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NHF Introduces Campaign for Our Future

At NHF’s Leadership Weekend, held June 13-15, 2008, at the Doubletree Hotel in Fort Lee, New Jersey, a major fundraising initiative was introduced—Campaign for Our Future. The five-year, multimillion dollar capital campaign will provide funds to NHF’s chapters for outreach and education programs that benefit the bleeding disorders community. The campaign has 100% financial commitment from NHF’s Board of Directors.

After the campaign was introduced by NHF CEO Val Bias and Ray Stanhope, NHF’s Board Chair, key leaders of the bleeding disorders community’s affinity groups—its Board of Directors, chapter leaders, healthcare providers, consumers, corporations and associations/organizations—signed a proclamation of their commitment. It stated:

We, the undersigned, endorse NHF’s Campaign for Our Future, to support a strong national organization, part of a coordinated and unified system within the bleeding disorders community, in order to realize our common vision:

  • People living with bleeding disorders receive the services they need to lead full, productive lives, regardless of where they live.

  • The ultimate goal remains to find better treatments and one day a cure for bleeding disorders. And until that day, to ensure that all people living with bleeding disorders have every opportunity to reach their full potential.

Endorsements from leaders of NHF’s affinity groups included:

Jackie Behr
Board Vice Chair, Mary M. Gooley Hemophilia Center

“Chapters and HTCs share a basic mission of service. NHF’s vision of being “a strong national organization that is part of a coordinated and unified system” will magnify our collective presence and amplify our voice to benefit people we all serve.”

Joe Pugliese
President, Hemophilia Alliance
“We share NHF’s sense of urgency in acting today. We want to ensure the community has access to innovative therapies, a normal quality of life and the quality of care the hemophilia treatment center (HTC) network provides.”

Michelle Rice
Executive Director, Hemophilia of Indiana, Inc.
“We believe that in order to insure that those we serve continue to have access to the comprehensive care they require, it will necessitate the combined strength and coordinated efforts of the National Organization, local chapters, hemophilia treatment centers and others.”

Craig Kessler, MD
Chair, MASAC

“As chair of MASAC, I offer my full support of the Campaign for Our Future and the vision that is guiding its actions--to build a stronger national organization and chapter network working in collaboration with their local HTCs and others to provide a total comprehensive service model that will promote health, educate and empower people, and insure the betterment of the individuals we serve.”

Eddie Williams
Vice President, Biopharmaceuticals, Novo Nordisk
“By partnering with NHF and supporting its unification efforts, we believe that we truly can make a difference not only for select patients, but also for the community as a whole.”

The official launch of Campaign for Our Future will take place at NHF’s 60th Annual Meeting, November 13-15, 2008, in Denver, CO.

To make a donation, click here. For more information, please contact Mary Ann Ludwig, NHF Vice President for Development: 800-42-HANDI, x. 3741 or

The lead benefactor of NHF’s Campaign for Our Future is Novo Nordisk.