September is National Preparedness Month, a good time to ask yourself: Am I prepared? People in the bleeding disorders community need to be prepared for any emergency, whether a small personal or family emergency or a community-wide emergency. Data from Hurricanes Katrina and Rita show that individuals with chronic conditions experienced the worst outcomes due to interruptions in their continuity of care.
We can prevent that happening to us again as a community by preparing well in advance. If you are not sure how to get started, please check out NHF’s new Steps for Living Web site, where you will find many resources to help you and your family prepare for emergencies: www.stepsforliving.hemophilia.org.
Steps for Living is NHF’s new, life stages education resource with age-appropriate, tips and tools for everyone. Newly diagnosed? We have lots of practical resources for you. Trying to figure out how to help your child make the shift from high school to college? We can help. Created by parents, patients, and healthcare professionals from the bleeding disorders community, the Steps for Living Web site provides information and resources to help you and your family adjust to life as your child with a bleeding disorder grows and matures. Visit the site often to find new features and tools to help you deal with the many facets of living with a bleeding disorder.
Steps for Living was created with financial support from both the CDC and Pfizer, Inc.