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New Resources Available through NHF’s HANDI Resource Center
 

-Bleeding Disorders, Sports and Exercise-

 

The National Hemophilia Foundation (NHF) recently created a new educational booklet entitled, “Playing It Safe: Bleeding Disorders, Sports and Exercise.” This resource is a valuable tool for people with bleeding disorders, family members and caregivers. The conveniently-sized booklet contains a comprehensive catalog of physical activities. Topics include conditioning, stretching and flexibility, weight training, cardiovascular exercise and sports. Also included is a safety chart rating many recreational activities and exercise regimens for people with bleeding disorders.

 

-VWD Monograph Available for Physicians-

A monograph entitled “von Willebrand Disease,” written by Carol K. Kasper, MD, of the Orthopaedic Hospital in Los Angeles, CA is now available. Published in October 2005,

this resource was funded by an educational grant from the ZLB Behring Foundation. The monograph is useful for professionals treating patients with von Willebrand disease (VWD), as well as physicians new to hematology. The monograph provides an overview of VWD history, genetics, testing, subtype classification, diagnosis and treatment. In addition, there is a selected bibliography of recent review articles and a listing of relevant historic articles summarized in context.      

 

Dr. Kasper served as medical director for the World Federation of Hemophilia from 1994-2000. She currently sits on the National Hemophilia Foundation’s Board of Directors.

 

-DVD Promotes Healthy Choices for People with Hemophilia-

 

“Living Healthy with Hemophilia,” is a new educational DVD developed by Hemophilia of Indiana, Inc. in collaboration with the Indiana Hemophilia & Thrombosis Center. The DVD was funded through a National Prevention Program (NPP) grant from the National Hemophilia Foundation (NHF). The program focuses on key NPP strategies, with particular emphasis on exercise and responsible eating as way to maintain healthy joints. The program features interviews with hemophilia treatment center professionals, as well as people with hemophilia and their families.

 

To request a complimentary copy of any of the aforementioned resources, contact HANDI at 800-424-2634 (option two) or handi@hemophilia.org.

 

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