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The Advisory Board and Standards of Care/Access Campaigns

NHF is working with chapters, associations and other community groups to advance legislation that will improve or protect access to care in each state. In some states, we are working on legislation establishing statewide Bleeding Disorders Advisory Boards. These bodies would provide expertise and long-term focus to help state governments meet the needs of the bleeding and clotting disorders community. In other states, we are working with our chapters to enact “standards of care” legislation to protect patient access to hemophilia treatment centers, the full range of clotting factor products, home supportive services, and everything that constitutes medically needed high-quality care.

Below are sample documents to help you initiate campaigns in your state.