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NHF Recruiting Participants for HERO Survey

The National Hemophilia Foundation (NHF) would like to inform you of the HERO (Hemophilia Experiences Results Opportunities) survey and provide you the opportunity to take part if you so choose.


The HERO study will include about 1,200 patients and caregivers. The aim of the study is to explore the psychosocial issues in hemophilia A and B, and their impact on the various aspects of life, both for patients and their families and partners. The data collected will enhance the understanding of what it is like to live with hemophilia. Ultimately, HERO may inform strategies to improve hemophilia management.


The study findings will be made known to healthcare providers, patients, and patient advocacy organizations through presentations at hemophilia conferences, publications in scientific journals, leaflets and Web sites. As examples of how we might report the results back to patients and caregivers, we might make these results available at the NHF Annual Meeting, hold discussions at chapter meetings or present the results in an article in HemAware.


As a token of appreciation for taking time to participate, upon completion of the survey you will be mailed a gift card with a value of $75. At the end of the questionnaire you will be asked to provide the postal address where you would like the gift card to be sent. Please ensure that your details are entered correctly. Your postal address will not be linked to your survey responses.

The study is open to US residents only. Click here to take the HERO survey.


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