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First Step Train-the-Trainer Workshop Hosted Teams from Across the Country

This year NHF’s Train-the-Trainer workshop preceded the special On the Road program in New Orleans, Louisiana, April 19-20, 2007. The two-day workshop instructs First Step teams, which consist of a chapter/association member, hemophilia treatment center representative and a parent, on how to initiate or continue a First Step program. First Step teams coordinate activities in their local areas, such as small group meetings and events for parents and families with newly diagnosed children.

The following chapters/associations that attended the workshop:

  • Bleeding Disorders Association of Northeastern New York, Inc.
  • Hemophilia Association of San Diego County
  • Hemophilia Foundation of Maryland
  • Hemophilia Foundation of Oregon
  • Hemophilia Foundation of Southern California
  • Louisiana Hemophilia Foundation
  • Midwest Hemophilia Association
  • Southwestern Ohio Hemophilia Foundation

Participants discussed topics of interest to new parents, practiced learning activities and worked in small groups, brainstorming and setting priorities for their First Step Programs. Each team finished the training by completing an action plan. Ray Stanhope, NHF Board Chair, awarded each team a certificate of completion.

NHF is proud to report that 94.4% of participants surveyed “agreed” or “strongly agreed” that, as a result of the training, they are now able to conduct small parent/family meetings in their local communities.

For more information on Train-the-Trainer or the First Step program, please contact NHF Manager of Education Alyssa Strauss at: or 212.328.3744

The First Step Train-the-Trainer programs were made possible through an educational grant from Wyeth and the program partnership with the Centers for Disease Control and Prevention.


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