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-Advocacy

 

 

 
Massachusetts
 

The following NHF chapter is available in your state:

 

New England Hemophilia Association

www.newenglandhemophilia.org

347 Washington Street

Suite 402

Dedham, MA 02026-1862

Phone: (781) 326-7645

Fax: (781) 329-5122

E-mail: neha@theworld.com

 

 

The following HTC are available in your area:

 

UMASS Memorial Hospital

New England Hemophilia Center

119 Belmont Street

Worcester, MA 01605

Phone: (508) 334-6047

Fax: (508) 334-6920

 

Brigham and Women’s Hospital

Division of Hematology

75 Francis Street

BWH Mid Campus-3

Boston, MA 02115

Phone: (617) 732-5409

Fax: (617) 732-5706

 

Boston Hemophilia Center

Children’s Hospital

Wolbach 17

300 Longwood Avenue

Boston, MA 02115

Phone: (617) 355-6101

Fax: (617) 730-0934

 

 

 

This section contains information about insurance resources and assistance available in your state.

 

Government Programs

 

Medicaid

Medicaid provides medical assistance for individuals and families who meet certain income and eligibility requirements set by the State and Federal governments.  It pays for health care costs, including doctor's visits and prescription drug coverage.

For more information, visit MassHealth at http://www.mass.gov/dph/ or call (800) 841-2900.

Medicare & Medigap

Medicare is a fee-for-service health insurance plan for seniors who are at least 65 years old and individuals who have certain disabilities.  Medicare is a three-part program.  Part A pays for necessary medical care and services given in Medicare-certified hospitals, skilled nursing facilities, home health agencies, and hospices.  Part B helps pay for doctors, outpatient hospital care, ambulance transportation, and a variety of other tests and services.  Part D, which was changed in 2006, covers the cost of prescription drugs.   Clotting factor products are covered under Parts A & B.  

 

Medicare cover services when an individual is sick or injured.  It does not, however, cover all of the health care costs including co-insurance, co-payments, and deductibles.   To limit such costs to Medicare beneficiaries, the Federal government created what is called Medigap policies as a supplement to help pay some of the costs that Medicare does not cover.  Medigap policies are sold by private insurance companies and beneficiaries may be able to choose from 12 different policies. 

 

For more information on Medicare and Medigap, Massachusetts residents may visit the State Health Insurance Counseling and Assistance Program (SHIP) website at http://medicareoutreach.org/ or call (800) 243-4636, ext. 2.  Individuals can also visit the Centers for Medicare & Medicaid Services website at http://www.medicare.gov/ or call (800) MEDICARE. 

State Child Health Insurance Program (SCHIP)  

Massachusetts Children's Medical Security Plan (CMSP) provides health insurance at modest fees or at no cost to children under age 19 and pregnant women who do not qualify for Medicaid and have limited or no health insurance.   

For more information on CMSP, visit at http://www.mass.gov/dph/ or call (800) 841-2900.

High-Risk Insurance Pool Program
Massachusetts does not offer a high-risk insurance program for the medically uninsurable. 

General Health Insurance Questions
The State has what is called guaranteed issue policies, which essentially stipulates that insurers must provide coverage to all individuals regardless of any health conditions they may have or whether they are applying individually or through a group health plan.  In Massachusetts, as in most other states, though hemophilia and other bleeding disorders can be construed as high cost by insurance carriers, persons with such conditions cannot be turned down for individual health coverage.  However, residents should carefully inspect policies and compare costs among providers because there are no limits on what price they may be asked to pay.

For more information on state-regulated health plans or to file a complaint, visit the Massachusetts Division of Insurance website at www.mass.gov/doi or call (617) 521-7777.

Other Programs
The Free Care program, also referred to as the Uncompensated Care Pool (UCP), allow individuals with low and moderate incomes to receive free or reduced cost medically necessary health services at community health centers and hospitals throughout Massachusetts.  Individuals will have to file an application at either a Massachusetts hospital or community health centers to qualify for free care.  For more information on the program, visit the MassHealth website at http://www.mass.gov/dph/ or call (877) 910-2100.  

Commonwealth Care is a state funded health insurance program for low and moderate-incomes Massachusetts residents age 19 and older who don't have health insurance.  The program is operated by the Commonwealth Health Insurance Connector Authority.  For more information, visit the MassHealth website at http://www.mass.gov/dph/ or call (877) 623-6765. 

 

Non-government Programs

The major factor producers have programs in place to provide factor, at no cost, to hemophilia patients who are without insurance and who meet certain eligibility requirements.  To find out about assistance programs being offered providers, go to the following company websites below: 

 

·         Bayer Reimbursement Helpline

http://www.kogenatefs.com/, click on Patients & Caregivers

http://www.hemophiliabayer.com

(800) 288-8374

·         Baxter Reimbursement Support

http://www.hemophiliagalaxy.com

http://www.factorassist.com

http://www.advate.com

(800) 548-4448

·         Grifols Reimbursement Department

http://www.grifolspatientcare.com

(888) GRIFOLS

·         Novo Nordisk SevenSECURE Program

http://www.us.novoseven.com/, click on SevenSECURE

(877) NOVO-777

·         Wyeth Reimbursement Information Line

http://www.hemophiliavillage.com/

(888) 999-2349

·         ZLB Behring AssuranceSM Program

http://www.cslbehring-us.com, click on Patients and Families

http://www.zlbbehringassurance.com.com

http://www.humatep.com

(800) 676-4266

 

Assistance Programs

HANDI
HANDI is the National Hemophilia Foundation (NHF) information resource center and the first stop for consumers seeking information on hemophilia, von Willebrand, and the other bleeding and clotting disorders.  The unit answers consumer’s questions, provide quality educational publications, and make referrals to additional sources of assistance.  For more information, visit www.hemophilia.org, or call (800) 42-HANDI or (212) 328-3700, or send an email to handi@hemophilia.org. 

 

Advocating for Chronic Conditions, Entitlements and Social Services (A.C.C.E.S.S.)

The A.C.C.E.S.S. program assists persons with chronic medical illnesses, including hemophilia patients, with state and federal entitlement programs, eligibility for group health insurance under federal law (COBRA and HIPAA), and health insurance through state high-risk pools and other alternatives.  The program is administered by Accredo Health, Incorporated and its affiliates, Hemophilia Health Services, Inc. and Accredo Therapeutics, Inc.  For more information, visit http://www.accredotx.com/access/access.html or call 888-700-7010.

 

Patient Services Incorporated (PSI)

PSI assists persons with chronic medical illnesses, including hemophilia patients, in accessing health insurance and pharmacy co-payment assistance programs.  For more information, visit http://www.uneedpsi.org/ or call 800-366-7741.