Basic Concepts of Hemophilia (Limit 2)
Basic Concepts of HemophiliaThis book, designed by the Centers for Disease Control and Prevention, is broken into 10 modules ranging from a basic explanation of hemophilia to complications and treatment of the disorder. Each module contains review questions for the provider to work with the parent to help them better understand hemophilia.

Caring for Your Child with Hemophilia (2001)
(Como Cuidar de su Hijo con Hemofilia)
This publication provides parents of children newly diagnosed with hemophilia answers to their basic questions. Many aspects are covered such as inheritance, current treatments, as well as sports, and insurance issues. The symptoms of different types of bleeding episodes are discussed explaining the severity of particular injuries. Provided are tips for babies including immunization, nutrition, and dental care. Also discussed are the social and emotional issues children with hemophilia experience through the developmental process. (33 pages)

The Child with a Bleeding Disorder: First Aid for School Personnel (2001)
(El Nino que Padece de un Desordes de Sangrado: Primeros Auxilios Para el Personal de la Escuela) - tambien esta disponible en espanol
A new publication aimed at school nurses and teachers who have a student with a bleeding disorder. Descriptions of typical injuries and other incidences when bleeding occurs are discussed with proper steps that need to be followed as well as standard precautions and medications.

The Child with a Bleeding Disorder: Guidelines for Finding Childcare (2000)
This publication provides a helpful guide for parents of children with bleeding disorders as they make choices about in-home care, cooperative childcare, center-based childcare and choosing a daycare center. Also included is a checklist of provider services and helpful hints for babysitters and other family caretakers. (8 pages)

Hemophilia Treatment Center Directory
Updated biannually by the Centers for Disease Control and Prevention, this guide provides primary contact information for HTCs in the US. The HTC directory will be useful to both consumers and providers.

Home Infusion Magnet
(Iman por Inyeccion en Casa)
This magnet (tambien esta disponible en espanol) provides a reminder of safe infusion practices.

Inheritance of Hemophilia (1998)
This booklet provides a sophisticated explanation of the genetic transmission of hemophilia. It also describes tests used to find out if the hemophilia gene is present, particularly in women who may carry the gene but show no signs of excessive bleeding. Reproductive choices for men and women with the hemophilia gene are reviewed. (15 pages)

Inherited Bleeding Disorders and Child Abuse Investigations (1998)
A resource for emergency medical providers, healthcare workers, day care and school personnel, and child protection advocates, this booklet is intended to prevent unwarranted charges of abuse filed against parents or guardians of children with bleeding disorders. It explains hemophilia and von Willebrand disease and describes typical patterns of bruising or bleeding in children with the disorders. (6 pages)

NHF Consumer Bill Of Rights and Responsibilities for Healthcare Services (1995)
This brochure sets out 15 basic medical rights for all people with bleeding disorders. (3 pages)

Nosebleeds (2007)
Created in collaboration with NHF’s Nursing Working Group and nurses from Canada, this publication describes the unique issues a person with a bleeding disorder faces with a nosebleed. Causes of nosebleeds, basic treatment, when to consult the bleeding disorder treatment center and prevention issues are discussed. (7 pages)

Single Copy		Bulk Order (2 or more)
Member	Non-member	Member	Non-member
free	free	$1.20	$1.60

Physical Therapy in Bleeding Disorders (2000)
This booklet provides up-to-date information regarding the latest physical therapy approaches in treating bleeding disorders. Physical therapy evaluation, modalities, types of splints, forms of exercise, and developmental issues are presented in detail. (30 pages)

Playing it Safe: Bleeding Disorders, Sports and Exercise
(Jugando a lo Seguro) - tambien esta disponible en espanol
This booklet presents valuable information for the person with a bleeding disorder or his/her parents to consider before participating in sports activities. Topics covered include conditioning, stretching and flexibility, weight training and cardiovascular exercise. A safety rating chart with many sports and exercise regimens is provided as well.

Treatment of Hemophilia: Current Orthopedic Management (1995)
by Marvin S. Gilbert, MD, and Jerome D. Wiedel, MD - This publication covers a wide range of orthopedic treatment issues, including hemophilic arthropathy, clinical considerations, diagnostic imaging, surgical and nonsurgical treatments, hemophilic synovitis, soft-tissue bleeding, the hemophilia pseudotumor, fracture care, other musculoskeletal problems, and HIV infection. (25 pages)

Universal Data Collection (UDC)
The Centers for Disease Control and Prevention (CDC) has developed information cards in English and Spanish to describe the Universal Data Collection System (UDC). This CDC project monitors the health of the community. These cards are excellent educational tools for chapters and treatment centers.

Von Willebrand Disease: Just the FAQs (2000)
(La Enfermedad de von Willebrand: Preguntas Frequentes) - tambien esta disponible en espanol
For both males and females with von Willebrand disease, this booklet describes the signs and symptoms of the disorder, explains its inheritance, provides a summary of the classification system for vWD, explains treatment options and products, and discusses lifestyle concerns. (21 pages)

A Guide for Women and Girls with Bleeding Disorders (1998)
by Jill Moberly - This booklet is an indispensable resource for every woman or girl with von Willebrand disease or a factor deficiency. Symptoms, diagnosis, and treatment options are described in depth, and there are discussions of the safety of blood products and of obstetric and gynecologic concerns. The final section provides practical advice for living with a bleeding disorder. (50 pages)

Project Red Flag: Heavy Periods or a Bleeding Disorder? (2001)
This handout raises awareness in women who may have heavy periods and/or symptoms that may be caused by a bleeding disorder.

Project Red Flag: For You and Your Doctor (2001)
This handout gives comprehensive facts about women’s bleeding disorders such as von Willebrand Disease and sources for obtaining further information.

TEMPORARILY UNAVAILABLE!

Project Red Flag: Facts You Should Know About Bleeding Disorders (2001)
This brochure helps consumers in communicating with their doctor about the importance of being tested for a bleeding disorder.

TEMPORARILY UNAVAILABLE!

Project Red Flag: Tips For Living With Your Bleeding Disorder (2001)
This handout gives valuable tips for women with von Willebrand Disease.

TEMPORARILY UNAVAILABLE!

Hemophilia Treatment Centers: Making a Lifetime of Difference
(Los Centros de Tratamiento de la Hemofilia) - tambien esta disponible en espanol
This brochure highlights the top ten reasons for getting an annual comprehensive checkup at a hemophilia treatment center. Free bulk copies are available with space on the brochure to insert your respective chapter / association or hemophilia treatment center’s contact information.

TEMPORARILY UNAVAILABLE!

NHF National Prevention Program: 5 Key Steps Today for Giant Strides Tomorrow
(Pasos Clave Hoy para Grandes Avances Manana) - tambien esta disponible en espanol
This brochure highlights the five prevention messages of the NHF National Prevention Program. Individual space is available for you to insert your respective chapter / association or hemophilia treatment center contact information.

NHF Outreach Guide
This outreach guide was developed to assist those persons who will be identifying and reaching the unserved and underserved people with bleeding disorders–particularly women, rural residents, youth, and adolescents. The guide seeks to foster linkage between these individuals and hemophilia treatment centers, chapters, and other organizations to reduce the complications of bleeding disorders and enhance quality of life.

The Nurses' Guide to Bleeding Disorders (2004)
The Nurses' Guide to Bleeding Disorders is a revision and expansion of the 1995 Hemophilia Nursing Handbook. Now incorporating von Willebrand disease and other bleeding disorders, the guide has been prepared under the supervision of the National Hemophilia Foundation’s Nursing Working Group. It is intended to provide comprehensive information as well as practical ideas to assist nurses at all levels in caring for patients with bleeding disorders. The guide is designed to be both an introduction to nurses new to coagulation and a resource for more experienced nurses. Topics covered in the guide include the following: Hemophilia and von Willebrand disease therapy, women and bleeding disorders, rare coagulopathies, prophylaxis, venous access devices, emergency room care, orthopedic complications and treatment, hepatitis and HIV/AIDS, inhibitors to factor VIII and factor IX, enhancing development in the child with a bleeding disorder, travel and vacation planning, insurance coverage, and wellness.

Physical Therapist's Guide to Bleeding Disorders: An Orientation Manual (2004)
This publication is a comprehensive review of bleeding disorders care. It describes orthopedic complications, exercise, joint range of motion and patient evaluation. NHF publications specific to physical therapy are also included.

My Parents Have HIV/AIDS (1994)
by Stephanie and Kathy Gerus A very personal account (also available in Spanish) of hemophilia and HIV/AIDS written and illustrated by a young girl for other young people. It explains HIV and AIDS in very easy-to-understand terms. This is not only a valuable book for schools but also an important story for parents and children to read together. (31 pages)

Participating in Clinical Trials
This brochure explains what clinical trials are and what they are like for patients, describes what kinds of HIV therapies are being tested in clinical trials, and lists questions to ask before joining a trial. This publication is ideal for patients, their families, and/or healthcare personnel who counsel HIV-positive patients. (6 pages)

Song of Superman Video and Workbook (1993)
Jointly produced by NHF and the Canadian Hemophilia Society, a video and workbook designed to help young people with bleeding disorders come to terms with their HIV status, sexuality, and living with HIV. The video explores issues of disclosure in relationships and safer sex through dramatic scenes and frank testimonials by young people living with hemophilia and/or HIV. The companion workbook contains group exercises that follow each of the main topics of the video and serves as a bridge to discussion. (49 pages)