Earlier this month the Iowa Hemophilia Advisory Review Committee legislation passed
unanimously in the Senate, 47-0, and in the House, 96-0. The bill is now on its way to
Governor Chet Culver for his signature. If he signs the bill, Iowa will become the first
state in recent years to create a Hemophilia Advisory Review Committee.
Throughout the last decade, many states have developed policies to limit spending on
high-cost drugs. While these policies were well intentioned, many are now eroding the
existing model of comprehensive care that has allowed people with bleeding and clotting
disorders to live healthy, productive lives. Instead, many in our community are facing
denial of care and restrictions in obtaining life-saving clotting factor products,
The National Hemophilia Foundation has launched the Bleeding Disorders Advisory
Board Campaign, in collaboration with the local bleeding disorders community, Baxter
Healthcare Corporation and other supporters. As was discussed recently at Washington
Days, the campaign is intended to provide specific expertise to state policymakers so they
may best serve the bleeding disorders community. The Iowa legislation requires the Iowa
Department of Public Health, in conjunction with the Department of Commerce’s
Division of Insurance, to establish a committee to review and make recommendations to
the state regarding the impact of legislation, administrative actions and rules regarding
the care and treatment of people with hemophilia and related bleeding disorders, and to
create more public awareness of these conditions.
The successful passage of the bill in Iowa is the result of the hard work of many people,
including the Iowa bleeding disorders community who made legislative visits and calls,
and wrote letters to legislators, Baxter Healthcare Corporation, and Iowa legislators who
understand the issues being faced by consumers and their families in our community. We
commend everyone for their hard work.