More than 225 people gathered in Washington, DC, on February 16-18, to advocate for issues that affect people with bleeding disorders during the National Hemophilia Foundation’s annual Washington Days advocacy event. Patients, providers and families came from more than 40 states and 140 congressional districts. After being briefed on the current political situation and receiving training on issues Wednesday evening, participants spent Thursday on Capitol Hill meeting with their senators and representatives. Attendees shared their stories about living with bleeding disorders. They asked Congress to support programs and policies that help members of the community lead healthy, active lives.
The priorities discussed this year included funding for hemophilia treatment centers and maintaining important insurance reforms. NHF honored Congressman Jason Altmire (D-PA) and Adrienne Hallett, a staff member on the Senate Appropriations Committee, for their work promoting and advocating for the bleeding disorders community.