Blood products are safer than ever, but keeping a watchful eye on them is
key to ensuring their continued safety. Getting tested regularly for blood-borne
infections is important. Know your test resultsit matters to you and
to your family.
monitoring blood product safety is an ongoing process that requires long-term
participation by as many individuals with bleeding disorders as possible.
Centers for Disease Control and Prevention (CDC) has implemented a national
program called Universal Data Collection Program (UDC) to monitor blood
safety in the bleeding disorders community.
blood testing for hepatitis A, B, C, and HIV is available through participation
CDC's Universal Data Collection program offered by your hemophilia treatment
Protecting UDC participant confidentiality is a top priority. All Universal
program participants' identifying information is held confidentially at
hemophilia treatment center.
a participant of Universal Data Collection program, samples of your blood
at CDC. This allows quick investigation of any new blood-borne infection
may arise. The results of testing are returned to participants through
monitoring service, the Patient Notification System, provides direct access
to the latest withdrawals and recalls of infusion products. This system
direct notification for all enrollees when a product is withdrawn orrecalled.
To enroll, please call 1-888-UPDATE-U.
more information on each fact sheet or to locate a hemophilia treatment
center near you, contact NHF's information service, HANDI, at 800-42-HANDI