| WEDNESDAY, NOVEMBER 7, 2012 |
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TIME
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CONSUMERS &
NEW FAMILIES
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PHYSICIANS & RESEARCHERS
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NURSES
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PHYSICAL THERAPISTS
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SOCIAL WORKERS |
CHAPTER STAFF |
1pm-5pm
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• Donor Perfect Training Precon |
3pm-6pm
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6:30pm-7:30pm
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• Chapter Leadership Reception (6pm-7:30pm) |
| THURSDAY, NOVEMBER 8, 2012 |
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TIME
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CONSUMERS &
NEW FAMILIES
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PHYSICIANS & RESEARCHERS
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NURSES
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PHYSICAL THERAPISTS
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SOCIAL WORKERS |
CHAPTER STAFF |
8am-1pm
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• Industry Symposium I |
• Industry Symposium I
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• Industry Symposium I
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• Industry Symposium I
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• NHF Update for Chapters (9am-11:30am) |
12pm-2pm
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• New Families Reception (Noon-1:00pm)
• Orientation/Welcome Session (1:30pm-2:30pm)
• Platinum Preview Lounge (1pm-4pm) |
• HTC Staff Meeting
• Platinum Preview Lounge (1pm-4pm) |
• Platinum Preview Lounge (1pm-4pm) |
• Platinum Preview Lounge (0pm-4pm) |
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• CSO Luncheon (11:30am-1pm)
• Platinum Preview Lounge (1pm-4pm)
• Chapter Chat (1:15pm-2:45pm) |
2:15pm-5:15pm
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• Von Willebrand Disease 101 (2:30pm-3:30pm)
• Hemophilia 101 (2:30pm-3:30pm)
• Hey, What About Me? Raising Siblings in a Family Affected by Chronic Illness (2:30pm -3:30pm)
• Piercings, Tattoos & Gauges, Oh My!: Pros and Cons of Body Art (2:30pm-3:30pm)
• Liver Disease Interventions and Hepatitis C Updates (2:30pm-4pm)
• Preguntas Para Los Expertos En Español (3:30pm-5pm)
• Ask the Experts: Hormone Therapy Across Women’s Lifespan (3:30pm-5pm)
• Ask the Expert:: Inhibitors (3:30pm-5pm)
• It’s a Guy Thing, Too: Men with von Willebrand Disease (3:30pm-5pm)
• NYLI: Who Are We? What Do We Do? (4pm-5:15pm)
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• Precon: Inspiration, Imagination & Motivation |
• Taping in Physical Therapy |
• Ethical Social Work Practice: What Every Social Worker Needs to Know |
• Social Media 101: How to Activate Your Supporters! (3:00pm-5:00pm) |
5:30pm-6:30pm
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• Opening Session |
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6:30pm-9:30pm
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• Exhibit/Opening Reception |
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7pm-8:30pm
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• Victory for Women Reception |
• Industry Symposium II |
• Industry Symposium II |
• Industry Symposium II |
• Industry Symposium II |
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| FRIDAY, NOVEMBER 9, 2012 |
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TIME
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CONSUMERS &
NEW FAMILIES
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PHYSICIANS & RESEARCHERS
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NURSES
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PHYSICAL THERAPISTS
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SOCIAL WORKERS |
CHAPTER STAFF |
7am-9am
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• Industry Symposium I
• Industry Symposium II
• Industry Symposium III |
• Industry Symposium I
• Industry Symposium III |
• Industry Symposium I
• Industry Symposium III
• Facilitating Continuity of Care for Patients with Hemophilia with Inhibitors (7:30am-8:45am) |
• Industry Symposium I
• Industry Symposium III |
• Industry Symposium I
• Industry Symposium III |
• Industry Symposium I
• Industry Symposium II
• Industry Symposium III |
8:30am-9:30am
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• Plenary on Inhibitors (9am-12pm) |
• Plenary on Inhibitors (9am-12pm) |
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• Steps for Living and NHF’s Mentoring Program
• Roundtable: Advocacy (9:30am-11:15am) |
9:45am-11:15am
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• I Don’t Need a Support Group, I Have Facebook! Pros & Cons of a Social Media Support System
• Blood Safety Update
• Research Update (9:30am-11:30am) |
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• Weighty Matters: Overweight with a Bleeding Disorder? Why It Matters and What We Can Do About It |
• Dual Diagnosis: Working with Patients with Hemophilia and Mental Illness (9:15am- 11:15am) |
• Blood Safety Update
• Research Update (9:30am-11:30am)
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11:30am-1:15pm
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• Exhibit Hall Lunch (11:30am-1pm)
• Rap Sessions (12:30pm-1:30pm) |
• Research Fellows Luncheon (12:30pm-1:30pm) |
• Notions About Potions: A Product Review (12:15am-1:15pm) |
• Management of Sports Participation |
• Helping Parents Manage Difficult Behaviors in Children with Hemophilia |
• Exhibit Hall Lunch (11:30am-1pm) |
1:30pm-2:45pm
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• Head, Shoulders, Knees & Toes: Pros and Cons of Protective Devices (1:30pm-2:30pm)
• Body Image & Intimacy Issues for Women with Bleeding Disorders (For Women Only) (1:30pm-3pm)
• Es un Asunto de Familia: Trabajando Juntos para crear un Ambiente Positivo de Familia (1:30pm-2:30pm)
• Aging & Hemophilia: Embracing Your Inner Geezer (1:30pm-3pm) |
• Novel Technologies and New Products in Hemostasis, Anticoagulation, HIV & Hepatitis C (2pm-5pm) |
• Nurses Luncheon—Be Our Guest |
• Physical Therapists Luncheon – Updates on Research, CDC and Membership |
• Social Workers' Lunch: Identity and Social Relationships in Women with Moderate and Severe Hemophilia A and B and Other Bleeding Disorders |
• Roundtable: Fundraising (1:15pm-3pm) |
2pm-3pm
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• Remembrance and Celebration of Life |
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• Remembrance and Celebration of Life |
3pm-5pm
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• Insurance and Advocacy
• Beyond the Label: Carriers and Women with Mild Hemophilia (3:15pm-4:15pm)
• Do I Have to Be on the Team? Healthy Sports and Sports Alternatives (3pm-4pm)
• How Spiritual Diversity Affects Your Healthcare Decisions (4pm-5pm) |
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• Sharing & Caring: Case Studies on VWD |
• Upper Extremity Orthopedics and Interventions |
• Effective Social Work Strategies for Engaging the African-American Male Client |
• Working with Chapters: Lessons Learned with Dave (3:00pm-4:00pm)
• Tackling Financial Statements (4pm-5:15pm) |
5pm-6pm
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• Please Tell Me Who You Are: Identifying Different Roles in the Hospital Setting
• I’m More Than Just a Caregiver
• Mechanics of Physical Intimacy: Managing Pain & Joint Limitations in Sexual Relationships (for all) |
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• Sugar and Spice and Not Everything Nice: Complementary and Alternative Medications (Including Herbals) (5:15pm-6:15pm) |
• PT Game Show (5:15pm-6:15pm) |
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• Thank You, Thank You! Donor Stewardship (5:15pm-6:15pm) |
5:30pm-6:30pm
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• Research Posters Reception |
• Research Posters Reception |
• Research Posters Reception |
• Research Posters Reception |
• Research Posters Reception |
• Research Posters Reception |
| SATURDAY, NOVEMBER 10, 2012 |
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TIME
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CONSUMERS &
NEW FAMILIES
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PHYSICIANS & RESEARCHERS
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NURSES
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PHYSICAL THERAPISTS
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SOCIAL WORKERS |
CHAPTER STAFF |
7am-9am
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• Industry Symposium I |
• Industry Symposium I
• Industry Symposium II |
• Industry Symposium I
• Industry Symposium II |
• Industry Symposium I
• Industry Symposium II |
• Industry Symposium I
• Industry Symposium II |
• Industry Symposium I |
8am-6pm
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• MASAC |
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8am-9am
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• Fit 'n' Fun Walk/Run |
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9:30am-11:15am
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• Steps for Living (9:30am-10:30am)
• NHF Ethics Committee: What Can We Do For You? (9:30am-10:30am)
• One in a Million: Rare Bleeding Disorders (9:30am-10:30am)
• I Can Have a Bleeding Disorder and Live a Big Life (9:30am-10:30am)
• The Glass is Half Full: Reframing Emotional Challenges for Women with Bleeding Disorders (10:30am-12pm)
• Been There, Done That! Raising Parents When You Have a Bleeding Disorder (10:30am-11:30am) |
• Oral Presentations from the Top Research Poster Abstracts (9am-10am)
• Addressing Therapeutic Gaps in Rare Bleeding Disorders (10:15am-11:45am) |
• It’s A Small World After All: Telemedicine In the HTC |
• Consequences of Blood in the Joint: Science to Clinical Practice |
• The Social Work Intervention in Pain Management |
• Marketing and Communication Tips for Chapters (9am-10:45am) |
11:30am-1:15pm
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• When a Band-Aid® and a Hug Are Not Enough! Pain Management and Alternative Therapies (12pm-1:15pm)
• A Taste of PEP: Parents Empowering Parents (11:30am-1pm)
• What Do You Want to Be When You Grow Up? College and Career Choices (11:30am-1:15pm)
• World Federation of Hemophilia Update (12:15pm-1:15pm) |
• Research Presentations from NHF-Baxter Clinical Fellows (11:45am-1:15pm) |
• Mirror, Mirror on the Wall: What Is a Carrier After All? Caring for Carriers |
• Art or Science: Musculoskeletal Management of Hemophilia for Physical Therapists |
• Unexpected Highs: A New World in Street Drugs |
• “Who’s On First?” Intentional Succession Planning (11am-12pm)
• Wrapping it All Up: Closing and Good-Byes (12:15pm-1:15pm) |
1:30pm-3pm
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• Awards Luncheon |
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• Awards Luncheon |
• Awards Luncheon |
• Awards Luncheon |
• Awards Luncheon |
| 3pm-5pm |
• Legacy: The Hemophilia of Yesterday – Finding Yourself Through the Lens of the Past (Plenary) (3:15pm-4:45pm)
• Medical Marijuana: What’s It All About? (4:45pm-5:45pm) |
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• Wish upon a STAR: Discussion of Ankle Replacement Surgery (3:15pm-4:15pm)
• Heigh-Ho, Heigh-Ho, It’s Off to Camp We Go (4:30pm-6pm) |
• Aquatic Therapy (3pm-6pm) |
• Creative SW Programming (3pm-6pm) |
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6:30pm-10:30pm
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• Final Night Party at Universal Studios Florida |
• Final Night Party at Universal Studios Florida |
• Final Night Party at Universal Studios Florida |
• Final Night Party at Universal Studios Florida |
• Final Night Party at Universal Studios Florida |
• Final Night Party at Universal Studios Florida |