Steps for Living is NHF’s new online, life stages education curriculum. Building on the success of NHF’s First Step program, for families with newly diagnosed children, Steps for Living will provide an outlet for families through which they can continue their education and involvement with their local chapter at each step of their child’s growth and development, to meet his/her changing needs.
The Steps for Living curriculum will contain separate modules for each of the following age groups:
- First Step—birth-8 years old
- Next Step—9-15 years old
- Stepping Out—16-25 years old
The online program will provide age-appropriate, targeted information and resources for consumers, chapters and staff at hemophilia treatment centers (HTCs). First Step will focus on the basics of bleeding disorders, negotiating parent/provider relationship and childcare issues. Next Step will provide information about working with schools; gaining independent at home; and healthy decision making. Stepping Out will cover such topics as disclosure, dating, career choices and independence—and much more.
Stay tuned for more information and resources, once this section of NHF’s Web site goes live.
Steps for Living is made available through a cooperative agreement between NHF and the U.S. Centers for Disease Control and Prevention (CDC).