Hemophilia of North Carolina (HNC), a chapter of the National Hemophilia Foundation, is seeking research participants for the two-year study, Health-related Quality of Life Among Older Men with Hemophilia.

 

The study, funded by Bayer HealthCare Pharmaceuticals, is “designed to obtain new knowledge about hemophilia and aging that may provide important information to enhance care.” The principal investigator of the study is Susan Fletcher, PhD, HNC Research and Special Programs Coordinator. The co-investigators are Cherie Rosemond, PT, PhD, GCS, University of North Carolina (UNC)-Chapel Hill Institute on Aging, and Raj Kasthuri, MBBS, MD, UNC-Chapel Hill, Assistant Professor, Division of Hematology and Oncology. Dr. Kasthuri received the NHF-Baxter Clinical Fellowship from 2004-2006.

 

For the study, HNC is recruiting individuals who are 50 years old or older and have a diagnosis of hemophilia along with their spouses and partners. All information will be kept confidential and no personal information will be released to third parties outside of HNC.

 

Participants will receive a $50 gift card for completing two surveys. Those randomly selected to participate in a phone interview will receive an extra $50 gift card.

 

To learn more, contact Dr. Fletcher: 1.800.990.5557 or sue.fletcher@hemophilia-nc.org