Anna DeSimone, former Education Manager and Director of the National Hemophilia Foundation’s (NHF) Project Red Flag, died on Thursday, April 19, 2012, of complications from myelofibrosis, a bone marrow disorder.
DeSimone became involved in the bleeding disorders community after her son was born with hemophilia in the late 1980s. She joined her local chapter, the Hemophilia Association of New Jersey, where she eventually became a trustee, then president of the board.
From 2003-2008 DeSimone worked at NHF. She was hired as Coordinator of Project Red Flag, a national awareness campaign for women with von Willebrand disease and other bleeding disorders. She then became director of the program. In that position she helped created a checklist for school nurses and sessions at NHF’s Annual Meetings for women with bleeding disorders. She also met with NHF chapters to help them strengthen their programming for women. In 2004 DeSimone was appointed by the governor of New Jersey to serve on a Task Force on Women and Bleeding Disorders.
DeSimone served on the board of the Hemophilia Federation of America. She was a founding board member and treasurer of the Foundation for Women & Girls with Blood Disorders, a nonprofit organization providing information for healthcare providers.
DeSimone will be remembered as an activist and educator, a champion for the needs of women with bleeding disorders. She is survived by her husband and two children.