NHF eNotes is NHF's online news bulletin designed to provide the latest news to the bleeding and clotting disorders community.
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eNotes—June 2009
Lead Story
Concerns Still Elevated as H1N1 Influenza A (Swine Flu) Cases Spread Nationwide
Medical News
Research Update: FVIIa Successfully Treats Canine Hemophilia
International Panel To Publish Findings on Menorrhagia
Italian Study Assesses Total Knee Replacement in Hemophilia
Medicare Not Ready to Pay for Genetic Tests for Warfarin Dosing
Obama Appoints NYC Health Commissioner as CDC Director
Advocacy and Legislative Updates
Senate Healthcare Proposals Include Lifting Lifetime Caps
Blood Safety News
FDA Investigation Reveals Heparin Cases Were Isolated
NHF and Community News
Register Now to Receive Annual Meeting Discount
10 Days Left Until Poster Abstracts Deadline
Educational Participant Grants for First-Time Meeting Attendees
Scholarships for Savvy Students
Team Hemophilia Shapes up Campers
NHF Welcomes NYC Chapter
2009 Hemophilia Walks in Motion
WFH Award Goes to Orthopedic Surgeon in Colorado
Donate Now to Campaign for Our Future
eNotes—May 2009
Lead Story
Concerns Raised as H1N1 Influenza A (Swine Flu) Cases are Reported in 41 States
Medical News
Research Update: Gene “Hijacked” to Produce Factor VIII
Research Update: Inhibitor Development in Blacks with Hemophilia A Linked to Genotypes
Research Update: Hemophilia Patients with HCV/HIV Benefit from HAART
Dutch Boys with Hemophilia Demonstrate Physical Fitness
Canadian Researcher Reviews CVADs Side Effects in Immune Tolerance Therapy
Advocacy and Legislative Updates
Fight to Raise Lifetime Caps Advances
NHF and Community News
61st Annual Meeting Registration Now Open—Register Early, Save Money
NHF Announces Call for Annual Meeting Poster Abstracts
Educational Participant Grants for First-Time Meeting Attendees
2009 Hemophilia Walks in Motion
Last Chance for Women To Apply for 2009 PRF Scholarship
Enter the “Fight HIV Your Way” Contest
Mark Your Calendars for Spring Summit 2009
Gifted Art Student Dies at 27
Donate Now to Campaign for Our Future
eNotes—April 2009
Lead Story
Genavia to Access Origen’s Transgenic Animals to Manufacture Factor VIII
Medical News
Study Shows Prophylactic Use of APCC Effective in Inhibitor Patients
Immune Tolerance Study Shows Promise for Hemophilia A
Multi-site Study Compares Menorrhagia Drugs’ Efficacy
Advocacy and Legislative Updates
PriceWaterhouseCoopers Study Demonstrates Need to Raise Lifetime Caps
Blood Safety News
FDA Committee Discusses Additional Blood Safety Measures for Donors
NHF and Community News
NHF Announces Michael O’Connor as New Board Chair
San Francisco Here We Come
Educational Participant Grants for First-Time Meeting Attendees
Limited Funding for First Step Programs
2009 Hemophilia Walks in Motion
Women Encouraged To Apply for 2009 PRF Scholarship
Mark Your Calendars for Spring Summit 2009
Donate Now to Campaign for Our Future
eNotes—March 2009
Lead Story
Obama Administration Demonstrates Commitment to Healthcare
Medical News
Hemophilia B Gene Therapy Vector Shows Promise
Blood Safety News
Report Calls for Compensation for UK Blood Scandal Victims
NHF and Community News
San Francisco Here We Come
Record Turnout for Washington Days
NHF Announces 2009 Hemophilia Walk Sites
Women Encouraged To Apply for 2009 PRF Scholarship
Mark Your Calendars for Spring Summit 2009
Donate Now to Campaign for Our Future
Industry News
Lentigen and Expression to Collaborate on Hemophilia A Therapies
Inspiration Begins Clinical Trial for Recombinant Factor IX Drug
eNotes—February 2009
Lead Story
Bayer Sponsors Team Hemophilia Camp Initiative
Medical News
FDA Licenses First Concentrate for Factor I Deficiency
Study Indicates Stem Cells Can Fight AIDS
NHF and Community News
Record Turnout Expected for Washington Days 2009
Last Chance to Apply for Bayer's Summer Leadership Internship
Time to Register for Hemophilia B Symposium
Women Encouraged to Apply for 2009 PRF Scholarship
NHF Announces Spring Summit 2009
Campaign for Our Future Kicks off at Annual Meeting
NHF Announces 2009 Hemophilia Walk Sites
NACCHO 2009: Camps Are Us
Industry News
FDA Approves ATryn, First Drug from Genetically Engineered Animals
Pfizer To Acquire Wyeth
Blood Safety News
Lawsuits by Taiwanese Hemophilia Patients to Proceed in US Court
UK Government Continues Withholding Blood Contamination Evidence
Advocacy and Legislative Updates
Obama Signs SCHIP Bill; Medicaid Expansion Pending Recovery Bill
eNotes—January 2009
Lead Story
WFH Publishes Haemophilia Issue on Rare Bleeding and Clotting Disorders
Medical News
New Test Developed by SLU Researchers May Predict HCV Therapy Success
University of Rochester Team Makes Progress on Advanced FVIII
NHF and Community News
Two Weeks Left to Register for Washington Days
One Week Left to Order Your Annual Meeting CDs
Apply Now for Bayer’s Summer Leadership Internship
Time to Register for Hemophilia B Symposium
Richard Oliver Johnson, Sr., Dies at 57
Long-time Louisiana Chapter Member Dies at 71
Campaign for Our Future Kicks off at Annual Meeting
NHF Announces 2009 Hemophilia Walk Sites
Industry News
Baxter Announces Recombinant VWD Trial
Avigen Sells Coagulation Drug Rights to Baxter
Blood Safety News
Variant vCJD Case Prompts Fears of New Cases
FDA Approves First Nucleic Acid Test for HIV in Donated Plasma and Tissue
eNotes—December 2008
Lead Story
Wisconsin Researchers Use Bone Marrow to Treat Mice with Hemophilia A
Medical News
Duke Study To Investigate HIV Resistance Factors in Hemophilia
NHF and Community News
Register Soon for Washington Days 2009
Annual Meeting CDs on Sale Now
Campaign for Our Future Kicks off at Annual Meeting
NHF Announces 2009 Hemophilia Walk Sites
New Mild Hemophilia Brochure Available
Industry News
Bayer Schering to Fund HTC Network in China
FDA Grants Orphan Drug Status to Recombinant FIX Product
eNotes—November 2008
Lead Story
NHF CEO Featured in Black Enterprise Magazine
Medical News
Norwegian Researchers Identify Risk Factors for Obstetric Bleeding
Duke Study Shows IUD Can Reduce the Length of Heavy Periods
IHP Launches New Hemophilia Certificare Program for Nurses
Manno Appointed Chair of NYU Pediatrics Department
NHF and Community News
Register Onsite for NHF’s 60th Annual Meeting in Denver
Hemophilia Walks Exceed Expectations
Washington Days and Leadership Weekend Combine Forces in 2009
New Interactive Pain Management Web Site Promotes Communication
Industry News
FDA Approves Prophylactic Use of Kogenate® FS
ADVATE® Performs Well in New Study on Children
Companies Sign Agreement on Factor VIIa Drug Candidate
Blood Safety News
Blood and Product Safety: Everyone’s Responsibility
Advocacy and Legislative Updates
New Law Ensures Insurance Coverage to College Students During Medical Leave
eNotes—October 2008
Lead Story
FDA Reports Low Risk for Heparin Contamination in Factor Products
Medical News
ASH Launches Web Site to Educate Consumers on Blood
Company Issues Warnings After Patients Develop Leukemia
Study Suggests Single Dose Regimen Helps Treat Joint Bleeds in Inhibitor Patients
NHF and Community News
Register for NHF’s 60th Annual Meeting by 10/31 and Save $50
Hemophilia Walks Exceed Expectations
Washington Days and Leadership Weekend Combine Forces in 2009
Nevada Governor Proclaims November 1st Renée Paper Day
Industry News
Grifols Launches New Drug Tracing System
PPTA Web Site Provides Plasma Therapy Information
Blood Safety News
Scottish Researchers Demonstrate TSE-Infection via Blood Donations
eNotes—September 2008
Lead Story
New Study Will Monitor Postpartum Bleeding in VWD Patients
Medical News
ITP Drug Receives FDA Approval
Canadian Researchers Find Some Women at Lower Risk for Recurrent Thrombosis
NHF and Community News
Still Time to Register for NHF’s 60th Annual Meeting in the Mile-High City
NHF Announces PRF Scholarship Winners
The Sky’s the Limit for Scholarship Winner
NHF Introduces New Fundraising Campaign
Hemophilia Walks Coming Your Way
Industry News
CSL Ltd. Acquires Talecris
New Clotting Drug Granted Priority Review by FDA
Blood Safety News
Scottish Man Accuses Physician of Withholding HIV Diagnosis
Advocacy and Legislative Updates
New GINA Guide Available Online
eNotes—August 2008
Lead Story
President Signs Repeal of Ban on Travel to U.S. for People with HIV/AIDS
Medical News
Dutch Study Measures Aerobic Capacity in Boys with Hemophilia
Puget Sound Blood Center Founder/Director/Researcher to Retire
NHF and Community News
60th Annual Meeting Registration—Register Now for Discount
NYLI Deadline Extended
NYLI Rounds up Teens for Texas Retreat
Walk into the New Year—Host a Hemophilia Walk at Your Chapter
American Pain Foundation: Calling All Artists
NHF Introduces New Fundraising Campaign
Team Hemophilia on Tour Racing Ahead
Hemophilia Walks Coming Your Way
NHF Announces 2008-2009 Fellowship and Research Award Recipients
Industry News
NHF Chapters Receive CSL Advocacy Grants
Bayer Acquires Maxygen’s Recombinant Factor VII Drug Candidate
AMT and St. Jude Partner to Develop Hemophilia B Gene Therapy
Ipsen Acquires OBI-1 Drug
Advocacy and Legislative Updates
Lifetime Insurance Caps Bill Introduced In U.S. House of Representatives
eNotes—July 2008
Lead Story
NHF’s MASAC Issues First Standards for Clotting Factor Providers
Medical News
Groundbreaking Researcher Dies at 91
NHF and Community News
60th Annual Meeting Registration—Register Now for Discount
NHF Offers Travel Grants to First-time Annual Meeting Attendees
NHF’s First Step Offers Refresher Course
NYLI Recruits New Leaders
NYLI Rounds up Teens for Texas Retreat
NHF Introduces New Fundraising Campaign
Student Scholarship Information at the Click of a Mouse
Team Hemophilia on Tour Racing Ahead
Hemophilia Walks Coming Your Way
New MASAC Recommendations Issued
Industry News
CSL Behring Awards Researchers
Bayer Honors 2008 Awardees at WFH Congress
First Clinical Trial Completed for Longer-Acting Factor VIIa Drug
Baxter Reports Advances in Preclinical Research
eNotes—June 2008
Lead Story
President Bush Signs Genetic Information Nondiscrimination Act into Law
Medical News
CDC Appoints New Division of Blood Disorders Director
Scientists Report Advances in Novel Gene Therapy Vector
Modified FVIII Protein May Block Inhibitors
Pakistani Physicians Discuss Complications in Women with Bleeding Disorders
NHF and Community News
Registration Still Open for New York State Advocacy Training Day
60th Annual Meeting Registration—Register Early, Save Money
Student Scholarship Information at the Click of a Mouse
Team Hemophilia on Tour Hits the Track at Indy
NYC Hemophilia Walk Exceeds Expectations
NHF’s First Step Offers Refresher Course
NYLI Rounds up Next Group of Leaders
NHF’s It’s Time for Cure Campaign Concludes
PBS Airs Episode on VWD
Industry News
Catalyst Biosciences Developing Factor VIIa Drug for Hemophilia Patients
FDA Approves New Recombinant FVIIa Formulation
New Recombinant Factor IX Drug Reaches Clinical Trial Stage
Advocacy and Legislative Updates
CMS Clarifies Position on SCHIP Eligibility
eNotes—May 2008
Lead Story
Genetic Information Nondiscrimination Act Passes in House and Senate
NHF and Community News
60th Annual Meeting Registration—Register Early, Save Money
Student Scholarship Information at the Click of a Mouse
Team Hemophilia on Tour Hits the Street Running at Indy
Hemophilia Walk Kicks off in NYC in June
Preview of WFH’s 2008 Congress in Istanbul
NHF’s First Step Offers Refresher Course
World Hemophilia Day Focuses on Awareness and Outreach
NYLI Rounds up Next Group of Leaders
Michigan Chapter Honors State Legislators
Industry News
Bayer Launches Electronic Data Device
eNotes—April 2008
Lead Story
Heparin Contaminant Identified
Medical News
Researchers Discover Safer Anti-clotting Therapy
NHF and Community News
NHF's Washington Days Breaks Records and Expands Its Reach
60th Annual Meeting Registration-Register Early, Save Money
Call for Poster Abstracts for NHF's 60th Annual Meeting
Student Scholarship Information at the Click of a Mouse
Preview of WFH's 2008 Congress in Istanbul
NYLI Rounds up Next Group of Leaders
Hemophilia Walk Kicks off in NYC in June
NHF Announces New Board Members
WFH Appoints New CEO
Industry News
Promising New Recombinant Factor IX Drug Receives FDA Approval for Clinical Studies
Wyeth Announces FDA Approval of Recombinant Factor VIII Drug
Drug Candidate for TTP Entering Phase 2 Trial
Advocacy and Legislative Updates
NHF Voices Concern on Proposed Medicaid Changes
eNotes—March 2008
Lead Story
NHLBI Issues First US VWD Guidelines
Medical News
Transplanted Liver Cells Correct Hemophilia A in Mice
Patient Side Effects Cause Baxter To Suspend Heparin Production
CLSI Publishes New Guidelines for Coagulation Testing
NHF and Community News
60th Annual Meeting Registration—Register Early, Save Money
Hemophilia B Spring Symposium This Weekend
Apply Now for PRF Scholarship
Preview of WFH’s 2008 Congress in Istanbul
Hemophilia Walk Kicks off in NYC in June
NACCHO Announces Award Winners
eNotes—February 2008
Lead Story
FDA Approves New HIV Drug for Hard-to-Treat Patients
Medical News
Researchers Discover Minor Leg Injuries Can Increase Thrombosis Risk
FDA Approves Revised Label for Contraceptive Patch
NHF and Community News
Register Now for Washington Days 2008—You Can Make a Difference
NHF Announces 2008-2009 First Step Grants
Mark Your Calendars for Hemophilia B Spring Symposium
PRF Scholarship Announces Women’s 2008 Scholarships
Hemophilia Walk Kicks Off in NYC in June
Industry News
Baxter Developing New Hemophilia B Therapies
Blood Safety News
Unusual vCJD Case Diagnosed in UK
Japanese Victims of HCV Blood Scandal To Receive Compensation
Canadian Government Drops Remaining Charges Against Perrault
Advocacy and Legislative Updates
President Slashes Healthcare in 2009 Budget
eNotes—January 2008
Lead Story
Register Now for Washington Days 2008—You Can Make a Difference
Medical News
Scientists Use Stem Cells To Correct Sickle Cell Anemia in Mice
HTC Publishes Study on Epidural Anesthesia in Pregnant Women with VWD
British Patient Undergoing Gene Therapy Develops Leukemia
Danish Research Shows Sustained Clot Formation in Hemophilia A Patients Treated with Dual Therapy
NHF and Community News
Last Chance to Submit Project Red Flag Grant Applications
Bayer HealthCare Offers Summer Internship for College Students
Mark Your Calendars for Hemophilia B Spring Symposium
Industry News
ATryn® Receives Orphan Drug Designation
CSL Behring Reports on Potential for Longer-Lasting Factor VIIa Therapy
Nektar Announces Agreement with Baxter to Develop New Hemophilia A Therapy
Advocacy and Legislative Updates
No Compromise Reached on Expanding SCHIP--President Signs Stopgap Measure Extending Current Program for One Year
eNotes—December 2007
Lead Story
The Need for Continued Vigilance—Organizations Publish Open Letter on Blood Safety Issues
Medical News
California HTC Performs Retrospective Review of Elbow Procedures
Ohio HTC Receives CDC Grant for Amish Health Awareness
NHF and Community News
Last Chance to Purchase Audio CDs for Annual Meeting Sessions
Registration Forms Due Next Week for NYLI’s First-Ever Teen Retreat
Project Red Flag Grant Applications Now Being Accepted
Bayer HealthCare Offers Summer Internship for College Students
New NHF Publication on Nosebleeds Now Available
New MASAC Recommendation on Prophylaxis Available on NHF Web Site
Industry News
Hemophilia B Drug Submitted for IND Status Approval
Blood Safety News
FDA Alerts DDAVP Manufacturers of Prescribing Information Change
eNotes—November 2007
Lead Story
Hemophilia Treatment Center Releases Study Data on Menorrhagia in Adolescent Patients
Medical News
Hematologist/Researcher Elected to Institute of Medicine
NHF and Community News
CDs on Sale for Annual Meeting Sessions
NHF’s NYLI Plans First-Ever Retreat for Teens
Women’s Bleeding Disorders Advocate Dies at 49
Industry News
Pharming Group Receives FDA Orphan Drug Status for Fibrinogen
Apria to Acquire Coram, Inc., for $350 Million
Humate-P® No Longer Requires Refrigeration
Advocacy and Legislative Updates
Children’s Health Insurance Expansion Still on Hold
eNotes—October 2007
Lead Story
Bush Vetoes SCHIP Reauthorization--Act Now to Ask Congress to Override
Medical News
New Genetic Test for Warfarin Dosing Receives FDA Approval
Plasma Shortfall in China Spurs Government and Community Response
Blood Safety News
FDA-Approved Test Could Improve Safety Record of Platelet Transfusions
FDA Approves Second West Nile Screening Test
Scottish Researcher Warns That vCJD Remains a Threat
NHF and Community News
Register for Annual Meeting by 10/19, Avoid Processing Fee
NHF's NYLI Plans First-Ever Retreat for Teens
WFH Appoints Interim CEO/Executive Director
NHF's HANDI Resource Center Offers New Provider Publications
eNotes—September 2007
Lead Story
Joint Outcome Study Results Published in the New England Journal of Medicine
Medical News
Maraviroc Receives FDA Approval
FDA Approves Revised Labeling for Coumadin®
Study Published on Hemophilia B Gene Therapy by Intramuscular Injection
NHF and Community News
Still Time to Register for Annual Meeting
American Pain Foundation Calls for Submissions for Pain and Creativity Exhibit
Seattle Social Worker Retires after Decades of Service
Internationally Recognized Hematologist and Researcher Dies at 73
New Provider Resources from NHF’s HANDI Resource Center
Blood Safety News
Irish Government Briefing Provides Update on Compensation Payments
Advocacy and Legislative Updates
Status of State Children’s Health Insurance Program Expansion
eNotes—August 2007
Lead Story
NHF Announces New Interim CEO
Medical News
Study Identifies Predictors for HCV Treatment Success or Failure
Experts Debate Gene Therapy Vectors
Gene Therapy Clinical Trial Patient Dies
New Oral HIV Drug Close to Approval in Europe
NHF and Community News
Last Chance to Receive 5% Discount on Annual Meeting Registration!
Deadline Extended for Annual Meeting Poster Abstracts
Last Call for National Youth Leadership Institute 2007 Applications
Scholarship Founder Dies at 78
Scholarship Winner Plans Career in Broadcasting
NHF Announces Fellowship Winners
Industry News
EpiVax Receives Grant to Study Modified FVIII Proteins
Wyeth Takes Over Distribution of BeneFIX® in Europe
Baxter Study Shows Benefits of Prophylactic Use of Advate®
New Hemophilia B Drug Candidate Presented at ISTH Congress
Bayer Reports Potential Longer-Acting Recombinant Factor VIII with PEG
Advocacy and Legislative Updates
Increased Funding for CDC Hemophilia Program in House Bill
Illinois Governor Signs Hemophilia Advisory Review Board Bill
eNotes — July 2007
Lead Story
Texas Governor Signs Bleeding Disorders Advisory Council Act
Medical News
UK Researchers Study Postpartum Bleeding in Women with Factor XI Deficiency
European Hematology Association Recognizes Thrombophilia Expert
Study Reveals Pregnancy Complications in Women with von Willebrand Disease
NHF and Community News
Register Now to Receive 5% Discount on Annual Meeting Registration!
NHF’s Hemophilia Walk and Yacht Cruise Raise Funds and Awareness
Last Call for Poster Abstracts for NHF’s Annual Meeting
Apply Now for National Youth Leadership Institute
Industry News
Bayer Announces WFH’s 2007 International Nursing Fellowship Award Recipients
New Test Designed to Address Variable Warfarin Dosing
CSL Behring Foundation Provides Grants for Bleeding Disorders Research
Novo Nordisk Starts Clinical Trials of Longer-Acting Factor VIIa Product
Two Pharmaceutical Companies To Market New Recombinant Thrombin Product
Wyeth Announces New Self-Infusion Training Kit
Blood Safety News
UK Government Knew Blood Was Contaminated, Inquiry Shows
eNotes - May 2007
Lead Story
HCV Vaccine Shows Promise in Chimpanzees
Medical News
National Academy of Sciences Elects Bleeding Disorders Researcher
VCU Researchers Evaluate Liver Biopsy in Hemophilia
NHF and Community News
Register Now to Receive 10% Discount on Annual Meeting Registration
Team Hemophilia Races for NHF at the Indy 500 and Beyond
NHF to Host First National Preparedness Initiative Coalition Meeting
Call for Poster Abstracts for NHF’s Annual Meeting
Apply Now for National Youth Leadership Institute 2007
NHF’s Social Worker Symposium Was a Success
First Step Train-the-Trainer Workshop Hosted Teams from Across the Country
On the Road with NHF in New Orleans
Industry News
Humate-P® Receives FDA Approval for Additional Use
HepaLife Announces Progress in Developing Artificial Liver Device
Talecris Provides Grant for WFH Program in Developing Countries
Grifols Boosts Plasma Collection Capacity
Advocacy and Legislative Updates
Bleeding Disorders Advisory Council Bill Passes in Texas
eNotes - April 2007
Lead Story
Only 2 Days Left to Receive Your 15% Discount on Annual Meeting Registration!
Medical News
Pioneering Hematologist and Researcher Honored by UCI
UCSF Scientists Examine Procedure to Relieve Cirrhosis Complications
New Drug Candidate Could Circumvent Disease-Causing Genetic Mutation
NHF and Community News
Team Hemophilia Races for NHF at the Indy 500
NHF to Host Hemophilia Walk in NYC
New Online Discussion Group for People in Pain
Apply Now for National Youth Leadership Institute
NACCHO Offers New Youth/Teen Program
Camp Superfly III Attracts Record Number of Teams
Blood Safety Researcher Dies at 60
Visit Our Virtual Exhibit Hall
Industry News
FDA Approves New Biologic for Clotting Disorder
Blood Safety News
Iraqi Red Crescent Society Sues Drug Companies
Public Inquiry to Examine UK Blood Scandal
Japanese Courts Order Drug Companies to Pay Hepatitis C Compensation
UK Survey Shows Respondents Favor vCJD Blood Test
Advocacy and Legislative Updates
Genetic Information Nondiscrimination Act of 2007 Passes in the House
Scientists Lobby for Increased NIH Funding
States Will Move to Name-Based Tracking of HIV Patients This Year
Legislation Protecting Access to Care Advances in Several States
eNotes - March 2007
Lead Story
There’s Still Time to Make Your Voice Heard
Medical News
A New Class of HIV Therapies Facing Approval
Scientists Identify Protein Involved in HCV Infection
Mice Teach Humans about von Willebrand Disease
NHF and Community News
NHF Board of Directors Announces New Chair and Officers
Register Online Now to Save Money on Annual Meeting Registration
Team Hemophilia Races for NHF
Women’s Bleeding Disorders Advocate Dies at 40
Register Now for June Leadership Weekend in the Windy City
NACCHO Announces New Youth/Teen Program
National Youth Leadership Institute Calls for Applications
NACCHO Camp Award Recipients Announced
Visit Our Virtual Exhibit Hall
Industry News
Grifols To Expand Manufacturing Capacity
California Company and Stanford Researchers To Develop FIX Therapy
Wyeth Announces FDA Approval for BeneFIX® Product Enhancements
Blood Safety News
USDA Closes Only Mad Cow Disease Testing Laboratory in Northwest
vCJD Risk Information Available on New FDA Web Page
Enhanced Screening System for West Nile Virus Receives FDA Approval
Advocacy and Legislative Updates
Important Legislation Passes in Iowa House and Senate
State Awareness Day at Texas Capitol Gets Results
Kaiser Family Foundation Publishes Medicare and Medicaid Primers
eNotes - February 2007
Lead Story
Advocacy Group Petitions for Removal of Some Oral Contraceptives
Medical News
Study Uses DNA Testing to Monitor Warfarin Therapy
St. Jude Opens New Clinic for Children with Cancer and Blood Disorders
Research Update: “A Bare Bones Approach to Gene Therapy”
NHF and Community News
NHF Announces Hemophilia Awareness Month Fundraisers
Register Soon to Receive Discount for NHF’s 2007 Annual Meeting in Orlando
Bayer Awards $100,000 Grant to NHF's NYLI
NHF Receives $300,000 Grant from Novo Nordisk
NHF Web Site Provides College Scholarship Information
NHF Nominee Appointed as Consumer Liaison Representative
Coalition for Hemophilia B Hosts Spring Symposium in NYC
Visit Our Virtual Exhibit Hall
Industry News
CSL Behring Will Continue to Sell Helixate® FS
Alphanate® Receives FDA Approval for Some VWD Patients
Wyeth Enters Into Collaborative Research Agreements
Jerini and Baxter AG Formalize Research Collaboration
Blood Safety News
Robot Streamlines Hemophilia Lab in Canada
Researchers Suspect Possible Viral Cause of BSE
Advocacy and Legislative Updates
NHF’s Washington Days 2007 Provides Forum for You To Meet New Congressional Leadership
eNotes - January 2007
Lead Story
U.S. Weighs Blood Safety and Supply Concerns
Medical News
Emory University Scientists Study CDC Inhibitor Data
UC Scientists Study Local Population for Brain Bleeding in Warfarin Patients
A New Diagnostic Test for Hemophilia A
NHF and Community News
NHF Offers Camp and First Step Grants for Chapters and Associations
NHF Announces Hemophilia Awareness Month Fundraisers
Coalition for Hemophilia B Hosts Spring Symposium in NYC
Bayer HealthCare Offers Summer Internship
Project Red Flag Provides College Scholarships for Women
Former Ohio Chapter ED Dies at 59
Visit Our Virtual Exhibit Hall
Industry News
Lipoxen and Baxter Agree to Develop Improved Recombinant Factor VIII Products
Biogen Idec to Purchase Syntonix and Its Experimental Hemophilia B Drug
CSL Behring Announces Update on Global Name Change
Blood Safety News
Genetically Engineered Cattle Are Potentially Resistant to Mad Cow Disease
New UK Case of vCJD Infection through Transfusion
Advocacy and Legislative Updates
NHF’s Washington Days 2007 Provides Forum for You To Meet New Congressional Leadership
NHF Helps Dissuade Alabama Medicaid from Changing Its Factor Reimbursement Policy
Genetic Information Nondiscrimination Act Reintroduced
President Bush Orders Easing of Travel Restrictions on HIV-Positive Travelers
eNotes - December 2006
Lead Story
FDA Confirms Low Risk for Creutzfeldt-Jakob Disease
NHF and Community News
Only Five Days Left to Order Your Annual Meeting Session CDs
NHF’s Train-the-Trainer Program Coming to New Orleans
NHF To Offer Several Grants for Chapters and Associations
Visit Our Virtual Exhibit Hall
Industry News
Baxter Demonstrates Prolonged Half-Life for Hemophilia A Therapy in Mice
Novo Nordisk Study Suggests Secondary Prophylaxis Reduces Number of Bleeds
Blood Safety News
AIDS Activist Detained by Chinese Government for Second Time
FDA Approves First Chagas Disease Blood Test
Advocacy and Legislative Updates
Bleeding Disorders Community Members To Meet New Congressional Leadership at NHF’s Washington Days 2007
New Zealanders Infected by Hepatitis C to Receive Compensation
Congress Votes in Favor of Compromise Bill for AIDS Funding
eNotes - November 2006
Lead Story
College in Wisconsin Receives Federal Grant for VWD Research
Medical News
Professional Medical Organizations Collaborate on Menstruation Report
Tissue Factor May Help Predict Clots
FDA Grants Approval to Market Thrombophilia Test
Hemophilia Nurse Honored for Pediatric Care and Educational Efforts
Research Update: When Things Don’t Add up: The Immunology of HIV/HCV Coinfection
Research Update: Study Focuses on Surface Wounds in Hemophilia B
Research Update: CDC to Release Progress Report on Hemostasis and Thrombosis Centers
Industry News
Grifols Announces Factor Coverage Program
CVS Merges with Caremark, Creating Pharmacy Services Company
Bayer to Expand Berkeley Manufacturing Plant
NHF and Community News
NHF Announces New MASAC Chair
New MASAC Recommendations Available on NHF Web Site
Annual Meeting Session CDs Now Available
NHF’s Train-the-Trainer Program Coming to New Orleans
Former WFH Director Dies at 63
Key Founder of Southern California Chapter Dies at 83
NHF Launches State-of-the-Art Virtual Exhibit Hall
Advocacy and Legislative Updates
Kaiser Study Compares Medicare Part D Plans, Highlights Changes
Bleeding Disorders Community Members To Meet New Congressional Leadership at NHF’s Washington Days 2007
eNotes - October 2006
Lead Story
Gene Therapy Research Focuses on Nonviral Delivery
Medical News
Two Pharmaceutical Companies to Develop a Recombinant Factor VIIa Product
Canadians Improve Tool to Measure Quality of Life
NovoSeven® Approved for Use in Acquired Hemophilia Patients
FDA Issues New Guidelines for Manufacturers of Biologics
Research Update: Blood Test Measures Risk for Recurrent Venous Thromboembolism
Research Update: Less is More with Synthetic Inhibitors for Activated Protein C
NHF and Community News
Opening New Doors at NHF’s Annual Meeting
JNC Winners Kept Their Eyes on the Ball and the Prize
Youth Lead by Example at NHF’s Annual Meeting
NHF Announces Clinical Fellowship Recipients
NHF Launches State-of-the-Art Virtual Exhibit Hall
New Ohio Summer Camp To Open in 2008
eNotes - September 2006
Lead Story
Medigap Access Improvement Act of 2006 Introduced
Medical News
Drug Regimen May Lead to Improved Treatment in Hemophilia Patients
Upcoming Study Will Investigate Genetics and Warfarin Dosage
Hepatitis C Study Looks for Genetic Links Among Siblings with Hemophilia
Hemophilia Prevention Data Appear in Leading Public Health Journal
Panel to Discuss Federal Guidelines for HIV Testing
NHF and Community News
New Camp Health Center Guidelines Available
Scholarship Winner Sets His Sights on the Future
There’s Still Time to Register for NHF’s Annual Meeting
NHF’s Name Will Shed Light on the Subject at Annual Meeting
NHF Launches State-of-the-Art Virtual Exhibit Hall
Junior National Championship Still Scoring Points
UNC Health Care Draws Fire in Attempt to Recover Unpaid Bills
Blood Safety News
American Red Cross Fined $4.2 Million by the FDA
eNotes - August 2006
Lead Story
Scientists Develop a Test to Measure the Potential of Blood Clot Recurrence
Medical News
Naked DNA, Scientifically Speaking
Revelations on Carrier Status
Gene Transfer to Treat von Willebrand Disease
NHF and Community News
Register Now to Receive NHF Annual Meeting Discount
NHF’s Name up in Lights During the Annual Meeting
NHF Marks Hurricane Katrina Anniversary
NHF Appoints New Vice President for Marketing and Communications
Junior National Championship Announces Regional Winners
Car Racing and Fundraising for NHF
Scenic Winery Serves as Backdrop to New NHF Fundraiser
Camp Superfly II Winners Announced
NHF Launches State-of-the-Art Virtual Exhibit Hall
Industry News
Grifols Tightens Distribution Channels for Its Products
Advocacy and Legislative Updates
Ireland Drops Lawsuit Against U.S. Pharmaceutical Companies
eNotes - July 2006
Lead Story
Newly Published International Guidelines for VTE
Medical News
FDA and Boehringer Ingelheim Alert Healthcare Professionals to Serious Bleeding
FDA Approves Three-In-One HIV Combination Therapy
Report on Long-Term Factor VIII Expression from Gene Therapy
Operation Platelet: Covert Approach to Clot Formation
Gene Therapy, Golden to the Core
NHF and Community News
Strong Community Advocate and Research Supporter Dies at Age 55
Register Now for NHF's Annual Meeting
NHF Launches New Virtual Exhibit Hall
Junior National Championship Program Takes Off
Industry News
Wyeth Offers Greater Emergency Room Access to Product
Blood Safety News
Canada Confirms Seventh Case of Mad Cow Disease
Talecris Notifies Public of Carton Printing Errors
Advocacy and Legislative Updates
Canadian Government Extends Hepatitis C Compensation
Act Now: Support the Genetic Information Nondiscrimination Act
eNotes for June 2006
Featured Stories
State Medicaid Directors Receive Guidelines on New Premium and Costs Sharing Options
NHF Launches New Virtual Exhibit Hall
Medical News
Study Indicates Healthy Air Travelers Not at Increased Risk for DVT
U.S. HCV Trial Favors Weight-based Dosing of Combination Therapy
MicroRNA a Key Component of Gene Therapy Study
FDA Will Require Wholesalers to Track Drugs
NHF and Community News
New MASAC Recommendations Available on NHF Web site
NHF Gene Therapy and Novel Technologies Workshop Summary Available Online
NHF Launches New Online Clinical Trials Resource Center
Indy 500 Provides Venue for Unique Fundraising and Awareness Campaign
Junior National Championship Program Takes Off
Community Comes Together for Kids Who Care Fundraiser Walk
HFM Marks 50th Anniversary and Commemorates Past Community Members
Register Now for NHF's Annual Meeting
Industry News
International Team Reports on VWD Census and Upcoming Treatment Study
Grifols Donates Product to WFH
Bayer Honors Recipients of International Awards Program
Wyeth Study Finds Two Recombinant Factor VIII Products Equivalent
Avigen Cites Progress in Potential Bleeding Disorder Therapy
ZLB Behring Foundation Awards Grants
Novo Nordisk Plans Additional Education Summits
eNotes - May 2006
Lead Story
Genetic Test May Predict Onset of Serious Complication in Hepatitis C Patients
Medical News
Enrollment Open for Hepatitis C Vaccine Trial
NHF and Community News
HFM Appoints New Board Members
UK Hematologist and Researcher Dies At 61
NHF 2006 Camp Directory Available Online
Travel Grant Scholarships for NHF Annual Meeting
NHF Appoints Vice President for Development
NHF On the Road 2006 Update
MCHB Hemophilia Program Has New Director
Industry News
Bayer Reports Results of Early-Stage Clinical Trials for New Factor VIII Products
Blood Safety News
USDA Releases Specifics on Third Mad Cow Case
Advocacy and Legislative Updates
HHS Announces HIV/AIDS Funding
Enzi Bill Defeated in Senate
eNotes - April 2006
Lead Story
Prominent Hematologist and NHF Volunteer Appointed to CDC Post
Advocacy and Legislative Updates
Act Now to Oppose Harmful Insurance Legislation
Medical News
Specialty Pharmacy Launches Program for Inhibitor Patients
Novelos Seeks IND Status for New Hepatitis Drug
Breakthrough by Stanford Researcher May Lead to New Hepatitis C Treatment
Baxter Marks Progress of World Federation of Hemophilia’s GAP Program
Blood Safety News
Canadian Hemophilia Society Against Narrowing Blood Donations Ban
Report Stresses Swift Response and Improved Data to Control Infectious Diseases
NHF and Community News
Racing for Hemophilia Fundraising in Full Swing
A New Online Tool for Consumers with Insurance Questions
Camp Superfly II is Underway
HFM Announces Two Advocacy Awards
NHF Announces Changes to Board of Directors
NHF Game Night 2006
Prominent Hematologist and NHF Volunteer Appointed to CDC Post
eNotes - March 2006
Lead Story
NHF Washington Days 2006 a Success
Advocacy and Legislative Updates
NHF Washington Days 2006 a Success
District of Columbia and Maryland May Face Cuts to AIDS Funding
Congress Considers Two Controversial Health Insurance Bills
Cover the Uninsured Week Coming in May
Medical News
International Survey Reveals Trends in Hemophilia A Management
HFM Receives Grant from Baxter to Expand AdvoyMobile Usage
Study Targets Non-Genetic Factors of HCV Clearance in Hemophilia Patients
Novo Nordisk Opens Hemostasis Research Facility in New Jersey
Blood Safety News
Baxter Demonstrates Removal of Bird Flu from Its Plasma-Derived Products
USDA Reports a New Case of Mad Cow Disease
NHF and Community News
Register Online for NHF’s 58th Annual Meeting and Save 15% or More
High School Senior Makes Positive Adjustment After Thrombophilia Diagnosis
Fourth Annual NACCHO Features Awards to Three Summer Camp Programs
Legislative Updates
Nonprofit Petitions Congress for a Modernized Ryan White CARE Act
Congress Passes Legislation for State High-Risk Pools
eNotes - February 2006
Lead Story
Largest AIDS Treatment Study Cut Short
Medical News
FDA Objects to Certain Promotional Materials for Kogenate FS®
Mount Sinai Enhances Diagnostic Capabilities
Baxter International Foundation Health Recovery Fund Helps Restore Services
Source MDx Receives NIH Grant for New Diagnostic Test
Blood Safety News
International Team of Scientists Warn Against Emerging Pathogens
NHF and Community News
First Step Training Program Expanded
Bayer and NHF Unveil Racing for Hemophilia National Fundraiser
Legislative Updates
Nonprofit Petitions Congress for a Modernized Ryan White CARE Act
Congress Passes Legislation for State High-Risk Pools
eNotes - January 2006
Lead Story
Canadian Researchers Report Progress in Hepatitis C Vaccine Development
Medical News
Study Investigates Technique for Improving Immune Responses to Chronic Viral Infections
University Scientists Study Molecule’s Role in Blood Coagulation
Schering-Plough Initiates Worldwide Clinical Trial on HCV/HIV Co-infection
Two Companies Reach Agreement to Develop Recombinant Factor IX Product
NHF and Community News
Amish Families Raise Funds to Help Pay Healthcare Costs in Ohio
Young Hemophilia and AIDS Activist Dies at 26
NHF Announces 2006 Project Red Flag Scholarships
NHF On the Road 2006 Will Feature Preparedness, Prevention and Thrombophilia
eNotes - December 2005
Lead Story
Pennsylvania Department of Public Welfare Will Include All Clotting Factor Products on Medicaid Preferred Drug List
Medical News
Study Looks at the Benefits of Prophylaxis versus On-Demand Treatment in Children with Hemophilia
Harvard Researchers Study Thrombosis Risk Factors
Commonly Used Pain Reliever May be Responsible for Increased Poisonings
NIAID Awards Wyeth Contract to Develop HIV Vaccine
Ribasphere® Receives FDA Approval for Use in HCV Patients
Study Estimates 900,000 VTE Events Per Year in U.S., Many Preventable
Maxygen and Roche Agree to Develop Factor VIIa Product
Genzyme Acquires Significant Portion of Avigen’s Gene Therapy Technology
Blood Safety News
Study Results Demonstrate TSE Removal from Blood in Lab Animals
Meeting in UK Raises Concerns about Blood Safety
NHF and Community News
Lead Attorney in Class Action Settlement Dies at 70
PSI Offers Assistance to Those with Chronic Illnesses
Legislative Updates
NHF Washington Days 2006 Will Focus on Preserving Access to Quality Care
eNotes - November 2005
Lead Story
Fight Over Pennsylvania PDL Enters Home Stretch
Medical News
Biotechnology Company Receives Federal Funds to Develop HIV Vaccine
Study Reveals Immune Response Risk to Gene Therapy in Hemophilia B Mice
Australian Researcher Suggests Link between Thrombophilia and Cerebral Palsy
Bayer Receives FDA Approval for Kogenate FS® with BIO-SET®
NIH Recruiting Patients and Family Members for Platelet Disorder Study
Hepatitis C Treatment Study Open to Latino and Caucasian Patients
Armenian Government and Hemophilia Organization Confront Treatment Access
NHF and Community News
New MASAC Recommendation Addresses Treatment
NHF Expands Annual Meeting Program
NHF Awards Two New Clinical Fellowships
New Resources Available through NHF’s HANDI Resource Center
NHF’s National Youth Leadership Institute Scores High Marks
Missouri Teens Victorious in Junior National Championship Finals
Blood Safety News
U.K. Man Who Had Lived in Texas is Diagnosed with vCJD
New Documentary Film Chronicles Arkansas Prison Blood Scandal
Legislative Updates
HANJ Names PACT Grant Recipients in State Advocacy
Medicare Agrees to Higher Reimbursement Rate for Outpatient Clotting Factor
eNotes - October 2005
Lead Story
NHF Unveils Redesigned Web Site, Customizable eNotes
Medical News
FDA Approves Generic AIDS Drug
Specialty Pharmacy Employee Fired after Revelation of Illegal Profit Scheme
Irish Hemophilia Population Receives Guidance from U.S. Law Firm
Device Reminds HIV Patients to Take Medications
New Kogenate Storage Guidelines Promise Added Convenience
Accredo Purchases Specialty Pharmacy Business
Upcoming Educational Summit to Focus on Inhibitors
NHF and Community News
AIDS Walk Raises Funds and Honors Young Educator
U.K. Woman Treats Symptoms of VWD with Over-the-Counter Medication
Legislative Updates
Ricky Ray Program Office Set To Close
eNotes - September 2005
Lead Story
September 30, 2005
NHF and Community Respond to Gulf States Hurricanes
Medical News
September 29, 2005
Baxter Announces Collaborative Research to Improve Recombinant Factor VIII
September 12, 2005
University of Nebraska Receives NIH Grant for New Hemophilia B Treatment
September 3, 2005
Report Suggests a Connection between Blood Type and DVT Risk
August 31, 2005
New Index Helps to Measure Fibrosis Levels in HIV/HCV Patients
August 30, 2005
Hemophilia Patients Losing Crucial Health Coverage in Tennessee
August 29, 2005
Texas Researcher Works Toward Blood Test for Mad Cow and vCJD
August 23, 2005
University of Iowa Reports Gene Therapy Progress in Mice
August 21, 2005
Potential Link Made Between Factor VII and Recurrent Fetal Loss
NHF and Community News
September 1, 2005
Four Boys Reach National Championship Finals
Legislative Updates
September 30, 2005
Durbin Releases Hold on Insurance Bill
September 29, 2005
Proposed Medicare Reimbursement Rate Insufficient for Factor Given to Hospital Outpatients