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Roundtables: Tips, Tricks and Techniques for Families

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Roundtables: Tips, Tricks and Techniques for Families

Friday, September 19, 2014
Consumer/New Family

ROUNDTABLE #1: It Must Be True! I Saw It on the Internet – When receiving a medical diagnosis of a chronic disease such as a bleeding disorder, we to want to learn everything and anything we can. Today, we tend to turn to the Internet and social media to search for answers on outcomes, treatment, prognosis, symptoms, etc. How do you know the accuracy of the information that’s being shared? Is it someone’s opinion or is it fact? Hear from this interactive roundtable about people’s experiences, both good and bad, and learn from the group about methods for discerning valid medical information. ROUNDTABLE #2: Changing the Game: Expectations with Sports – This dynamic roundtable is for families of children of all ages with bleeding disorders who have chosen to participate in sports and want to be active in gym class at school. We will discuss the physical pros and cons of sports and the psychological pros and cons of belonging to a team, including choosing not to participate. You will be able to share and hear other families’ stories about what has been successful and what has not. ROUNDTABLE #3: Traveling: Everything but the Kitchen Sink – Planning a trip or want to plan a trip but are afraid to because you simply don’t know what to bring and how to manage travel with a child with a bleeding disorder? Don’t be intimidated, you can travel with a bleeding disorder. Join this interactive roundtable to learn the tips and tricks for domestic or international travel with factor and supplies. Learn how to find the nearest treatment facility to your destination. Hear other’s stories and share your own experiences of what has worked for you and your family. ROUNDTABLE #4: Relaxation Techniques During Infusion – If you are stressed out by the thought of infusionand dread infusion day, then this roundtable is for you. This session will focus on relaxation techniques aimed at improving the infusion experience either for yourself or your child.

Speakers: 
Laurel J. Pennick, MSSW, LCSW
Marc Gilgannon
Chris Guelcher, APRN, MS, PPCNP-BC
Jennifer Maahs, MSN, PNP
Moderators: