Members of the bleeding and clotting disorders community from across the country will convene in Washington, D.C. from March 1 – 3, 2006 for the National Hemophilia Foundation’s Annual “Washington Days.” The program will consist of discussion, training and meetings with legislators and their staff. The event will address some of the challenges the community is facing with regard to access to high quality care, including discrimination by insurance companies because of “genetic status,” the need for additional funding for proper care and research and other issues.
The program will begin with a reception and grassroots training session on the evening of Wednesday, March 1st. Thursday will include a full day of face-to-face meetings with members of Congress and staff to share personal stories and ask for support. On Friday, attendees will participate in training and discussions designed to explore issues, improve our effectiveness at both the state and federal levels, and move our advocacy efforts forward as a community to the next level.
For more information about Washington Days or to register online, please go to http://www.hemophilia.org/NHFWeb/MainPgs/MainNHF.aspx?menuid=149&contentid=336