The American Pain Foundation (APF) has launched the Hemophilia Chronic Pain Support Group, a new online support group for people with hemophilia and their families. The purpose of the discussion forum is to address the issue of pain in people with bleeding disorders and offer help through information sharing, mutual support and resources. The forum will be moderated by Theo Bunin, a clinical social worker in practice in New York, who has hemophilia.
The advantages of online discussion forums, also called message boards and Web forums, is that regular participants become part of a “virtual community” of people with similar concerns from across the country and, sometimes, the world. They hold discussions on important issues facing them, and share experiences and ideas that might be difficult to discuss in a face-to-face support group. APF has more than 100 such forums, all moderated by experts, unpaid volunteers who either have chronic pain or work with people who do. The forums are available to users 24 hours a day.
To register for the new hemophilia pain discussion forum, go to: http://painaid.painfoundation.org/Register.aspx. You will be required to create a user name and password to log in to the site.
APF is a nonprofit organization established in 1997 to serve people living with chronic pain through advocacy, education and resources, research and support. It is based in Baltimore, MD.