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On the Road with NHF in New Orleans

NHF hosted its 2007 On the Road program in New Orleans, LA, April 20- 21, 2007. This special one-day On the Road, held in conjunction with the Louisiana chapter’s Annual Meeting, accomplished several key objectives:

  • Sharing the Do the 5! prevention education and preparedness training with the bleeding disorders community in Louisiana.
  • Paying tribute to the families and individuals in Louisiana who continue to work through the long recovery phase after Hurricanes Katrina and Rita.
  • Honoring the chapters and hemophilia treatment centers, Hemophilia Federation of America and the Centers for Disease Control and Prevention—all of which have been lending support throughout the recovery phase after Hurricane Katrina—and the companies that have been providing compassionate donations of factor.

At the On the Road, NHF and the Louisiana Hemophilia Foundation thanked and commended the following organizations and companies that have given critical support throughout the response and recovery period: Hemophilia of Georgia Inc., Lone Star Chapter of NHF, Gulf States Hemophilia and Thrombophilia Center, Emory University Hemophilia Program, Centers for Disease Control and Prevention, Hemophilia Federation of America, Baxter BioScience, Bayer HealthCare, CSL Behring, Grifols USA, Novo Nordisk Inc. and Wyeth Pharmaceuticals.

Participants enjoyed education sessions on advocacy at the federal and state levels, fitness and nutrition, as well as rap sessions and a presentation on emergency preparedness. Personal emergency preparedness, an important issue for people in the bleeding disorders community, was encouraged by distributing NHF “Go-Bags,” insulated backpacks containing a first aid kit, flashlight, readiness card, and other important supplies, to each participant. Survey results show that 81% of the participants stated that after the day’s discussion, they were very likely to develop an action plan for their families in preparation for a disaster.

While the adults were in sessions, youth leaders from NHF’s National Youth Leadership Institute (NYLI) met with Louisiana youth, ages 13-19, in an all-day leadership program. NYLI members facilitated group bonding and leadership games in the morning. In the afternoon, chapter leaders gave an overview of their activities and suggested ways for the youth to get involved. The NYLI members then helped the Louisiana youth brainstorm and develop an action plan for their own project, which the chapter will help them implement later this year.

NHF extends its thanks to the host chapter, the Louisiana Hemophilia Foundation, and to Lori Keels, executive director, her staff and volunteers who worked with the On the Road team to plan and implement a successful OTR 2007.


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