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World Federation of Hemophilia Update


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World Federation of Hemophilia Update

September 19, 2014
4:45 PM to 5:45 PM
Consumer/New Family
Chapter Staff

Created in 1996, the Humanitarian Aid Program of the World Federation of Hemophilia (WFH) channels donations of life-saving treatment products to people with bleeding disorders who need them all around the world. This program is one of the many ways in which the WFH supports its vision of Treatment for All.
The WFH started a Humanitarian Aid Program 18 years ago with much hope and a donation of 2.8 million IUs. You will hear from WFH President Alain Weill, Board VP of Medical Marijke van den Berg and Deputy Director of Programs Assad Haffar on how the WFH Humanitarian Aid Program has evolved and what that means for national member organizations.
A key component of humanitarian aid is global distribution of treatment products. Leigh Carpenter, Chief Pharmacist at Hemophilia of Georgia, which works in collaboration with WFH USA to secure and distribute donations, will shed some light on this critical step.
Finally, our guest speaker Megan Adediran, head of the WFH’s national member organization in Nigeria, will discuss the role NHF played in helping her country achieve its goals for hemophilia awareness and access to care.

Dr. H. Van den Berg om, PhD
Leigh Carpenter, RPh
Assad Haffar
Alain Weil
Megan Adediran