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MASAC Document #152-Regarding the Inclusion of Thrombophilia

MASAC Document #152

MASAC Recommendations Regarding the Inclusion of Thrombophilia in NHF Research and Educational Efforts

The following document was approved by the Medical and Scientific Advisory Council (MASAC) of the National Hemophilia Foundation on November 8, 2003, and adopted by the NHF Board of Directors on November 9, 2003.

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Funding for hemophilia clinics continues to be flat, and the ability to maintain set-aside services for hemophilia continues to dwindle. In addition, the supply of informed, trained health care providers continues to decrease, and efforts to recruit young physicians into hemophilia care continue to lag.

To address these needs, MASAC recommends the following to NHF:

  1. Expand the research focus of projects funded by the Judith Graham Pool Postdoctoral Fellowship, the Career Development Award, and the NHF Clinical Fellowship Program to include thrombophilia. This will increase the connection between younger and more established investigators and NHF.
  2. Support and lobby for expanded training opportunities in coagulation. NHF-funded training programs, such as a mentored fellow educational program at the NHF annual meeting, will increase the pool of trained physicians who will care for hemophilia patients.
  3. Support advocacy efforts to expand support for hemophilia centers, including federal funding as well as funds from PHS programs, to promote broadly based coagulation programs.
  4. Support efforts to develop thrombophilia advocacy and provide technical assistance as appropriate.
  5. Continue to support provider education in thrombophilia through NHF programs such as the annual meeting.