The National Hemophilia Foundation (NHF) will be holding two prevention training and networking events this spring. NHF On the Road 2006 will be held April 28-29 in Minneapolis, MN and June 23-24 in Denver, CO. The events will be hosted by the Hemophilia Foundation of Minnesota and the Dakotas and the Hemophilia Society of Colorado respectively.
The focus on Friday of each event will be the importance of everyday preparedness in the wake of the Gulf States hurricanes and overcoming barriers to practicing prevention behaviors, such as early and adequate treatment, exercise, and responsible eating as a way to maintain healthy joints. Prevention teams will also develop local emergency action plans. On Saturday, local consumers will join in the discussions, participate in rap sessions and receive public policy updates. A portion of Saturday will also be set aside for chapter representatives to discuss with NHF the status of the re-organization process.
Also taking place on Saturday will be a special track for medical providers co-sponsored by NHF and the National Alliance for Thrombosis and Thrombophilia. This medical track is a new component to NHF’s On the Road program and will cover topics such as women’s issues in thrombophilia, pediatric care, venous vs. arterial clots and inherited vs. acquired thrombophilia. Immediately following these sessions will be a panel discussion on the development of a comprehensive care model for thrombophilia.
For more information visit NHF's On the Road Web site or contact Jennifer Crawford, Education Manager at jcrawford@hemophilia.org or 212-328-3738.