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World Federation of Hemophilia Update


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World Federation of Hemophilia Update

September 19, 2014
4:45 PM to 5:45 PM
Consumer/New Family
Chapter Staff

Created in 1996, the Humanitarian Aid Program of the World Federation of Hemophilia (WFH) channels donations of life-saving treatment products to people with bleeding disorders who need them all around the world. This program is one of the many ways in which the WFH supports its vision of Treatment for All.

The WFH started a Humanitarian Aid Program 18 years ago with much hope and a donation of 2.8 million IUs. Today, we have as much hope, and an unprecedented potential for providing treatment, thanks to multi-years commitments from our corporate partners that translate into sustainable and predictable aid for our members and their local governments. You’ll be hearing from WFH President Alain Weill, Board VP of Medical Marijke van den Berg and Deputy Director of Programs Assad Haffar on how the WFH Humanitarian Aid Program has evolved and what that means for national member organizations.

A key component of humanitarian aid is global distribution of treatment products. This is an immense task and involves the WFH’s extensive international network. Most donations are secured and distributed in collaboration with WFH USA and Hemophilia of Georgia, in the United States. Leigh Carpenter, Chief Pharmacist of Hemophilia of Georgia will shed some light on this critical role.
Finally, our guest speaker Megan Adediran, head of the WFH’s national member organization in Nigeria, will discuss the role NHF played in helping Nigeria achieve its goals with respect to hemophilia awareness and access to care.