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Women's Bleeding Disorders Advocate Dies at 40

Cindy Neveu, an advocate for women with bleeding disorders and for people with
HIV/AIDS, died March 14 in Oakland, CA, after a battle with liver cancer.

Neveu was the founder of Shemophilia, a Web site that provides information and
resources for women with bleeding disorders and people with rare inherited bleeding
disorders. She had factor 1 deficiency and had contracted HIV and hepatitis C.

“She was instrumental in women with bleeding disorders activism and education,” said
Barbara Evans Forss, executive director and founder of LadyBugs LLC, an organization
that provides support to women with bleeding disorders. “She was a very big part of my
being who I am today.” LadyBugs LLC is honoring Neveu at its “Saturday in Seattle”
event on Saturday, April 14, 2007, which she was scheduled to attend and make a

In addition, LadyBugs LLC, in partnership with Factor Health Management, its parent
company has established the Cindy Neveu Memorial Foundation. It will provide financial
assistance to women in need with bleeding disorders to cover the cost of travel, lodging,
and/or expenses for treatment at a comprehensive treatment center.

Neveu graduated from the University of the Pacific in Stockton, CA, where she was a
member of the Alpha Chi Omega sorority. She was active in her community, serving as a
board member of AXIS Dance Troupe and of the Medical Ethics Committee at
Children’s Hospital & Research Center Oakland.

To access a guest book established in Cindy’s name, go to:


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