On July 2, 2007, Illinois Governor Rod Blagojevich signed legislation amending the Illinois Hemophilia Care Act to create the Hemophilia Advisory Review Board. The new board will submit a report with recommendations by January 2008 to the governor and the general assembly on "maintaining access to care and obtaining adequate health insurance coverage for individuals with hemophilia and other bleeding disorders." The board, in its advisory capacity, will notify various state agencies regarding policies that affect the health and well-being of people with hemophilia and other bleeding disorders.
With the passage of this bill, Illinois becomes the third state, after Iowa and Texas, to have adopted a version of NHF’s model Bleeding Disorders Advisory Board Bill. A decision is pending in Massachusetts on its version of the bill.
NHF congratulates the staff and members of the Hemophilia Foundation of Illinois and countless others throughout the state who helped get the bill adopted.
The Pennsylvania Standards of Care Act is also making headway. The Senate version (SB 1030) was recently introduced and has since been referred to the Senate Public Health and Welfare Committee. Its House counterpart, HB 1105, was introduced a few months ago and is now in the House Insurance Committee. The bills are being spearheaded by the Delaware Valley Chapter of the National Hemophilia Foundation and the Western Pennsylvania Chapter of the National Hemophilia Foundation.
The NHF Public Policy Department is supporting a variety of legislative and other policy initiatives throughout the country to help ensure access to high-quality care for people with bleeding disorders. For more information on our initiatives or to bring an issue to our attention, visit NHF’s Web site and click on "Advocacy Center." You can also contact Ruthlyn Noel, NHF Manager of Public Policy: 212.328.3730 or firstname.lastname@example.org.