The National Hemophilia Foundation’s (NHF) Washington Days 2008 event was a rousing success. This year a record-breaking number of participants--more than 250 from 38 states—descended on our nation’s Capitol to meet with legislators to keep our issues top of the mind and top of the agenda.
The three main issues we are advocating for this year are:
- Lifetime Insurance Caps. While we were in Washington, Senator Byron Dorgan (D-ND) introduced the Heath Insurance Protection Act (S. 2706), expanding the cap to $10 million within the next four years and indexed for inflation after that.
- Medigap Insurance Expansion. The Medigap Access Improvement Act, H.R. 1282, expands access to Medigap Insurance. There are still 26 states where it is not available to people with disabling conditions, including hemophilia.
- Additional Funding for HTCs. As an increasing number of women are diagnosed with bleeding disorders and access hemophilia treatment center (HTCs), there will be a growing demand for more services. To date, 35 congressmen and congresswomen in the House have co-signed a letter of support—nearly double the number from last year.
Other advocacy issues we are pushing include the Genetic Nondiscrimination Insurance Act (GINA) and the State Children’s Health Insurance Program (SCHIP).
If you couldn’t attend Washington Days this year, it’s not too late to get involved and take action. Click here to find out how you can make a difference in the bleeding disorders community. Make your voice heard.