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First Step


First Step is NHF's program that welcomes families of infants and young children into the bleeding and clotting disorders community.

Learn more about First Step

- What is First Step?
When did First Step begin?
- How does First Step work?
- What are First Step's goals?
- Who does First Step help?
- Why is First Step important?
- How can I get involved?




First Step Refresher Course
Please join us for a one-day workshop to help improve and reinvigorate your First Step program. Click here for more information or to apply.

Receive First Step Materials
Find out how to receive useful materials for new parents that include brochures, childcare publications and bleeding disorders information.

View the Newly Diagnosed Section
This online section contains information about treatment recommendations, child raising tips, psychosocial issues and so much more.

Locate a Camp Near You
NHF's online camp directory has information about camps across the U.S. for children with bleeding disorders and their families.


Two forums available for families and professionals:

Families of children newly-diagnosed with bleeding disorders: Share information, network with others and provide and receive support.

NHF chapters, associations, HTCs and parent coordinators: Learn First Step strategies and share guidance with others.


Submit your own story about parenting and raising a child with a bleeding disorder

Read Heidi's story about her son's first bleed.


The following chapters were awarded First Step grant funding for 2008-2009. Congratulations!!

  • Tri-State Bleeding Disorders Foundation
  • Central Ohio Hemophilia Foundation of NHF
  • Hemophilia Foundation of Michigan
  • Hemophilia Association of San Diego County
  • Hemophilia Foundation of Indiana, Inc.
  • The Lone Star Chapter of NHF


For new parents and families who are interested in participating in First Step

For chapters/associations and/or HTCs who are interested in forming a First Step program

Please contact:
Chad Feay: Manager of Education
Phone: (800) 42-HANDI ext. 3744