The U.S. House of Representatives is currently considering legislation that would prohibit health
insurers and employers from requesting an individual’s genetic information, and from using that
knowledge to form the basis of any insurance, hiring, or promotion decisions. The bill is known
as H.R. 1227, or the Genetic Information Nondiscrimination Act. A similar bill has already
passed in the Senate.
During the National Hemophilia Foundation’s annual Washington Days event in March, more
than 200 members of the bleeding disorders community asked over 150 members of Congress to
cosponsor and otherwise support this important legislation. As a result of our efforts, many
members signed on and the bill now has 220 cosponsors. NHF is actively working to get a few
more cosponsors so that the bill can be brought to the floor for a vote and pass before the end of
the current session.
To find out if your Representative has not yet signed on as a cosponsor, you can check the
attached list of current cosponsors here: LIST OF GINA COSPONSORS >>
For further background information on the legislation, click here>>.
If you have specific questions, or for further information, please contact Glenn Mones, NHF’s
Vice President for Public Policy, at firstname.lastname@example.org, or Andy Wurtzel at MARC
Associates, NHF’s Washington representatives, at email@example.com.