conducted by the Centers for Disease Control and Prevention (CDC) found
that persons who had received care in HTCs had a 40% lower hospitalization
rate for bleeding complications and 40% decreased risk of death than non-HTC
users. (Soucie 2000), (Soucie 2001).
have also shown that receiving treatment at hemophilia treatment centers
associated with decreased unemployment rates; improved emotional health
stability; increased school attendance; and a greater sense of empowerment
treatment centers employ a team of specialists interested in all aspects
of your health and well-being, including but not limited
to the following: hematologist and/or pediatric hematologist; nurse coordinator;
social worker; and physical therapist. This team meets regularly to discuss
all aspects of each patient's care and decide on the best comprehensive
treatment plan for each individual.
treatment centers offer the opportunity to participate in the Universal
Collection Program (UDC). UDC is a nationwide project developed by CDC
monitor blood safety and joint disease in the bleeding disorders community.
your hemophilia treatment center for details on how you can participate
more information on each fact sheet or to locate a hemophilia treatment
center near you, contact NHF's information service, HANDI, at 800-42-HANDI
Soucie, J.M., Nuss, R., Evatt, B., Abdelhak, A., Cowan, L., Hill,
H., Kolakoski, M., Wilber, N., and the Hemophilia Surveillance System
Project Investigators. Mortality among males with hemophilia: relations
with source of medical care. Blood 2000; 96:437-442.
Soucie, J.M., Symons, J., Evatt, B., Brettler, D., Huszti, H., Linden,
J., and the Hemophilia Surveillance System Project Investigators. Home-based
factor infusion therapy and hospitalization for bleeding complications
among males with hemophilia. Haemophilia 2001;7:198-206.