The following NHF chapters are available in your state:
Lone Star Chapter of NHF
17414 Fairgrove Park Drive
Houston, Texas 77095
Phone: (281) 861-6644
Fax: (281) 861-6766
Toll Free: (888) LSC-NHF1
Texas Central Hemophilia Association, Inc.
3530 Forest Lane, Suite 311
Dallas, TX 75234
Phone: (214) 351-4595
Fax: (214) 654-9954
Hemophilia Outreach of El Paso*3409 Diamond Drive
El Paso, TX 79901
Phone: (915) 859-7992
* The Hemophilia Outreach of El Paso is not an NHF chapter, but is included here because the organization provides support to the local bleeding disorders community.
The following HTCs are available in your area:
Galveston Hemophilia Program
University of Texas Medical Branch
Department of Internal Medicine
Galveston, TX 77555-0565
Phone: (409) 772-1164
Fax: (409) 772-3533
University of Texas Southwestern Medical School
Seay Biomedical Building
5323 Harry Hines Boulevard
Dallas, TX 75390-8852
Phone: (214) 648-1937
Fax: (214) 648-4105
North Texas Comprehensive Hemophilia Center – Pediatric Program
Children’s Medical Center
Hematology / Oncology Clinic
1935 Motor Street
Dallas, TX 75235
Phone: (214) 456-2379
Fax: (214) 456-5097
South Texas Comprehensive Hemophilia Center
Christus Santa Rosa Children’s Hospital
333 North Santa Rosa, 8th Floor
San Antonio, TX 78207
Phone: (210) 704-2187
Alternate Phone: (210) 704-3022
Fax: (210) 704-2418
Gulf States Hemophilia and Thrombophilia Center
Houston, TX 77030
Phone: (713) 500-8375
Fax: (713) 500-8364
Cook Children’s Medical Center
Department of Hematology / Oncology
901 7th Avenue
Forth Worth, TX 76104
Phone: (682) 885-2587
Alternate Phone: (682) 885-4007
Fax: (682) 885-1712
Texas Children’s Hemophilia and Thrombosis Center
Houston, TX 77030
Phone: (832) 822-1480
Fax: (832) 825-1453
This section contains information about insurance resources and assistance available in your state.
Medicaid provides medical assistance for individuals and families who meet certain income and eligibility requirements set by the State and Federal governments. It pays for health care costs, including doctor's visits and prescription drug coverage.
For more information, visit Texas Medicaid at http://www.hhsc.state.tx.us/medicaid/index.html or call (800) 448-3927.
Medicare & Medigap
Medicare is a fee-for-service health insurance plan for seniors who are at least 65 years old and individuals who have certain disabilities. Medicare is a three-part program. Part A pays for necessary medical care and services given in Medicare-certified hospitals, skilled nursing facilities, home health agencies, and hospices. Part B helps pay for doctors, outpatient hospital care, ambulance transportation, and a variety of other tests and services. Part D, which was changed in 2006, covers the cost of prescription drugs. Clotting factor products are covered under Parts A & B.
Medicare cover services when an individual is sick or injured. It does not, however, cover all of the health care costs including co-insurance, co-payments, and deductibles. To limit such costs to Medicare beneficiaries, the Federal government created what is called Medigap policies as a supplement to help pay some of the costs that Medicare does not cover. Medigap policies are sold by private insurance companies and beneficiaries may be able to choose from 12 different policies.
For more information on Medicare and Medigap, Texas residents may visit the State Health Insurance Counseling and Assistance Program (SHIP) website at http://www.dads.state.tx.us/ or call (800) 252-9240. Individuals can also visit the Centers for Medicare & Medicaid Services website at http://www.medicare.gov/ or call (800) MEDICARE.
State Child Health Insurance Program (SCHIP)
The Texas Children’s Health Insurance Program (TXCHIP) provides health insurance at modest fees or at no cost to children under age 19 who does not qualify for Medicaid and have limited or no health insurance. For those children that qualify, they must re-enroll every six months to remain eligible for TXCHIP.
For more information on TXCHIP, visit http://www.hhsc.state.tx.us/chip/index.html or call (877) KIDS-NOW.
High-Risk Insurance Pool Program
The Texas Health Insurance Risk Pool (THIRP) is the state high-risk insurance pool program. The program provides access to health insurance coverage for individuals who are denied coverage or deemed “uninsurable” because of a pre-existing medical condition. Under the plan, Hemophilia is considered a pre-qualifying condition, which in this case means that an individual may apply directly to the pool without having to first apply and get rejected by another insurer. Persons with other bleeding disorder conditions may qualify through general eligibility requirements. The premiums under this plan may be higher than the rates for other comparable plans, and a pre-existing condition period may apply. In addition, there is a $1,000,000 lifetime benefit cap.
For more information on THIRP, visit http://www.txhealthpool.org/ or call (888) 398-3927.
General Health Insurance Information
While State law allows insurers to turn down applicants with pre-existing health conditions for individual health coverage, an individual who is eligible for benefits under an employer group health plan cannot be denied coverage because of a health condition. In Texas, as in most other states, Hemophilia and other bleeding disorders can be construed as high cost by insurance carriers and as such applicants may be denied coverage. Any individual that is turned down for insurance can receive coverage through THIRP or other private insurer. Those considering coverage through private insurers should be aware that there are no limits on what price they may be asked to pay.
For more information on state-regulated health plans or to file a complaint, visit the Department of Insurance website at or call (800) 252-3439.
The major factor producers have programs in place to provide factor, at no cost, to hemophilia patients who are without insurance and who meet certain eligibility requirements. To find out about assistance programs being offered providers, go to the following company websites below:
· Bayer Reimbursement Helpline
http://www.kogenatefs.com/, click on Patients & Caregivers
· Baxter Reimbursement Support
· Grifols Reimbursement Department
· Novo Nordisk SevenSECURE Program
http://www.us.novoseven.com/, click on SevenSECURE
· Wyeth Reimbursement Information Line
· ZLB Behring AssuranceSM Program
http://www.cslbehring-us.com, click on Patients and Families
HANDI is the National Hemophilia Foundation (NHF) information resource center and the first stop for consumers seeking information on hemophilia, von Willebrand, and the other bleeding and clotting disorders. The unit answers consumer’s questions, provide quality educational publications, and make referrals to additional sources of assistance. For more information, visit www.hemophilia.org, or call (800) 42-HANDI or (212) 328-3700, or send an email to firstname.lastname@example.org.
Advocating for Chronic Conditions, Entitlements and Social Services (A.C.C.E.S.S.)
The A.C.C.E.S.S. program assists persons with chronic medical illnesses, including hemophilia patients, with state and federal entitlement programs, eligibility for group health insurance under federal law (COBRA and HIPAA), and health insurance through state high-risk pools and other alternatives. The program is administered by Accredo Health, Incorporated and its affiliates, Hemophilia Health Services, Inc. and Accredo Therapeutics, Inc. For more information, visit http://www.accredotx.com/access/access.html or call 888-700-7010.
Patient Services Incorporated (PSI)
PSI assists persons with chronic medical illnesses, including hemophilia patients, in accessing health insurance and pharmacy co-payment assistance programs. For more information, visit http://www.uneedpsi.org/ or call 800-366-7741.