The organizations listed below provide important services to the bleeding and clotting disorders community:
The National Hemophilia Foundation (NHF)
NHF seeks to promote and enhance the quality of life for all people with coagulation disorders through education, advocacy and research. Towards these ends, NHF engages in a number of program initiatives along with its 48 chapters nationwide. NHF supports important clinical research, funds educational outreach, issues medical advisories, convenes educational meetings and symposia, advocates for improved treatments, makes policy recommendations, and promotes communication and cooperation among all members of the community.
For more information about NHF, click here.
To learn how you can help, click here.
NHF also offers a wide range of educational services and publications through HANDI, its information resource center.
For a list of currently available NHF publications, click here.
The HANDI staff also collects and distributes all types of information related to bleeding and clotting disorders. HANDI can provide information over the phone, via fax, mail or email. HANDI’s information request line can be reached toll-free by calling, 1-800-42HANDI. To learn more about HANDI, click here. To reach HANDI via email, click here.
NHF Member Chapter Organizations
NHF’s 48 state and local chapters are wonderful resources for networking with people affected by bleeding disorders. Many chapters provide valuable information, materials, advocacy and support to area families. Some chapters assist individuals with accessing appropriate healthcare, offer support groups, become involved in state-based advocacy issues, and provide financial assistance and other special services. While many people with bleeding disorders have found the services provided by their chapters indispensable, others have built upon their chapter experiences to take on leadership roles within the community.
Click here to Link to NHF’s Chapter Center
Hemophilia Treatment Centers (HTCs)
There are approximately 140 hemophilia treatment centers in the United States that offer comprehensive medical care to people with coagulation disorders. Each of these federally-funded hospitals is staffed by at least a hematologist, nurse, social worker and physical therapist. These medical professionals work together as a team to provide quality treatment, education and psychosocial support services for patients and their families.
To find the HTC located closest to you, visit the U.S. Centers for Disease Control and Prevention HTC Directory.