HANDI, the National Hemophilia Foundation’s information resource center, has two new publications for providers:
- “Emergency Care for Patients with von Willebrand Disease: An Instructional Manual for Medical Professionals,” is a general guide for medical personnel who need to evaluate and treat patients with von Willebrand disease (VWD) in emergencies. The manual includes useful descriptions of types of bleeds, plus guidelines for evaluation and recommendations for treatment. Please note: While the booklet is a helpful, informative guide, the attending physician has ultimate responsibility for clinical decisions. This publication was funded through a grant from the CSL Behring Foundation for Research and Advancement of Patient Health.
- “Genetics of Hemophilia A and B: An Introduction for Clinicians, 2007” contains college level explanations of possible inheritance scenarios, genetic variations and mutations, carrier testing and other topics. The book, which was written by Carol K. Kasper, MD, and Carolyn H. Buzin, PhD, provides a comprehensive overview of the genetics of hemophilia for nurses, physicians and genetic counselors. This publication was funded through an educational grant from the CSL Behring Foundation for Research and Advancement of Patient Health.
To request a complimentary copy of one or both these resources, contact HANDI at 800-424-2634 (option two) or firstname.lastname@example.org. Hemophilia treatment centers may request a maximum of five copies of either of these publications.