Team Hemophilia on Tour is an innovative initiative to raise awareness of bleeding disorders throughout the country, while raising funds to support programs sponsored by the National Hemophilia Foundation. NHF’s National Youth Leadership Institute (NYLI), 18- to 25-year-olds with proven leadership skills, will go the distance as they board the Team Hemophilia tour bus and spread the word about bleeding disorders en route to five IndyCar races. Between races, NYLI members will make their way to 16 chapters, associations and summer camps to promote youth involvement at the chapter level and provide leadership training.
At race sites, NYLI members will be given local and national platforms (print, broadcast and Web) to tell their stories and reach out to a broader audience. By having NYLI members share personal experiences, NHF hopes to raise awareness for issues that affect not only those with bleeding disorders, but also people with any chronic condition.
NYLI members have created fundraising pages, encouraging supporters to make donations to support the cause. During each leg of the race, NYLI members will communicate with the bleeding disorders community and the world at large via a blog, sharing their insights, experiences and discoveries.
Media exposure will be enhanced by the presence of Chris Hovan, starting defensive tackle for the Tampa Bay Buccaneers and national spokesperson for Team Hemophilia on Tour, and Marco Andretti, IndyCar series driver.
All proceeds raised by Team Hemophilia on Tour will support the National Hemophilia Foundation and its local chapters through the following programs:
- Research for better treatment and to find a cure
- Advocacy and public policy
- Education and program for families with children who are newly diagnosed with a bleeding disorder
- National prevention programs
- Summer camps for children with bleeding disorders
Be part of a winning team—Team Hemophilia on Tour. The team that races to win and wins to raise funds for people living with hemophilia and other bleeding disorders. To make a donation, read a blog or track an IndyCar race, go to: www.teamhemophilia.org