace-Programs Yes No
Session116 World Federation of Hemophilia Update: 2016 Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 11:15am 2015 - 12:15pm Consumer/New Family Adult Men, Partners and Spouses, Español, Families, Women with Bleeding Disorders, Young Adults, Von Willebrand Disease /Events-Meetings/Annual-Meeting/Sessions/World-Federation-of-Hemophilia-Update-2016 Yes No
Session137 Wrapping It Up and Goodbyes Saturday, August 15, 2015 Saturday, August 15, 2015 2015 - 4:15pm 2015 - 4:30pm Chapter Staff /Events-Meetings/Annual-Meeting/Sessions/Wrapping-It-Up-and-Goodbyes Yes No
CSV