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NHF eNotes
 

NHF eNotes is NHF's online news bulletin designed to provide the latest news to the bleeding and clotting disorders community.

eNotes—April 2014

Lead Story

Registration Open for NHF’s 66th Annual Meeting in DC

Medical News

FDA Approves First Long-acting rFIX Therapy

NHF’s Nurses’ Guide Updated

Australian Collaboration Produces Bleeding Disorders App

NHF Announces Judith Graham Pool Postdoctoral Research Fellowship Recipients

Advocacy News

Washington Days Advocacy Pays Off

NHF & Community News

NHF’s Spring Soiree and Auction in April

Hola! HemAware Now en español

Join NHF for Twitter Chat on World Hemophilia Day

Hemophilia Walks Spring Forth

Call for NHF Annual Meeting Research Poster Abstracts

Scholarships Abound for Students of All Ages

Royalty Visits Bleeding Disorders Community

Industry News

Novo Nordisk Reports Results of Long-Acting rFVIII Product

eNotes—March 2014

Lead Story

Start Planning for a Capital Experience at NHF’s 66th Annual Meeting in DC

Medical News

Nurses' Guide Updated

Blood Safety News

UK Scientists Improve vCJD Blood Test

Advocacy News

NHF Launches Advocacy Website

Recapping Record-Breaking Washington Days 2014

NHF & Community News

Start Planning for a Capital Experience at NHF’s 66th Annual Meeting in DC

Help NHF Meet GlobalGiving Challenge by March 31

Spring Walks Take Shape

Celebrate Spring with NHF Gala Fundraiser and Auction

Register Now for Summer Inhibitor Education Summits

NHF Announces Call for Annual Meeting Research Poster Abstracts

Video Addresses School Issues

2014 Excellence Fellowship Recipients Announced

Industry News

Bayer Reports Progress for Longer-Acting rFVIII Product

FDA Grants Breakthrough Designation for Bristol-Myers Squibb Oral HCV Therapy

Gilead Files NDA for HCV Combination Therapy

eNotes—February 2014

Lead Story

Register Now for Washington Days 2014

Medical News

Hemophilia B Study Shows Benefit of Secondary Prophylaxis

Register Now for 2014 THSNA Summit

New Website Contains Latest HCV Treatment and Management Recommendations

Advocacy News

New Advocacy Website Coming Soon

NHF Launches National Future Leaders Program

NHF & Community News

Let’s Meet to Tweet on Advocacy Issues

March Symposium for FIX Patients

Do Yourself a Favor, Get a Flu Shot

Hemophilia Walks: Top Teams in 2013, Expanding in 2014

Save the Date: NHF’S 2014 Spring Soiree

Steps for Living Videos You Can Use

Ribbon-Cutting Ceremony for NHF/Novo Nordisk HANDI Library

Industry News

Grifols Changes Name of Hemophilia A Study

Phase 1 Trial Begins for Alnylam’s ALN-AT3

eNotes—January 2014

Lead Story

Gene Therapy Research Using Platelet Cells Could Benefit Inhibitor Patients

Medical News

Baxter Receives FDA Approval for FEIBA for Prophylactic Treatment in Inhibitor Patients

FDA Approves Gilead’s Sovaldi, First Interferon-sparing HCV Therapy

Novo Receives FDA Approval for rFXIII Therapy

Advocacy News

New Year, Newly Insured

NHF & Community News

2014 Hemophilia Walks Top 30

Save the Date: NHF’S 2014 Spring Soiree

Idaho HTC Hosts Grant Award Presentation

Industry News

Biogen and Swedish Orphan Biovitrum Announce Results of Longer-lasting Product Trials

Baxter Seeks Pediatric Indication from FDA for RIXUBIS

eNotes—December 2013

Lead Story

FDA Approves Simeprevir, New HCV Oral Therapy; Approval Pending for Sofosbuvir

Advocacy News

ACA Implementation Continues Amid Website Woes

NHF Partners with PSI in the CAC Program

Save the Date: Washington Days 2014 General Registration

NHF & Community News

CDC Recommends Flu Vaccinations for the Whole Family

Save the Date: Annual Meeting 2014, 2013 Session Recordings on Sale

Hemophilia Walk Season Closes, New Grants for 2014

Save the Date: NHF’s 2014 Spring Soiree

2013 Keepsake Collectable Brightens Your Holidays

Industry News

Enrollment Complete for Baxter’s PROLONG-ATE Study

Progress and Delay for Biogen’s Longer-Lasting rFVIII Therapy

eNotes—November 2013

Lead Story

CHOP Invests in Spark and Gene Therapy’s Future

Medical News

Hematology Researchers Elected to IOM

Advocacy News

Updated Personal Health Insurance Toolkits Available

Save the Date: Washington Days 2014

NHF & Community News

MASAC Issues New and Updated Documents

Indiana HTC Launches Rare Coagulation Disorders Resource Room

No Flu for You, CDC Recommends Vaccination

Annual Meeting Memories, Session Recordings on Sale

Hemophilia Walk Season Closes, New Grants for 2014

Spooktacular Inaugural Halloween Comedy Fundraiser

Keepsake Collectable Snowflake, Perfect for Holiday Giving

Industry News

FDA Approves BLA for Novo Nordisk’s New rFVIII Product

eNotes—October 2013

Lead Story

See You in Anaheim at NHF’s 65th Annual Meeting

NHF & Community News

Don’t Miss Halloween Comedy Fundraiser

Enter Dear Alex Essay Competition--Win a Trip to NYC

Fall for a Hemophilia Walk

New Video Helps Kids with HTC Visit

Nursing Working Group Updates Guide

Buy Your Keepsake Collectable Today

NHF Announces Scholarship Winners

Industry News

Boehringer Fills Trial for Interferon-free HCV Therapy

Sernova and Medicyte Collaborate on Hemophilia A Therapy

Novo’s rFVIII Receives Recommendation for EMA Marketing Approval

eNotes—September 2013

Lead Story

Still Time to Register for NHF’s Annual Meeting

Medical News

Mount Sinai Researchers Discover HCV Can Replicate in Macaques

NHF Announces the 2013 NHF/Novo Nordisk Career Development Award Recipient

ASH to Honor Esteemed Gene Therapy Researcher

Advocacy News

Health Insurance Marketplaces Enrollment Begins Next Month

HHS Announces Marketplace Navigators

NHF & Community News

Put Your Plan in Place During Preparedness Month

Hemophilia Walks Heating Up

NHF’s 2013 Collectable Keepsake Shines

Industry News

FDA Grants Orphan Drug Status to Alnylam’s Hemophilia Therapy

eNotes—August 2013

Lead Story

Annual Meeting Deadlines Extended! Register Now to Receive Annual Meeting Discount, Secure Your Kids’ Spots in Children’s Programs

Medical News

Experimental Hemophilia B Gene Therapy Tricks the Immune System

NHF Offers New Online Provider Education Opportunity

NHF Announces 2013 NHF-Baxter Clinical Fellows, New Institutions Join Program

Advocacy News

Register Now for New Annual Meeting Pharmacy Symposium

Boards of Pharmacy Newsletter Features Story about Hemophilia

Delaware Passes Specialty Tier Bill, Advocacy Continues on Federal Level

NHF & Community News

2013 Hemophilia Walks Still Stepping Out

Industry News

Bayer Announces 2013 BHAP Winners

Novo Nordisk Reports Additional Findings from HERO Study

eNotes—July 2013

Lead Story

Last Call for Annual Meeting Registration Fee Discount

Medical News

Baxter’s Rixubis is First New rFIX Therapy in 15 Years

Abbott’s New Test Screens HCV Genotypes

Advocacy News

HHS Launches New Health Insurance Marketplace Tools

Employer Mandate Delayed Until 2015

NHF & Community News

NHF’s Spring Soiree is a Success

2013 Hemophilia Walks Making Tracks

Donate Your Wheels to NHF

MASAC Issues Updated Treatment Document

Strategic Summit Report Now Available

Industry News

FDA Gives Priority Review to Gilead’s HCV Drug Sofosbuvir

eNotes—June 2013

Lead Story

Register Now to Receive Annual Meeting Discount

Advocacy News

ACA Implementation Activity, NHF Advocacy Continues

Pre-Existing Condition Insurance Plan Changes Announced

Blood Safety News

Canada Eases Restrictions on MSM Blood Donations

NHF & Community News

NHF’s Benefit Gala is Tomorrow

Women’s Scholarships Deadlines Looming

Poster Abstracts Due This Month

Last Call for NYLI Applications

2013 Walk Season Keeping Pace

NHF Announces 2013 Excellence Fellowship Recipients

Industry News

FDA Accepts Application for Biogen’s Longer-Lasting FVIII Product

Jansssen’s HCV Therapy Receives FDA Priority Review

Bayer Discontinues rFVIIa Therapy Trial

eNotes—May 2013

Lead Story

Registration Now Open for NHF’s 2013 Annual Meeting in Anaheim

Medical News

Seaweed Derivative Promotes Clotting in Hemophilia Patients

NGC Accepts WFH’s Hemophilia Management Guidelines

Advocacy News

President Releases 2014 Budget Proposal

Affordable Care Act Implementation Continues

NHF & Community News

Apply Online for Annual Meeting First-Time Attendee Grants

NHF Announces Call for Annual Meeting Research Abstracts

Interested in NYLI? Applications Now Available

Register NOW for Summer Inhibitor Summits

2013 Walk Season Makes Strides

Spring Soiree Coming in June

Victory for Women Scholarships Now Available

NHF Announces Chapter Grant Award Recipients

Donate Your Vehicle to NHF

Industry News

Antiviral Oral Combination Treats Certain HCV Patients

Achillion Drug Begins Phase 2 Trial in HCV Patients

Gilead Announces HCV Drug Sofosbuvir Clinical Trial Results

CSL Donates to WFH GAP Program

eNotes—April 2013

Lead Story

Toddler with HIV Potentially Cured

Medical News

Pediatric Organization Urges Ruling Out Bleeding Disorders When Evaluating Child Abuse

Hepatitis Researcher to Receive Canadian Award

Advocacy News

NHF Comments on Letter Regarding Exchanges

Washington Days Breaks Attendance Record

NHF & Community News

Apply Online for Annual Meeting First-Time Attendee Grants

NHF Announces Call for Annual Meeting Research Abstracts

Interested in NYLI? Applications Now Available

Register NOW for Summer Inhibitor Summits

2013 Walk Season Takes Off

NHF Hosts 3rd Annual Spring Soiree

Donate Your Vehicle to NHF

HTRS Scientific Symposium This Month

Industry News

Baxter Submits FDA Application for Prophylactic FEIBA for Inhibitor Patients

Pfizer Halts Development of HCV Drug

FDA Accepts Biogen’s Application for Longer-Lasting FVIII Product

CSL’s FXIII Product Approved for Expanded Use

eNotes—March 2013

Lead Story

NHF Comments on Medicaid, Marketplaces Rule

Medical News

NIH Funding Cuts Could Limit Research Grants and Jobs

NHF & Community News

CDC Hosts FB Chat for Women This Week

Last Chance to Buy Annual Meeting Recordings

Sign up for MentorConnect

Join NHF’s First Twitter Chat

2013 Walk Season Takes Off

Registration Still Open for Hemophilia B Symposium

HTRS Scientific Symposium Coming in April

NHF Posts Updated Scholarship List

Apply Now for Kevin Child Scholarship

NHF’s 65th Annual Meeting in Sunny California

Save the Date for Spring Soiree

Web Videos Combine Humor and Education

Industry News

Biogen Reports A-LONG and B-LONG Studies Progress

Gilead’s HCV Therapy Trials On Track

Idenix Ceases Development of Two HCV Drugs

Cangene to Acquire IB1001 from Inspiration

eNotes—February 2013

Lead Story

Washington Days Focus: Hemophilia Program Funding and Specialty Tiers Bill

Medical News

International Study Finds Similar Inhibitor Risk for FVIII Products

Researchers Discover Genetic Links to VWF

New Blood Center in Philadelphia

Advocacy News

Background Information on Washington Budget Policy

NHF & Community News

Still Time to Purchase Copies of Your Favorite Annual Meeting Sessions

NHF’s 65th Annual Meeting—Connecting in California

CDC Still Recommending Flu Vaccinations

Calling All Mentors and Mentees--NHF's MentorConnect Needs You

2013 Walk Season Kicks Off

Save the Date for NHF’s 2013 Spring Soiree

Head to NYC for the March Hemophilia B Symposium

Plan Now for 2013 HTRS Scientific Symposium

Industry News

Industry News for February 2013 eNotes

CSL Behring Enrolls Pediatric Patient in Hemophilia B Study

Green Cross Initiates Phase III Trial of rFVIII Product

Baxter Announces Inhibitor Study Results, Acquisition of Inspiration’s Assets

Apply Now for Pfizer’s ASPIRE Research Awards Program

Biogen Idec Submits FDA Application for Long-Acting FIX Therapy

eNotes—January 2013

Lead Story

Progress Continues in Hemophilia B Gene Therapy Study

Medical News

Study Recruiting Hemophilia Patients with HCV for Clinical Trial

VA Study Reveals “Real World” Results of HCV Treatment with DAAs

FDA Issues Safety Warning for Severe Skin Rashes From HCV Drug Telaprevir

Laser Therapy for Gum Disease Benefits Bleeding Disorders Patients

Advocacy News

Save the Date for NHF’s Washington Days 2013

NHF Comments on Essential Health Benefits Regulation

NHF & Community News

NHF’s 65th Annual Meeting—Connecting in California

Get CDs, MP3s of Your Favorite Annual Meeting Session

Early Flu Season, CDC Urges Vaccinations

Plan Now for the Spring 2013 HTRS Scientific Symposium

Steps for Living Web Site Launches New Section

Industry News

Baxter Presents Data on Developmental Recombinant FIX Product

eNotes—December 2012

Lead Story

Liver Meeting Updates HCV Drug Therapies in Development

Medical News

MASAC Issues Four New Documents

Advocacy News

Save the Date for NHF’s Washington Days 2013

HHS Releases ACA Regulations

NHF & Community News

NHF’s Annual Meeting—Farewell to Florida, Connecting in California

CDs, MP3s of Your Favorite Annual Meeting Sessions

CDC Recommends Flu Shots

Just in Time for the Holidays, NHF’s 2012 Collectable Keepsake

Industry News

Grifols Publishes Research Award Recipients

Novo Nordisk Announces Results from HERO Study, Launches New Mobile App

Inspiration’s OBI-1 Receives FDA Fast Track Designation

Bayer Reports Progress on Study Recruitment for BAY 86-6150

eNotes—November 2012

Lead Story

NHF’s Annual Meeting—Farewell, Florida, California Coaxes

Medical News

Organ Transplants Increasing in HIV Patients

Advocacy News

Essential Health Benefits: Where Are States Now?

NHF Submits Comments to FDA on Patient-Focused Drug Development Initiative

NHF & Community News

Recapping NHF’s 2012 Banner Year for Hemophilia Walks

Order Your 2012 Collectable Keepsake Now!

Industry News

Novo Nordisk Seeks Regulatory Approval for Recombinant FVIII Drug

Abbott Announces Success in HCV Triple Drug Combo Trial

eNotes—October 2012

Lead Story

Register Now for Annual Meeting, Avoid Onsite Fees

Medical News

University of Pittsburgh Recruiting Adults for Prophylaxis Study

NHF Announces 2012 Clinical Fellowship Awardees

ASH Honors Pioneers in Hematology Research

Registration Open for 2013 WFH International Musculoskeletal Congress

Blood Safety News

Australian Scientists Report Breakthrough in vCJD Test

Advocacy News

FDA Announces New Patient Outreach Initiatives

2013 Washington Days Reminder

NHF & Community News

Fall into a 2012 Hemophilia Walk

Nicole Miller-Designed Gifts Can Be Yours

NHF 2012 Keepsake = Symbol of Hope

NHF Announces Kevin Child Scholarship Winner

Vehicle Donations to NHF Benefit You and Us

NHF Announces New Walk Chapters for 2013

Industry News

PBB Reports Progress on New Hemophilia Therapies

Baxter Applies to FDA for New rFIX License

South Carolina Medical Center Receives $400,000 from Aflac

Biogen Reports Positive Results from FIX B-LONG Study

eNotes—September 2012

Lead Story

Register Now to Receive Annual Meeting Discount

Advocacy News

New Reports, Statements Released on Health Reform Implementation

NHF & Community News

Registration Extended for Annual Meeting Kids & Teens/Babycare Programs

September is National Preparedness Month

2012 Hemophilia Walks Get Creative

NHF Announces Women’s Scholarships Winners

Industry News

FDA Rescinds Exclusivity for Octapharma’s Wilate®

Inspiration Announces Global Agreement with Ipsen

Setbacks for Hepatitis C Drugs in Clinical Trials

eNotes—August 2012

Lead Story

Only 1 Week Left to Receive 15% Discount on Annual Meeting Registration

Medical News

Women with VWD Risk Postpartum Hemorrhage

Advocacy News

NHF and Chapters Respond to Health Reform Implementation

NHF & Community News

Join the 2012 Hemophilia Walks Still Making Tracks

MASAC Issues Four New Documents

Industry News

Bayer Enrolls Patients in Longer-acting rFVIII Trial, Announces Kogenate® Trial Results

Novo Nordisk Announces HERO Study Results

Baxter Announces New ADVATE Dosage Strength

FDA Puts Clinical Hold on Inspiration’s Trials of rFIX

Bayer Announces 2012 BHAP Award Recipients

eNotes—July 2012

Lead Story

Last Chance for Annual Meeting Registration Discount

Medical News

Michigan Researchers Create Stem Cell Lines for Hemophilia B

NHF & Community News

Deadline Nearing for Victory for Women Scholarship

Join the 2012 Hemophilia Walks

Arthritis Foundation Launches Interactive Workshop

EEOC Settles Discrimination Suit Against Employee with Hemophilia

Industry News

Baxter and Chatham Partner to Develop Hemophilia Treatments

CSL Behring Announces Orphan Drug Designation for rFIX Therapy

eNotes—June 2012

Lead Story

Registration Now Open for NHF’s 2012 Annual Meeting in Orlando

Medical News

Experts Seek Consistent HCV Nomenclature

Advocacy Updates

Recap of 2012 Social Work Insurance and Reimbursement Conference

Health Reform in Your Backyard: State Exchange Update

Save the Date: Washington Days 2013

Blood Safety News

Government Studies’ Data To Determine Possible Reversal of MSM Blood Donation Ban

NHF & Community News

Last Call for Annual Meeting Research Abstracts

Deadline Nearing for Annual Meeting First-time Attendee Grants

Nominations Open for Annual Meeting Awards

Deadline Extended for Victory for Women Scholarship

Still Time to Register for Summer Inhibitor Summits

Join the 2012 Hemophilia Walks

Successful Spring Soiree

NHF Announces New Videos for Young People with Hemophilia

ATHNdataset Tops 10,000 Patients

Industry News

Achillion Begins Trial of New HCV Drug ACH-3102, Announces Fast Track Status

NasalCEASE® Gives Back to NHF Research

eNotes—May 2012

Lead Story

Researchers Combat HIV with Engineered Stem Cells

Advocacy Updates

A Legislative Push to Control Prescription Drug Costs

Insurance and Advocacy Tools Available on NHF’s Web Site

The State’s Perspective: Early Market Reforms

NHF & Community News

Mark Your Calendars for NHF’s 2012 Annual Meeting in Orlando

NHF Announces Call for Annual Meeting Research Abstracts

Apply Now for Annual Meeting First-time Attendee Grants

Register NOW for Summer Inhibitor Summits

2012 Hemophilia Walks Get in Gear

Still Time to Purchase Spring Soiree Tickets

Meet NHF at NEW Thrombosis and Hemostasis Summit

Apply Now for College Scholarships

NHF Working Group Updates Nurses’ Guide

PSI Program Transitions to HFA

Donate Your Vehicle, Help NHF

Last Month to Participate in Quality of Life Survey

APF Publishes Pain Survey Results

AAOS Launches “A Nation in Motion” Campaign

Industry News

Inspiration Files for Licensing of rFIX Drug

CSL Doses First Inhibitor Patients in Trial of New rFVII Product

eNotes—April 2012

Lead Story

Medical College of Wisconsin Receives NIH Grant for VWD Studies

Medical News

Researchers Discover Intricacies of Interferon

Advocacy Updates

Recapping Washington Days 2012

Health Reform in Your Backyard: A Webinar Series for Consumer Advocates

The Affordable Care Act (ACA): Two Years Later

NHF & Community News

Mark Your Calendars for NHF’s 2012 Annual Meeting in Orlando

NHF Announces Call for Annual Meeting Research Abstracts

Apply Now for Annual Meeting First-time Attendee Grants

Register Soon for Summer Inhibitor Summits

Take the APF Pain Survey

2012 Hemophilia Walks Spring into Step

NHF’s Spring Soiree is Coming in May

Meet NHF at NEW Thrombosis and Hemostasis Summit

Donate Your Vehicle, Help NHF

Quality of Life Survey Needs You!

Pioneering Researcher and Hematologist Dies at 87

Industry News

Vertex Announces Interim Results of Telaprevir Studies in Co-Infected Patients

Okairos Begins Next Phase of HCV Vaccine Study

CSL Announces First Patient Screened for New rFVIII Trial

Bayer Stresses Filtration Step for Kogenate® FS Users

REGENX/Chatham to Develop Genetically Based Hemophilia Therapies

eNotes—March 2012

Lead Story

Common HIV Drug Can Cause Kidney Disease

Medical News

Merck Warns of HCV/HIV Drug Interactions

Advocacy Updates

President’s Budget Proposes Supporting Fewer HTCs in 2013

NHF & Community News

NHF’s Announces 2012 Annual Meeting: “Mapping Our Future” in Orlando

Apply Now for Annual Meeting First-time Attendee Grants

Register Now for FIX Conference This Month

2012 Hemophilia Walks Hit the Pavement Soon

Save the Date for NHF’s Spring Soiree

Meet NHF at NEW Thrombosis and Hemostasis Summit

HOG Launches New Online Handbook

Donate Your Vehicle, Help NHF

Quality of Life Survey Needs You!

Industry News

CSL Behring Updates Therapies in Development

Pfizer Announces New BeneFIX® Vial Size

eNotes—February 2012

Lead Story

Preliminary Recommendations for Protease Inhibitors in Co-infected Patients

Medical News

Investigators Publish Two Studies Using UDC Data

Advocacy Updates

Last Chance To Register for Washington Days 2012

NHF & Community News

Register Now for Blood Disorders in Public Health Conference in Atlanta

Hemophilia B Symposium Coming in March

2012 Hemophilia Walks Hit the Pavement Soon

Save the Date: for NHF’s 2012 Spring Soiree

Meet NHF at NEW Thrombosis and Hemostasis Summit

NHF Posts Updated College Scholarship List

WFH Appoints New CEO/Executive Director

MASAC Issues Three New Documents

NHF Announces Newly Named NHF/Novo Nordisk HANDI Library

Industry News

CSL Announces Site for Longer-Acting Recombinant FIX Study

AMT’s Hemophilia B Gene Therapy Program Granted Orphan Drug Status

Catalyst Initiates Phase I Trial for rVIIa Product for Inhibitors

Achillion’s HCV Drug Receives Fast Track Designation

eNotes—January 2012

Lead Story

Research Breakthrough in Gene Therapy for Hemophilia B

Medical News

TSA Launches Helpline for Fliers with Medical Conditions and Disabilities

FDA Approves HIV Vaccine for Human Trials

Advocacy Updates

Register Now for Washington Days 2012

HHS Releases Guidance on Essential Health Benefits

NHF & Community News

Last Chance to Buy Annual Meeting Session CDs

Planning Underway for 2012 Hemophilia Walks

NHF Announces Spring Soiree Honorees

Participants Needed for Quality of Life Survey

High School Athlete Was Semifinalist for Rudy Awards

Attend Blood Disorders in Public Health Conference in Atlanta

NHF Collaborates on New Bleeding and Clotting Conference

Industry News

Baxter Announces Approval of ADVATE for Prophylaxis and Longer-Acting rFVIII Trial

eNotes—December 2011

Lead Story

Farewell Windy City, Florida to Follow

Medical News

BloodCenter of Wisconsin Adds New VWD Tests

Investigators Create Therapy-Producing Blood Vessels in Mice

Researchers Compare Pharmacokinetics of Two VWD Therapies

Advocacy Updates

Advocacy Today and Tomorrow

Save the Date for Washington Days 2012

NHF & Community News

Now’s the Time to Buy Your Annual Meeting Session CDs

Participants Needed for Quality of Life Survey

Three New Ways to Support NHF

NHF’s 2011 Hemophilia Walk Season is a Success

NHF Announces Collaboration with New Bleeding and Clotting Conference

Plan Now for Blood Disorders in Public Health Conference in Atlanta

Industry News

FDA Approves Pfizer’s BeneFIX® 3,000 IU Dosage

eNotes—November 2011

Lead Story

You Can Register Onsite for NHF’s Annual Meeting in Chicago

Medical News

New Practice Guidelines for HCV Genotype 1

UNC Investigators Report HIV Replicates in Other Cells

Take Time to Participate in the Quality of Life Survey

Advocacy Updates

NHF Testifies at HHS Health Benefits Meeting

NHF & Community News

Teens Needed for Annual Meeting Focus Groups

NHF’s 2011 Hemophilia Walks Wind Down

Industry News

Baxter’s Recombinant VWF Product Starting Phase 3 Clinical Trial

Bayer Standardizes Syringe for Kogenate®FS Vial Sizes

eNotes—October 2011

Lead Story

Register for NHF’s Annual Mtg in Chicago, Win a Trip to Orlando

Medical News

CDC Revises Guidelines to Reduce Transplant-Related Infections

HCV Drug Resistance Test Now Available in US

Kidney Damage Elevated in Patients with HIV and Diabetes

Blood Safety News

UK Lifts Lifetime Ban on Blood Donations from MSM

Advocacy Updates

Plasma Users Group Takes Stand on Health Reform and Medicare

NHF & Community News

NHF and CDC Invite Teens to Join Annual Meeting Focus Groups

Fun and Fundraising at NHF’s 2011 Hemophilia Walks

eNotes—September 2011

Lead Story

New Guidelines to Prevent Blood Clots in Pregnant Women

Medical News

NHF Recruiting Participants for HERO Survey

NC Chapter Seeks Participants for Quality of Life Study

Blood Safety News

CDC Reports Transmission of Babesia in Blood Transfusions

Advocacy Updates

Save the Date for Washington Days 2012

GAO Releases Health Reform Implementation Report

NHF & Community News

Register Now To Receive Annual Meeting Discount

Registration Extended for Annual Meeting Kids & Teens/Babycare Programs

Last Chance To Apply for NHF’s National Youth Leadership Institute

Fall into Fun at NHF’s Hemophilia Walks

NHF Announces New Walk Chapters for 2012

2012 Spring Soiree Honorees Unveiled

September is National Preparedness Month

NHF Announces 2011 Kevin Child Scholarship Winner

Pain Awareness Month Activities

Industry News

Pfizer Announces Improvements to XYNTHA® and BeneFIX®

eNotes—August 2011

Lead Story

Register Now To Receive Annual Meeting Discount

Medical News

NHF Selects New NHF-Baxter Clinical Fellows

NHF Awards Two Judith Graham Pool Postdoctoral Research Fellowships

NHF Announces 2011 NHF/Novo Nordisk Career Development Award Recipient

Advocacy Updates

HHS Releases Next Steps on MSM Blood Donation Issue

Congress Passes Legislation to Raise Debt Ceiling

New Contact Information for NHF Washington Representatives

NHF & Community News

Apply Now for NHF’s National Youth Leadership Institute

Soak up the Sun and Have Fun at NHF’s Hemophilia Walks

NHF Welcomes Hawaii Chapter

September is National Preparedness Month

Registration Open for 2012 National Conference on Blood Disorders

Industry News

Baxter Reports Progress on Hemophilia and Recombinant VWF Treatments

Biogen Idec and Swedish Orphan Biovitrum Report Clinical Progress

CSL Donates Factor to WFH’s GAP Program

Inspiration Presents Data on Recombinant FVIII Product

Bayer HealthCare Announces 2011 BHAP Winners

eNotes—July 2011

Lead Story

Genome "Editing" Corrects Hemophilia B in Mice

Advocacy Updates

National Prevention Strategy Released

HHS Finalizes Appeal Process for Health Insurance Denials

NHF & Community News

Register Now To Receive Annual Meeting Discount

Check out NHF's New Steps for Living Web Site

Stride Right Into Summer, Join a Hemophilia Walk

Sample NHF's 2011 Summer Camp Directory

NHF Announces Victory for Women Grant Recipients

APF Launches Pain Campaign for Hispanics

Industry News

FTC Approves Grifols-Talecris Merger, Kedrion Acquisition of Koate-DVI

eNotes—June 2011

Lead Story

NHF Announces New Board Chair, Officers and Members

Medical News

FDA Approves Two New HCV Drugs

Advocacy Updates

PCIPs Enrollment Now Easier, Less Expensive

Bleeding Disorder SAFE Act Reintroduced in Congress

NHF & Community News

Registration Open for NHF’s Annual Meeting in Chicago

Visit Steps for Living, NHF’s New Online Education Resource

Last Chance To Apply for Annual Meeting Grants for First-Timers

Poster Abstracts Deadline Extended for Annual Meeting

Still Time To Register for Summer Inhibitor Summits

2011 Hemophilia Walks Step It up This Summer

Sample NHF’s 2011 Summer Camp Directory

NHF’s MASAC Issues Three New Recommendations

Industry News

FDA Approves Longer Storage for Bayer’s Kogenate® FS

CSL Behring Receives NORD Corporate Award

eNotes—May 2011

Lead Story

Michigan Researchers Develop Disease-Specific Stem Cell Lines

Medical News

Penn Reviews 20 Years of Gene Therapy Research

Advocacy and Legislative Updates

FY 2011 Federal Funding Update

Labor Department Releases Health Insurance Benefits Survey

NHF and Community News

Spring Soiree, A Smashing Success

Meet Us in the Windy City at NHF’s Annual Meeting

Last Call for Annual Meeting Poster Abstracts

Apply Now for Annual Meeting Grants for First-Timers

Deadline Nearing for V4W Academic Scholarships

Apply Now for Kevin Child Scholarship

Hemophilia Walks Coming Your Way

Register Now for Summer Inhibitor Summits

NHF To Launch Online Education Curriculum

2011 Summer Camp Directory Coming Soon

Industry News

Amunix to Collaborate with Biogen Idec on Recombinant Therapies

Novo Nordisk Launches Virtual Surgical Center

eNotes—April 2011

Lead Story

Report Targets Source of Contaminated Alcohol Pads

Advocacy and Legislative Updates

HHS Releases National Heath Care Strategy

NHF and Community News

NHF Hosts Spring Soiree This Week

NHF’s Annual Meeting: Meet Us in the Windy City

NHF Announces Call for 2011 Annual Meeting Poster Abstracts

Apply Now for Annual Meeting Grants for First-Timers

Women Can Apply for V4W Academic Scholarships

NHF Accepting Kevin Child Scholarship Applications

Hemophilia Walks Coming Your Way

Register Now for Summer Inhibitor Summits

NHF Announces New Online Education Curriculum

Industry News

MedPro Rx Supports KIDBase Program

eNotes—March 2011

Lead Story

FDA Approves FXIII Deficiency Product

Medical News

Study Shows Benefits of Early Prophylaxis in Children

International Study Finds Misdiagnosis in Rarest VWD Type

Blood Safety News

UK Scientists Create vCJD Blood Test

New Plasma Test Screens for Parvovirus B19 and Hepatitis A

Advocacy and Legislative Updates

Hundreds Converge on Capitol Hill for Washington Days 2011

Government Eases Eligibility Requirement for Children in PCIP

NHF and Community News

NHF’s Annual Meeting: Meet Us in the Windy City

NHF Announces Call for 2011 Annual Meeting Poster Abstracts

Apply Now for Annual Meeting Grants for First-Timers

Women Can Apply for V4W Academic Scholarships

NHF Accepting Kevin Child Scholarship Applications

2011 Hemophilia Walk Season Officially Opens

Baxter Healthcare Commits $1.25 million for Hemophilia Walk

Support Victory for Women—Share the Video, Buy a Scarf

Plan Now for Inhibitor Summits This Summer

CDC Guide Available for Hemophilia Healthcare Providers

Industry News

Inspiration Biopharmaceutical’s Recombinant FIX Performs Well in Clinical Trial

Grifols’ Alphanate Label Reflects Capacity to Prevent TSE Infection

Novo Unveils Mobile App to Improve Bleeding Disorder Diagnosis

CSL Donates FVIII to WFH Program

eNotes—February 2011

Lead Story

Millions in Grants for UF’s Hemophilia Research Program

NHF and Community News

Last Chance to Register for Washington Days 2011

Still Time To Buy Annual Meeting Session CDs

Register Now for Hemophilia B Symposium

NHF Accepting Kevin Child Scholarship Applications

Apply Now for Annual Meeting Grants for First-Timers

CDC Guide Available for Hemophilia Healthcare Providers

Support Victory for Women—Share the Video, Buy a Scarf

2011 Hemophilia Walk Season Kicks off Next Month

Industry News

CSL Announces LEAD Grant Recipients

Grifols Develops Flash Drive for Hemophilia Patients

eNotes—January 2011

Lead Story

Hemophilia B Gene Therapy Trial Yields Promising Results

Medical News

Survey Underscores HTC Prophylaxis Adherence

Blood Safety News

Red Cross Bans Blood Donations from CFS Patients

FDA Committee Discusses Emerging Blood Supply Threats

NHF Comments on Biosimilars Approval Process

NHF and Community News

Register Now for Washington Days 2011

Purchase Annual Meeting Session CDs Now

Support Victory for Women—Share the Video, Buy a Scarf

2011 Hemophilia Walk Season Has Begun

NHF’s MASAC Issues Two New Documents

Collecting for a Cause at Annual Meeting

Industry News

Novo Reports Progress on Two Therapies

Biogen Idec and Swedish Orphan Biovitrum Announce Trial of Longer-Acting rFVIII

Baxter Presents New VWD Treatment Data

eNotes—December 2010

Lead Story

Rare Case of Transfusion-Transmitted HIV Infection Reported

Advocacy and Legislative Updates

NHF Responds to IOM Health Benefits Survey

Take Online Consumer Assessment Survey

NHF and Community News

Good-bye Bayou. See You in Chicago!

Annual Meeting Sessions Now on CD

NHF Extends Deadlines for Letters of Intent for JGP Postdoctoral Research Fellowship and Career Development Award

Support Victory for Women—Share the Video, Buy a Scarf or Calendar

Save the Date for Washington Days 2011

Successful Walk Season Crosses Finish Line

Industry News

Inspiration Reports Clinical Study of OBI-1 in Hemophilia A Patients

Octapharma Announces First Trial Recipients of rFVIII from Human Cell Line

Baxter to Acquire Archemix’s Hemophilia Therapy Assets

“Next Generation” of HeliTrax® System Now Available

eNotes—November 2010

Lead Story

Plants Help Prevent Inhibitors and Allergic Reactions

Medical News

Study Shows Oral Tranexamic Acid Treats Menorrhagia

Actavis Issues Pain Patch Voluntarily Recall

Advocacy and Legislative Updates

IOM Releases Report on Rare Diseases

HHS Waives Annual Cap Rules in Certain Circumstances

Law Signed to Improve Access to Clinical Trials

NHF and Community News

Still Time to Register for NHF’S Annual Meeting in the Big Easy

Consensus Conference Will Be Conducted During NHF’s Annual Meeting

Vote for NHF to Win a Grant to Fight Obesity

Successful Walk Season Crosses Finish Line

NHF Announces Kevin Child Scholarship Winner

Industry News

Octapharma Announces Research Application Deadline and Launch of New Web Site

eNotes—October 2010

Lead Story

Research Update: Lab Rats Could Enhance Hemophilia Research

Medical News

Review of Care and Treatment: Bleeding Disorders Patients in the ER

Wall Street Journal Article Stresses Importance of Medical IDs

Advocacy and Legislative Updates

Governors Decide on Key Legislation

NHF Co-Hosts Washington Premiere of “Bad Blood”

NHF and Community News

Register Now for NHF’S Annual Meeting in the Big Easy

Consensus Conference Convenes During NHF’s Annual Meeting

Walk Forward This Fall

Online Education Modules Accessible to Providers Anytime

eNotes—September 2010

Lead Story

Research Update: DNA Affects VWD Testing in African Americans

Medical News

Baxter Issues Drug Warning for FEIBA Products

CHOP Researchers Study Factors V and VIII Activation

London Researchers Study Menorrhagia in Girls with Bleeding Disorders

Advocacy and Legislative Updates

NHF Comments on Insurance Regulations

NHF and Community News

Register Now for NHF’s Annual Meeting in the Big Easy

Walk Forward This Fall

NHF Announces Nursing and Social Work Fellowship Recipients

Be Heard During Pain Awareness Month

NHF Announces PRF Scholarship Winners

Industry News

Sign up for PPTA’s September Health Reform Webinar

Chicago HTC Receives Octapharma Research Award

Baxter’s ADVATE® Maintains Safety, Low Inhibitors Risk in Study

FDA Approves New Syringe for Pfizer’s XYNTHA®

NovoSeven® RT Receives FDA Approval for Larger Vial Size

eNotes—August 2010

Lead Story

Register Soon to Receive Annual Meeting Discount

Advocacy and Legislative Updates

New Health Insurance Plans to Provide Free Preventive Care

Blood Safety News

Federal Blood Safety Committee Reviews Donor Deferral Rules

NHF and Community News

2010 Hemophilia Walks Hitting the Pavement

Last Chance to Register for Inhibitor Summits

CSL Behring Announces 2010 Junior National Championships

Research is Our Future Reaches the Social Network

NHF’s MASAC Issues New Documents

Industry News

Biogen Idec and Swedish Orphan Biovitrum Report Progress on Hemophilia Therapies

Pfizer Reports on Hemophilia Studies at WFH Congress

UCF Professor Receives Research Grant from Bayer

PPTA To Host Health Reform Webinar

eNotes—July 2010

Lead Story

NHF Announces New Board Chair, Members

Medical News

Swedish Study Assesses Osteoporosis Prevention in People with Severe Hemophilia

Results of Obesity Review in Mississippi’s Hemophilia Population

Researcher Receives NIH Grant for Hemophilia A Inhibitor Study

Advocacy and Legislative Updates

New Regulations Released Affecting Health Insurance Market

NHF Represented on Key Health Reform Working Group

Blood Safety News

American Red Cross Fined More Than $16 Million for Blood Safety Violations

NHF and Community News

Register Now to Receive Annual Meeting Discount

2010 Hemophilia Walks Still Underway

Still Time to Register for Inhibitor Summits

CSL Behring Announces 2010 Junior National Championships

College Scholarships Calling Your Name?

2010 Camp Directory Now Available

NHF Announces 2010 Judith Graham Pool Postdoctoral Research Fellowship Recipient

Research is Our Future Nears Campaign Goal

Industry News

CSL Behring Announces Latest LEAD Grant Awards

eNotes—June 2010

Lead Story

FDA Hearing on Expanding Access to Antivirals for HCV Patients

Medical News

Mayo Clinic Study Shows Women with Bleeding Disorders’ Satisfaction with Global Endometrial Ablation

AANP Launches Educational Initiative for Young Women with VWD

2010 NHF-Baxter Clinical Fellowship Award Recipients Announced

Advocacy and Legislative Updates

NHF Presents at FDA Blood Safety Workshop

HHS Secretary Urged to Enforce Ending Lifetime Caps

Blood Safety News

CDC Scientists Profile Threats to Blood Safety

FDA Announces Revised vCJD Industry Guidelines

NHF and Community News

Register Now to Receive Annual Meeting Discount

First-Time Annual Meeting Attendees Eligible for Grants

NHF 2010 Walk Season in Full Stride

Register Now for Summer Inhibitor Summits

CSL Behring Announces 2010 Junior National Championships

College Scholarships Calling Your Name?

2010 Camp Directory Now Available

Research is Our Future Nears Campaign Goal

Industry News

Octapharma’s Wilate Now Available from Distributors

Grifols to Acquire Talecris, Pending Approval

eNotes—May 2010

Lead Story

NHF’s Response to PPTA Call for Comments on Plasma Standards

Medical News

Mayo Clinic Examines Circumcision-Induced Bleeding

UNC Uses Stimulus Funds for Animal Research Facilities

Mount Sinai Hematologist and Researcher Receives Lifetime Achievement Award

Blood Safety News

NHF Supports Dublin Consensus Statement

Advocacy and Legislative Updates

Maine Passes Law to Ban Health Insurance Caps

National Pain Issues Included in Healthcare Reform Bill

NHF and Community News

Last Chance To Apply for NHF’s PRF Academic Scholarships

Kevin Child Scholarship Applications Due Soon

Got Leadership Skills? NYLI Needs You

NHF’s Annual Meeting: Marching to New Orleans in November

NHF Announces Call for 2010 Annual Meeting Poster Abstracts

Hang Out in the Hamptons with the “Royal Pains” Crew

First-Time Annual Meeting Attendees Eligible for Grants

NHF 2010 Walk Season in Full Stride

Register Now for Summer Inhibitor Summits

Research is Our Future Nears Campaign Goal

2010 Camp Directory Coming Soon

Industry News

Grifols Announces New Needle-Free Factor Mixing Device

eNotes—April 2010

Lead Story

H1N1 Flu Update

Medical News

Research Update: Gene Therapy for Hemophilia B Enters New Development Phase

Agencies Streamline Orphan Drug Submission Process

Advocacy and Legislative Updates

Health Reform Prioritizes Creating National High-Risk Pool

Update on 2011 Budget for CDC’s Hemophilia Program

Congresswoman McCarthy Introduces Bleeding Disorder SAFE Act

Blood Safety News

Health Agencies Investigating Possible Transmission of XMRV via Blood Supply

NHF and Community News

Apply Now for NHF’s PRF Academic Scholarships

Got Leadership Skills? NYLI Needs You

NHF’s Annual Meeting: Marching to New Orleans in November

NHF Announces Call for 2010 Annual Meeting Poster Abstracts

First-Time Annual Meeting Attendees Eligible for Grants

NHF and Baxter Launch 3rd Hemophilia Walk Season

NHF 2010 Walk Season is Underway

2010 Inhibitors Summits Have Arrived

Time to Support Research is Our Future

HemAware Now Online

Passing of Hematologist Robert Janco, MD

Industry News

CSL Behring Awards New LEAD Advocacy Grants

eNotes—March 2010

Lead Story

FDA Warns Consumers of Possible Side Effects Related to Confusing Maalox® Labels

Medical News

H1N1 Flu Update

NHLBI Grants to Drive Stem Cell Research for Blood Disorders

Research Update: Lungs Help Regulate Clotting

Advocacy and Legislative Updates

Advocating En Masse at Washington Days

Blood Safety News

CDC Announces New Surveillance System

NHF and Community News

HemAware Now Online

Leadership Weekend Equips Chapters with Tools and Skills

NHF and Novo Nordisk Launch Campaign for Our Future - Phase II

Apply Now for NHF’s PRF Academic Scholarships

NHF 2010 Walk Sites Now Planning and Preparing

NHF’s Annual Meeting: Marching to New Orleans in November

Industry News

Octapharma USA Announces Research Grants Application Deadline

eNotes—February 2010

Lead Story

Carriers May Opt for Safe Caesarean Delivery

Medical News

H1N1 Monthly Update  

Chinese Study of Pegylated Interferon in Co-Infected Hemophilia Patients

 

BloodCenter of Wisconsin Establishes New Institute

 

Study Shows Benefits of Prophylaxis in Children with Hemophilia B

Advocacy and Legislative Updates

Government Issues Ryan White Report

Federal Advocacy Update

Blood Safety News

FDA’s vCJD Assessment Model Shows Increased Risk

NHF and Community News

Last Chance to Register for Washington Days

NHF’s Annual Meeting: Marching to New Orleans in November

Spring Symposium Focuses on Factor IX

Apply Now for NHF’s PRF Academic Scholarships

NHF 2010 Walk Sites Now Planning and Preparing

Campaign Update

Industry News

MedPro Rx Now Accepting Scholarship Applications

 

Ipsen and Inspiration Partner to Produce Recombinant Factor Therapies

 

Bayer Schering Pharma AG Halts FVIII Study

Biogen Idec and Swedish Orphan Biovitrum Announce Initial Hemophilia B Study Results

eNotes—January 2010

Lead Story

H1N1 Vaccine Distribution

Medical News

New HCV Therapy Shows Promise in Early Trials

FDA Approves New von Willebrand Disease Product

Vigorous Athletic Activity May Not Harm Children with Hemophilia

Advocacy and Legislative Updates

Updated Analysis of Health Reform Bills Available

NHF and Community News

Last Chance to Purchase Annual Meeting CDs

Registration Now Open for Washington Days 2010

"Conversations" Book Available Through HANDI

NHF 2009 Walks Break the Tape

Campaign Update

New MASAC Documents Issued During NHF Annual Meeting

Industry News

MedPro Rx Now Accepting Scholarship Applications

Bayer Provides Summer Leadership Internship

eNotes—December 2009

Lead Story

H1N1 Vaccine Distribution

Medical News

FDA Approves New Indication for Tranexamic Acid

Advocacy and Legislative Updates

Health Reform Overview

Blood Safety News

CDC Reports West Nile Virus Transmission Modes

Limited Use of vCJD Filter in UK Criticized

NHF and Community News

Get Your Annual Meeting CDs Now

Register Soon for Washington Days 2010

NHF 2009 Walks Break the Tape

Campaign Update

Social Media and the Web-- Staying Savvy on Safety and Privacy Issues

Industry News

WFH Receives Largest Donation to Humanitarian Aid Program

Ataluren Trial in Hemophilia Patients with Nonsense Mutations

Baxter Launches Education Advantage Scholarship Program

eNotes—November 2009

Lead Story

H1N1 Vaccine Distribution

Medical News

Study Documents Disparities in Hemophilia A Prevalence

Patients in Italy Respond Well to Hepatitis C Treatment

Research Update: Investigators Review Confusing Case of VWD Misdiagnosis

Advocacy and Legislative Updates

House Passes Health Reform Legislation

Ryan White Program Reauthorized

HIV Travel Ban Lifted

NHF and Community News

It’s a Wrap—Annual Meeting’s Success in San Francisco

Annual Meeting CDs Now Available

Washington Days and Leadership Weekend Link Arms Again 

NHF 2009 Walks Break the Tape, Locations Announced for 2010

Campaign Update

Social Media and the Web-- Staying Savvy on Safety and Privacy Issues

NHF Announces Letter of Intent Deadline for JGP Postdoctoral Research Fellowship

NHF Announces Institutional Application Deadline for Clinical Fellowship Program

Industry News

Biogen Idec and Biovitrum AB Announce Clinical Trials for rFIXFc

Pfizer Acquires Wyeth

Baxter Announces PACT Grant Winners

eNotes—October 2009

Lead Story

FDA Approves Vaccines for H1N1 Virus

Medical News

HTCs Report on Adult Prophylaxis for Hemophilia A

Australian Boys with Bleeding Disorders Perform Well in Fitness Tests

Advocacy and Legislative Updates

Wilkes Takes Center Stage to Spotlight the Underinsured

Update on Lifetime Caps in Health Reform

Health Insurance Reform Update

Standards of Care Legislation Advances in the PA House of Representatives

Tell Your Story

Blood Safety News

Company Reports on vCJD Blood Test at WFH Forum in Montreal

NHF and Community News

NHF Receives CDC Cooperative Agreement Award

Still Time to Register and Save at NHF’s 61st Annual Meeting in San Francisco

NHF Announces New Inhibitor Publication

NHF Walks Step up the Pace

Washington Days and Leadership Weekend Link Arms Again

Join the Bleeding Disorders Community on Facebook and Twitter

Update on Campaign for Our Future

Industry News

Octapharma Holds Symposia During ISTH Congress

Bayer Facility Stays in Berkeley, Slated for Improvements

Wyeth Announces Scholarship Recipients

eNotes—September 2009

Lead Story

Duke Study Links Genetic Determinant with HCV Therapy Success

Medical News

Concerns Still Raised as H1N1 Influenza A (Swine Flu) Cases Spread Nationwide

Research Update: T Cells are Key Players in Immune System Tolerance of Clotting Factor

Advocacy and Legislative Updates

Wilkes Takes Center Stage to Spotlight the Underinsured

NHF Supports CDC’s Proposed Lifting of HIV Travel Ban

Update on Ryan Dant Health Care Opportunity Act

Healthcare Reform: Myths and Misunderstandings

Accessing COBRA Benefits After Layoffs

Blood Safety News

NHF Releases Position on Biosimilars

NHF and Community News

Still Time to Register for Annual Meeting in the City by the Bay

Join the Bleeding Disorders Community on Facebook and Twitter

Calling All Social Media Experts

Hit the Road with NHF’s Walks

NHF Nosebleeds Brochure Now Available in Spanish

NHF Announces PRF Scholarship Recipients

Scholarship Winner Lives for Golf

Philly HTC Wins WFH Award

Update on Campaign for Our Future

Get Involved in Pain Awareness Month Activities

Industry News

Bayer Announces Self-Infusion Training Program and FDA Approval of Larger Kogenate®FS Vial Size

CSL Behring’s Helixate®FS Receives FDA Approval for Prophylaxis in Children

eNotes—August 2009

Lead Story

Research Update: Aging Hemophilia Patients Experience Clinical Challenges

Medical News

Concerns Still Raised as H1N1 Influenza A (Swine Flu) Cases Spread Nationwide

Duke Researchers Review Hysterectomy Risks in Women with VWD

Advocacy and Legislative Updates

Two Days Left to Participate in Healthcare Reform Call-in Campaign

Health Reform Legislation Progress

Straight Talk about Medicare and Healthcare Reform

NHF Joins New Plasma Users Coalition

Blood Safety News

FDA Releases Plasma Screening Guidelines for Parvovirus B19

CEO Represents NHF at Blood Products Advisory Committee Meeting

NHF and Community News

Register Now to Receive Annual Meeting Discount

Hit the Road with NHF’s Walks

Calling All Social Media Experts

Team Hemophilia Shapes up Campers

NHF Announces 2009 Career Development Award and Judith Graham Pool Postdoctoral Research Fellowship Recipients

NHF Announces 2009 Clinical Fellowship Awardees

NHF Announces 2009 Nursing, Social Work and Physical Therapy Fellowships

Donate Now to Campaign for Our Future

Industry News

Flamel and Baxter to Develop Longer-Acting Hemophilia Therapies

CSL Behring Improves Data Management System for Hemophilia A Patients

Bayer Announces 2009 International Awards Recognizing Promising Clinicians, Researchers and Nurses

eNotes—July 2009

Lead Story

Research Update: Synthetic Interferon, a New Option for HCV Patients

Medical News

Concerns Still Raised as H1N1 Influenza A (Swine Flu) Cases Spread Nationwide

Research Update: “Sleeping Beauty” Helps Correct Hemophilia A in Mice

Data Reported on Severe Type 3 VWD Patients

Pioneering Bleeding Disorders Researcher Dies at 87

Advocacy and Legislative Updates

Current State of Health Reform

Blood Safety News

NHF CEO Meets with FDA

NHF Submits Testimony to TSEAC

NHF and Community News

Register Now to Receive Annual Meeting Discount

Scholarships for Savvy Students

Team Hemophilia Shapes up Campers

2009 Hemophilia Walks in Motion

Donate Now to Campaign for Our Future

Industry News

Wyeth and Catalyst to Develop FVIIa Products

eNotes—June 2009

Lead Story

Concerns Still Elevated as H1N1 Influenza A (Swine Flu) Cases Spread Nationwide

Medical News

Research Update: FVIIa Successfully Treats Canine Hemophilia

International Panel To Publish Findings on Menorrhagia

Italian Study Assesses Total Knee Replacement in Hemophilia

Medicare Not Ready to Pay for Genetic Tests for Warfarin Dosing

Obama Appoints NYC Health Commissioner as CDC Director

Advocacy and Legislative Updates

Senate Healthcare Proposals Include Lifting Lifetime Caps

Blood Safety News

FDA Investigation Reveals Heparin Cases Were Isolated

NHF and Community News

Register Now to Receive Annual Meeting Discount

10 Days Left Until Poster Abstracts Deadline

Educational Participant Grants for First-Time Meeting Attendees

Scholarships for Savvy Students

Team Hemophilia Shapes up Campers

NHF Welcomes NYC Chapter

2009 Hemophilia Walks in Motion

WFH Award Goes to Orthopedic Surgeon in Colorado

Donate Now to Campaign for Our Future

eNotes—May 2009

Lead Story

Concerns Raised as H1N1 Influenza A (Swine Flu) Cases are Reported in 41 States

Medical News

Research Update: Gene “Hijacked” to Produce Factor VIII

Research Update: Inhibitor Development in Blacks with Hemophilia A Linked to Genotypes

Research Update: Hemophilia Patients with HCV/HIV Benefit from HAART

Dutch Boys with Hemophilia Demonstrate Physical Fitness

Canadian Researcher Reviews CVADs Side Effects in Immune Tolerance Therapy

Advocacy and Legislative Updates

Fight to Raise Lifetime Caps Advances

NHF and Community News

61st Annual Meeting Registration Now Open—Register Early, Save Money

NHF Announces Call for Annual Meeting Poster Abstracts

Educational Participant Grants for First-Time Meeting Attendees

2009 Hemophilia Walks in Motion

Last Chance for Women To Apply for 2009 PRF Scholarship

Enter the “Fight HIV Your Way” Contest

Mark Your Calendars for Spring Summit 2009

Gifted Art Student Dies at 27

Donate Now to Campaign for Our Future

eNotes—April 2009

Lead Story

Genavia to Access Origen’s Transgenic Animals to Manufacture Factor VIII

Medical News

Study Shows Prophylactic Use of APCC Effective in Inhibitor Patients

Immune Tolerance Study Shows Promise for Hemophilia A

Multi-site Study Compares Menorrhagia Drugs’ Efficacy

Advocacy and Legislative Updates

PriceWaterhouseCoopers Study Demonstrates Need to Raise Lifetime Caps

Blood Safety News

FDA Committee Discusses Additional Blood Safety Measures for Donors

NHF and Community News

NHF Announces Michael O’Connor as New Board Chair

San Francisco Here We Come

Educational Participant Grants for First-Time Meeting Attendees

Limited Funding for First Step Programs

2009 Hemophilia Walks in Motion

Women Encouraged To Apply for 2009 PRF Scholarship

Mark Your Calendars for Spring Summit 2009

Donate Now to Campaign for Our Future

eNotes—March 2009

Lead Story

Obama Administration Demonstrates Commitment to Healthcare

Medical News

Hemophilia B Gene Therapy Vector Shows Promise

Blood Safety News

Report Calls for Compensation for UK Blood Scandal Victims

NHF and Community News

San Francisco Here We Come

Record Turnout for Washington Days

NHF Announces 2009 Hemophilia Walk Sites

Women Encouraged To Apply for 2009 PRF Scholarship

Mark Your Calendars for Spring Summit 2009

Donate Now to Campaign for Our Future

Industry News

Lentigen and Expression to Collaborate on Hemophilia A Therapies

Inspiration Begins Clinical Trial for Recombinant Factor IX Drug

eNotes—February 2009

Lead Story

Bayer Sponsors Team Hemophilia Camp Initiative

Medical News

FDA Licenses First Concentrate for Factor I Deficiency

Study Indicates Stem Cells Can Fight AIDS

NHF and Community News

Record Turnout Expected for Washington Days 2009

Last Chance to Apply for Bayer's Summer Leadership Internship

Time to Register for Hemophilia B Symposium

Women Encouraged to Apply for 2009 PRF Scholarship

NHF Announces Spring Summit 2009

Campaign for Our Future Kicks off at Annual Meeting

NHF Announces 2009 Hemophilia Walk Sites

NACCHO 2009: Camps Are Us

Industry News

FDA Approves ATryn, First Drug from Genetically Engineered Animals

Pfizer To Acquire Wyeth

Blood Safety News

Lawsuits by Taiwanese Hemophilia Patients to Proceed in US Court

UK Government Continues Withholding Blood Contamination Evidence

Advocacy and Legislative Updates

Obama Signs SCHIP Bill; Medicaid Expansion Pending Recovery Bill

eNotes—January 2009

Lead Story

WFH Publishes Haemophilia Issue on Rare Bleeding and Clotting Disorders

Medical News

New Test Developed by SLU Researchers May Predict HCV Therapy Success

University of Rochester Team Makes Progress on Advanced FVIII

NHF and Community News

Two Weeks Left to Register for Washington Days

One Week Left to Order Your Annual Meeting CDs

Apply Now for Bayer’s Summer Leadership Internship

Time to Register for Hemophilia B Symposium

Richard Oliver Johnson, Sr., Dies at 57

Long-time Louisiana Chapter Member Dies at 71

Campaign for Our Future Kicks off at Annual Meeting

NHF Announces 2009 Hemophilia Walk Sites

Industry News

Baxter Announces Recombinant VWD Trial

Avigen Sells Coagulation Drug Rights to Baxter

Blood Safety News

Variant vCJD Case Prompts Fears of New Cases

FDA Approves First Nucleic Acid Test for HIV in Donated Plasma and Tissue

eNotes—December 2008

Lead Story

Wisconsin Researchers Use Bone Marrow to Treat Mice with Hemophilia A

Medical News

Duke Study To Investigate HIV Resistance Factors in Hemophilia

NHF and Community News

Register Soon for Washington Days 2009

Annual Meeting CDs on Sale Now

Campaign for Our Future Kicks off at Annual Meeting

NHF Announces 2009 Hemophilia Walk Sites

New Mild Hemophilia Brochure Available

Industry News

Bayer Schering to Fund HTC Network in China

FDA Grants Orphan Drug Status to Recombinant FIX Product

eNotes—November 2008

Lead Story

NHF CEO Featured in Black Enterprise Magazine

Medical News

Norwegian Researchers Identify Risk Factors for Obstetric Bleeding

Duke Study Shows IUD Can Reduce the Length of Heavy Periods

IHP Launches New Hemophilia Certificare Program for Nurses

Manno Appointed Chair of NYU Pediatrics Department

NHF and Community News

Register Onsite for NHF’s 60th Annual Meeting in Denver

Hemophilia Walks Exceed Expectations

Washington Days and Leadership Weekend Combine Forces in 2009

New Interactive Pain Management Web Site Promotes Communication

Industry News

FDA Approves Prophylactic Use of Kogenate® FS

ADVATE® Performs Well in New Study on Children

Companies Sign Agreement on Factor VIIa Drug Candidate

Blood Safety News

Blood and Product Safety: Everyone’s Responsibility

Advocacy and Legislative Updates

New Law Ensures Insurance Coverage to College Students During Medical Leave

eNotes—October 2008

Lead Story

FDA Reports Low Risk for Heparin Contamination in Factor Products

Medical News

ASH Launches Web Site to Educate Consumers on Blood

Company Issues Warnings After Patients Develop Leukemia

Study Suggests Single Dose Regimen Helps Treat Joint Bleeds in Inhibitor Patients

NHF and Community News

Register for NHF’s 60th Annual Meeting by 10/31 and Save $50

Hemophilia Walks Exceed Expectations

Washington Days and Leadership Weekend Combine Forces in 2009

Nevada Governor Proclaims November 1st Renée Paper Day

Industry News

Grifols Launches New Drug Tracing System

PPTA Web Site Provides Plasma Therapy Information

Blood Safety News

Scottish Researchers Demonstrate TSE-Infection via Blood Donations

eNotes—September 2008

Lead Story

New Study Will Monitor Postpartum Bleeding in VWD Patients

Medical News

ITP Drug Receives FDA Approval

Canadian Researchers Find Some Women at Lower Risk for Recurrent Thrombosis

NHF and Community News

Still Time to Register for NHF’s 60th Annual Meeting in the Mile-High City

NHF Announces PRF Scholarship Winners

The Sky’s the Limit for Scholarship Winner

NHF Introduces New Fundraising Campaign

Hemophilia Walks Coming Your Way

Industry News

CSL Ltd. Acquires Talecris

New Clotting Drug Granted Priority Review by FDA

Blood Safety News

Scottish Man Accuses Physician of Withholding HIV Diagnosis

Advocacy and Legislative Updates

New GINA Guide Available Online

eNotes—August 2008

Lead Story

President Signs Repeal of Ban on Travel to U.S. for People with HIV/AIDS

Medical News

Dutch Study Measures Aerobic Capacity in Boys with Hemophilia

Puget Sound Blood Center Founder/Director/Researcher to Retire

NHF and Community News

60th Annual Meeting Registration—Register Now for Discount

NYLI Deadline Extended

NYLI Rounds up Teens for Texas Retreat

Walk into the New Year—Host a Hemophilia Walk at Your Chapter

American Pain Foundation: Calling All Artists

NHF Introduces New Fundraising Campaign

Team Hemophilia on Tour Racing Ahead

Hemophilia Walks Coming Your Way

NHF Announces 2008-2009 Fellowship and Research Award Recipients

Industry News

NHF Chapters Receive CSL Advocacy Grants

Bayer Acquires Maxygen’s Recombinant Factor VII Drug Candidate

AMT and St. Jude Partner to Develop Hemophilia B Gene Therapy

Ipsen Acquires OBI-1 Drug

Advocacy and Legislative Updates

Lifetime Insurance Caps Bill Introduced In U.S. House of Representatives

eNotes—July 2008

Lead Story

NHF’s MASAC Issues First Standards for Clotting Factor Providers

Medical News

Groundbreaking Researcher Dies at 91

NHF and Community News

60th Annual Meeting Registration—Register Now for Discount

NHF Offers Travel Grants to First-time Annual Meeting Attendees

NHF’s First Step Offers Refresher Course

NYLI Recruits New Leaders

NYLI Rounds up Teens for Texas Retreat

NHF Introduces New Fundraising Campaign

Student Scholarship Information at the Click of a Mouse

Team Hemophilia on Tour Racing Ahead

Hemophilia Walks Coming Your Way

New MASAC Recommendations Issued

Industry News

CSL Behring Awards Researchers

Bayer Honors 2008 Awardees at WFH Congress

First Clinical Trial Completed for Longer-Acting Factor VIIa Drug

Baxter Reports Advances in Preclinical Research

eNotes—June 2008

Lead Story

President Bush Signs Genetic Information Nondiscrimination Act into Law

Medical News

CDC Appoints New Division of Blood Disorders Director

Scientists Report Advances in Novel Gene Therapy Vector

Modified FVIII Protein May Block Inhibitors

Pakistani Physicians Discuss Complications in Women with Bleeding Disorders

NHF and Community News

Registration Still Open for New York State Advocacy Training Day

60th Annual Meeting Registration—Register Early, Save Money

Student Scholarship Information at the Click of a Mouse

Team Hemophilia on Tour Hits the Track at Indy

NYC Hemophilia Walk Exceeds Expectations

NHF’s First Step Offers Refresher Course

NYLI Rounds up Next Group of Leaders

NHF’s It’s Time for Cure Campaign Concludes

PBS Airs Episode on VWD

Industry News

Catalyst Biosciences Developing Factor VIIa Drug for Hemophilia Patients

FDA Approves New Recombinant FVIIa Formulation

New Recombinant Factor IX Drug Reaches Clinical Trial Stage

Advocacy and Legislative Updates

CMS Clarifies Position on SCHIP Eligibility

eNotes—May 2008

Lead Story

Genetic Information Nondiscrimination Act Passes in House and Senate

NHF and Community News

60th Annual Meeting Registration—Register Early, Save Money

Student Scholarship Information at the Click of a Mouse

Team Hemophilia on Tour Hits the Street Running at Indy

Hemophilia Walk Kicks off in NYC in June

Preview of WFH’s 2008 Congress in Istanbul

NHF’s First Step Offers Refresher Course

World Hemophilia Day Focuses on Awareness and Outreach

NYLI Rounds up Next Group of Leaders

Michigan Chapter Honors State Legislators

Industry News

Bayer Launches Electronic Data Device

eNotes—April 2008

Lead Story

Heparin Contaminant Identified

Medical News

Researchers Discover Safer Anti-clotting Therapy

NHF and Community News

NHF's Washington Days Breaks Records and Expands Its Reach

60th Annual Meeting Registration-Register Early, Save Money

Call for Poster Abstracts for NHF's 60th Annual Meeting

Student Scholarship Information at the Click of a Mouse

Preview of WFH's 2008 Congress in Istanbul

NYLI Rounds up Next Group of Leaders

Hemophilia Walk Kicks off in NYC in June

NHF Announces New Board Members

WFH Appoints New CEO

Industry News

Promising New Recombinant Factor IX Drug Receives FDA Approval for Clinical Studies

Wyeth Announces FDA Approval of Recombinant Factor VIII Drug

Drug Candidate for TTP Entering Phase 2 Trial

Advocacy and Legislative Updates

NHF Voices Concern on Proposed Medicaid Changes

eNotes—March 2008

Lead Story

NHLBI Issues First US VWD Guidelines

Medical News

Transplanted Liver Cells Correct Hemophilia A in Mice

Patient Side Effects Cause Baxter To Suspend Heparin Production

CLSI Publishes New Guidelines for Coagulation Testing

NHF and Community News

60th Annual Meeting Registration—Register Early, Save Money

Hemophilia B Spring Symposium This Weekend

Apply Now for PRF Scholarship

Preview of WFH’s 2008 Congress in Istanbul

Hemophilia Walk Kicks off in NYC in June

NACCHO Announces Award Winners

eNotes—February 2008

Lead Story

FDA Approves New HIV Drug for Hard-to-Treat Patients

Medical News

Researchers Discover Minor Leg Injuries Can Increase Thrombosis Risk

FDA Approves Revised Label for Contraceptive Patch

NHF and Community News

Register Now for Washington Days 2008—You Can Make a Difference

NHF Announces 2008-2009 First Step Grants

Mark Your Calendars for Hemophilia B Spring Symposium

PRF Scholarship Announces Women’s 2008 Scholarships

Hemophilia Walk Kicks Off in NYC in June

Industry News

Baxter Developing New Hemophilia B Therapies

Blood Safety News

Unusual vCJD Case Diagnosed in UK

Japanese Victims of HCV Blood Scandal To Receive Compensation

Canadian Government Drops Remaining Charges Against Perrault

Advocacy and Legislative Updates

President Slashes Healthcare in 2009 Budget

eNotes—January 2008

Lead Story

Register Now for Washington Days 2008—You Can Make a Difference

Medical News

Scientists Use Stem Cells To Correct Sickle Cell Anemia in Mice

HTC Publishes Study on Epidural Anesthesia in Pregnant Women with VWD

British Patient Undergoing Gene Therapy Develops Leukemia

Danish Research Shows Sustained Clot Formation in Hemophilia A Patients Treated with Dual Therapy

NHF and Community News

Last Chance to Submit Project Red Flag Grant Applications

Bayer HealthCare Offers Summer Internship for College Students

Mark Your Calendars for Hemophilia B Spring Symposium

Industry News

ATryn® Receives Orphan Drug Designation

CSL Behring Reports on Potential for Longer-Lasting Factor VIIa Therapy

Nektar Announces Agreement with Baxter to Develop New Hemophilia A Therapy

Advocacy and Legislative Updates

No Compromise Reached on Expanding SCHIP--President Signs Stopgap Measure Extending Current Program for One Year

eNotes—December 2007

Lead Story

The Need for Continued Vigilance—Organizations Publish Open Letter on Blood Safety Issues

Medical News

California HTC Performs Retrospective Review of Elbow Procedures

Ohio HTC Receives CDC Grant for Amish Health Awareness

NHF and Community News

Last Chance to Purchase Audio CDs for Annual Meeting Sessions

Registration Forms Due Next Week for NYLI’s First-Ever Teen Retreat

Project Red Flag Grant Applications Now Being Accepted

Bayer HealthCare Offers Summer Internship for College Students

New NHF Publication on Nosebleeds Now Available

New MASAC Recommendation on Prophylaxis Available on NHF Web Site

Industry News

Hemophilia B Drug Submitted for IND Status Approval

Blood Safety News

FDA Alerts DDAVP Manufacturers of Prescribing Information Change

eNotes—November 2007

Lead Story

Hemophilia Treatment Center Releases Study Data on Menorrhagia in Adolescent Patients

Medical News

Hematologist/Researcher Elected to Institute of Medicine

NHF and Community News

CDs on Sale for Annual Meeting Sessions

NHF’s NYLI Plans First-Ever Retreat for Teens

Women’s Bleeding Disorders Advocate Dies at 49

Industry News

Pharming Group Receives FDA Orphan Drug Status for Fibrinogen

Apria to Acquire Coram, Inc., for $350 Million

Humate-P® No Longer Requires Refrigeration

Advocacy and Legislative Updates

Children’s Health Insurance Expansion Still on Hold

eNotes—October 2007

Lead Story

Bush Vetoes SCHIP Reauthorization--Act Now to Ask Congress to Override

Medical News

New Genetic Test for Warfarin Dosing Receives FDA Approval

Plasma Shortfall in China Spurs Government and Community Response

Blood Safety News

FDA-Approved Test Could Improve Safety Record of Platelet Transfusions

FDA Approves Second West Nile Screening Test

Scottish Researcher Warns That vCJD Remains a Threat


NHF and Community News

Register for Annual Meeting by 10/19, Avoid Processing Fee

NHF's NYLI Plans First-Ever Retreat for Teens

WFH Appoints Interim CEO/Executive Director

NHF's HANDI Resource Center Offers New Provider Publications

eNotes—September 2007

Lead Story

Joint Outcome Study Results Published in the New England Journal of Medicine

Medical News

Maraviroc Receives FDA Approval

FDA Approves Revised Labeling for Coumadin®

Study Published on Hemophilia B Gene Therapy by Intramuscular Injection

NHF and Community News

Still Time to Register for Annual Meeting

American Pain Foundation Calls for Submissions for Pain and Creativity Exhibit

Seattle Social Worker Retires after Decades of Service

Internationally Recognized Hematologist and Researcher Dies at 73

New Provider Resources from NHF’s HANDI Resource Center

Blood Safety News

Irish Government Briefing Provides Update on Compensation Payments

Advocacy and Legislative Updates

Status of State Children’s Health Insurance Program Expansion

eNotes—August 2007

Lead Story

NHF Announces New Interim CEO

Medical News

Study Identifies Predictors for HCV Treatment Success or Failure

Experts Debate Gene Therapy Vectors

Gene Therapy Clinical Trial Patient Dies

New Oral HIV Drug Close to Approval in Europe

NHF and Community News

Last Chance to Receive 5% Discount on Annual Meeting Registration!

Deadline Extended for Annual Meeting Poster Abstracts

Last Call for National Youth Leadership Institute 2007 Applications

Scholarship Founder Dies at 78

Scholarship Winner Plans Career in Broadcasting

NHF Announces Fellowship Winners

Industry News

EpiVax Receives Grant to Study Modified FVIII Proteins

Wyeth Takes Over Distribution of BeneFIX® in Europe

Baxter Study Shows Benefits of Prophylactic Use of Advate®

New Hemophilia B Drug Candidate Presented at ISTH Congress

Bayer Reports Potential Longer-Acting Recombinant Factor VIII with PEG

Advocacy and Legislative Updates

Increased Funding for CDC Hemophilia Program in House Bill

Illinois Governor Signs Hemophilia Advisory Review Board Bill

eNotes — July 2007

Lead Story

Texas Governor Signs Bleeding Disorders Advisory Council Act

Medical News

UK Researchers Study Postpartum Bleeding in Women with Factor XI Deficiency

European Hematology Association Recognizes Thrombophilia Expert

Study Reveals Pregnancy Complications in Women with von Willebrand Disease

NHF and Community News

Register Now to Receive 5% Discount on Annual Meeting Registration!

NHF’s Hemophilia Walk and Yacht Cruise Raise Funds and Awareness

Last Call for Poster Abstracts for NHF’s Annual Meeting

Apply Now for National Youth Leadership Institute

Industry News

Bayer Announces WFH’s 2007 International Nursing Fellowship Award Recipients

New Test Designed to Address Variable Warfarin Dosing

CSL Behring Foundation Provides Grants for Bleeding Disorders Research

Novo Nordisk Starts Clinical Trials of Longer-Acting Factor VIIa Product

Two Pharmaceutical Companies To Market New Recombinant Thrombin Product

Wyeth Announces New Self-Infusion Training Kit

Blood Safety News

UK Government Knew Blood Was Contaminated, Inquiry Shows

eNotes - May 2007

Lead Story

HCV Vaccine Shows Promise in Chimpanzees

Medical News

National Academy of Sciences Elects Bleeding Disorders Researcher

VCU Researchers Evaluate Liver Biopsy in Hemophilia

NHF and Community News

Register Now to Receive 10% Discount on Annual Meeting Registration

Team Hemophilia Races for NHF at the Indy 500 and Beyond

NHF to Host First National Preparedness Initiative Coalition Meeting

Call for Poster Abstracts for NHF’s Annual Meeting

Apply Now for National Youth Leadership Institute 2007

NHF’s Social Worker Symposium Was a Success

First Step Train-the-Trainer Workshop Hosted Teams from Across the Country

On the Road with NHF in New Orleans

Industry News

Humate-P® Receives FDA Approval for Additional Use

HepaLife Announces Progress in Developing Artificial Liver Device

Talecris Provides Grant for WFH Program in Developing Countries

Grifols Boosts Plasma Collection Capacity

Advocacy and Legislative Updates

Bleeding Disorders Advisory Council Bill Passes in Texas

eNotes - April 2007

Lead Story

Only 2 Days Left to Receive Your 15% Discount on Annual Meeting Registration!

Medical News

Pioneering Hematologist and Researcher Honored by UCI

UCSF Scientists Examine Procedure to Relieve Cirrhosis Complications

New Drug Candidate Could Circumvent Disease-Causing Genetic Mutation

NHF and Community News

Team Hemophilia Races for NHF at the Indy 500

NHF to Host Hemophilia Walk in NYC

New Online Discussion Group for People in Pain

Apply Now for National Youth Leadership Institute

NACCHO Offers New Youth/Teen Program

Camp Superfly III Attracts Record Number of Teams

Blood Safety Researcher Dies at 60

Visit Our Virtual Exhibit Hall

Industry News

FDA Approves New Biologic for Clotting Disorder

Blood Safety News

Iraqi Red Crescent Society Sues Drug Companies

Public Inquiry to Examine UK Blood Scandal

Japanese Courts Order Drug Companies to Pay Hepatitis C Compensation

UK Survey Shows Respondents Favor vCJD Blood Test

Advocacy and Legislative Updates

Genetic Information Nondiscrimination Act of 2007 Passes in the House

Scientists Lobby for Increased NIH Funding

States Will Move to Name-Based Tracking of HIV Patients This Year

Legislation Protecting Access to Care Advances in Several States

eNotes - March 2007

Lead Story

There’s Still Time to Make Your Voice Heard

Medical News

A New Class of HIV Therapies Facing Approval

Scientists Identify Protein Involved in HCV Infection

Mice Teach Humans about von Willebrand Disease

NHF and Community News

NHF Board of Directors Announces New Chair and Officers

Register Online Now to Save Money on Annual Meeting Registration

Team Hemophilia Races for NHF

Women’s Bleeding Disorders Advocate Dies at 40

Register Now for June Leadership Weekend in the Windy City

NACCHO Announces New Youth/Teen Program

National Youth Leadership Institute Calls for Applications

NACCHO Camp Award Recipients Announced

Visit Our Virtual Exhibit Hall

Industry News

Grifols To Expand Manufacturing Capacity

California Company and Stanford Researchers To Develop FIX Therapy

Wyeth Announces FDA Approval for BeneFIX® Product Enhancements

Blood Safety News

USDA Closes Only Mad Cow Disease Testing Laboratory in Northwest

vCJD Risk Information Available on New FDA Web Page

Enhanced Screening System for West Nile Virus Receives FDA Approval

Advocacy and Legislative Updates

Important Legislation Passes in Iowa House and Senate

 

State Awareness Day at Texas Capitol Gets Results

 

Kaiser Family Foundation Publishes Medicare and Medicaid Primers

eNotes - February 2007

Lead Story

Advocacy Group Petitions for Removal of Some Oral Contraceptives

Medical News

Study Uses DNA Testing to Monitor Warfarin Therapy

St. Jude Opens New Clinic for Children with Cancer and Blood Disorders

Research Update: “A Bare Bones Approach to Gene Therapy”

NHF and Community News

NHF Announces Hemophilia Awareness Month Fundraisers

Register Soon to Receive Discount for NHF’s 2007 Annual Meeting in Orlando

Bayer Awards $100,000 Grant to NHF's NYLI

NHF Receives $300,000 Grant from Novo Nordisk

NHF Web Site Provides College Scholarship Information

NHF Nominee Appointed as Consumer Liaison Representative

Coalition for Hemophilia B Hosts Spring Symposium in NYC

Visit Our Virtual Exhibit Hall

Industry News

CSL Behring Will Continue to Sell Helixate® FS

Alphanate® Receives FDA Approval for Some VWD Patients

Wyeth Enters Into Collaborative Research Agreements

Jerini and Baxter AG Formalize Research Collaboration

Blood Safety News

Robot Streamlines Hemophilia Lab in Canada

Researchers Suspect Possible Viral Cause of BSE

Advocacy and Legislative Updates

NHF’s Washington Days 2007 Provides Forum for You To Meet New Congressional Leadership

eNotes - January 2007

Lead Story

U.S. Weighs Blood Safety and Supply Concerns

Medical News

Emory University Scientists Study CDC Inhibitor Data

UC Scientists Study Local Population for Brain Bleeding in Warfarin Patients

A New Diagnostic Test for Hemophilia A

NHF and Community News

NHF Offers Camp and First Step Grants for Chapters and Associations

NHF Announces Hemophilia Awareness Month Fundraisers

Coalition for Hemophilia B Hosts Spring Symposium in NYC

Bayer HealthCare Offers Summer Internship

Project Red Flag Provides College Scholarships for Women

Former Ohio Chapter ED Dies at 59

Visit Our Virtual Exhibit Hall

Industry News

Lipoxen and Baxter Agree to Develop Improved Recombinant Factor VIII Products

Biogen Idec to Purchase Syntonix and Its Experimental Hemophilia B Drug

CSL Behring Announces Update on Global Name Change

Blood Safety News

Genetically Engineered Cattle Are Potentially Resistant to Mad Cow Disease

New UK Case of vCJD Infection through Transfusion

Advocacy and Legislative Updates

NHF’s Washington Days 2007 Provides Forum for You To Meet New Congressional Leadership

NHF Helps Dissuade Alabama Medicaid from Changing Its Factor Reimbursement Policy

Genetic Information Nondiscrimination Act Reintroduced

President Bush Orders Easing of Travel Restrictions on HIV-Positive Travelers

eNotes - December 2006

Lead Story

FDA Confirms Low Risk for Creutzfeldt-Jakob Disease

NHF and Community News

Only Five Days Left to Order Your Annual Meeting Session CDs

NHF’s Train-the-Trainer Program Coming to New Orleans

NHF To Offer Several Grants for Chapters and Associations

Visit Our Virtual Exhibit Hall

Industry News

Baxter Demonstrates Prolonged Half-Life for Hemophilia A Therapy in Mice

Novo Nordisk Study Suggests Secondary Prophylaxis Reduces Number of Bleeds

Blood Safety News

AIDS Activist Detained by Chinese Government for Second Time

FDA Approves First Chagas Disease Blood Test

Advocacy and Legislative Updates

Bleeding Disorders Community Members To Meet New Congressional Leadership at NHF’s Washington Days 2007

New Zealanders Infected by Hepatitis C to Receive Compensation

Congress Votes in Favor of Compromise Bill for AIDS Funding

eNotes - November 2006

Lead Story

College in Wisconsin Receives Federal Grant for VWD Research

Medical News

 

Professional Medical Organizations Collaborate on Menstruation Report

Tissue Factor May Help Predict Clots

FDA Grants Approval to Market Thrombophilia Test

Hemophilia Nurse Honored for Pediatric Care and Educational Efforts

Research Update: When Things Don’t Add up: The Immunology of HIV/HCV Coinfection

Research Update: Study Focuses on Surface Wounds in Hemophilia B

Research Update: CDC to Release Progress Report on Hemostasis and Thrombosis Centers

Industry News

Grifols Announces Factor Coverage Program

CVS Merges with Caremark, Creating Pharmacy Services Company

Bayer to Expand Berkeley Manufacturing Plant

NHF and Community News

NHF Announces New MASAC Chair

New MASAC Recommendations Available on NHF Web Site

Annual Meeting Session CDs Now Available

NHF’s Train-the-Trainer Program Coming to New Orleans

Former WFH Director Dies at 63

Key Founder of Southern California Chapter Dies at 83 

NHF Launches State-of-the-Art Virtual Exhibit Hall

Advocacy and Legislative Updates

Kaiser Study Compares Medicare Part D Plans, Highlights Changes

Bleeding Disorders Community Members To Meet New Congressional Leadership at NHF’s Washington Days 2007

eNotes - October 2006

Lead Story

Gene Therapy Research Focuses on Nonviral Delivery

Medical News

Two Pharmaceutical Companies to Develop a Recombinant Factor VIIa Product

Canadians Improve Tool to Measure Quality of Life

NovoSeven® Approved for Use in Acquired Hemophilia Patients

FDA Issues New Guidelines for Manufacturers of Biologics

Research Update: Blood Test Measures Risk for Recurrent Venous Thromboembolism

Research Update: Less is More with Synthetic Inhibitors for Activated Protein C

NHF and Community News 

Opening New Doors at NHF’s Annual Meeting

JNC Winners Kept Their Eyes on the Ball and the Prize

Youth Lead by Example at NHF’s Annual Meeting

NHF Announces Clinical Fellowship Recipients

NHF Launches State-of-the-Art Virtual Exhibit Hall

New Ohio Summer Camp To Open in 2008

eNotes - September 2006

Lead Story

Medigap Access Improvement Act of 2006 Introduced

Medical News

Drug Regimen May Lead to Improved Treatment in Hemophilia Patients

Upcoming Study Will Investigate Genetics and Warfarin Dosage

Hepatitis C Study Looks for Genetic Links Among Siblings with Hemophilia

Hemophilia Prevention Data Appear in Leading Public Health Journal

Panel to Discuss Federal Guidelines for HIV Testing

NHF and Community News 

New Camp Health Center Guidelines Available

Scholarship Winner Sets His Sights on the Future

There’s Still Time to Register for NHF’s Annual Meeting

NHF’s Name Will Shed Light on the Subject at Annual Meeting

NHF Launches State-of-the-Art Virtual Exhibit Hall

Junior National Championship Still Scoring Points

UNC Health Care Draws Fire in Attempt to Recover Unpaid Bills

Blood Safety News

American Red Cross Fined $4.2 Million by the FDA

eNotes - August 2006

Lead Story

Scientists Develop a Test to Measure the Potential of Blood Clot Recurrence

Medical News

Naked DNA, Scientifically Speaking

Revelations on Carrier Status

Gene Transfer to Treat von Willebrand Disease

NHF and Community News

Register Now to Receive NHF Annual Meeting Discount

NHF’s Name up in Lights During the Annual Meeting

NHF Marks Hurricane Katrina Anniversary

NHF Appoints New Vice President for Marketing and Communications

Junior National Championship Announces Regional Winners

Car Racing and Fundraising for NHF

Scenic Winery Serves as Backdrop to New NHF Fundraiser

Camp Superfly II Winners Announced

NHF Launches State-of-the-Art Virtual Exhibit Hall

Industry News

Grifols Tightens Distribution Channels for Its Products

Advocacy and Legislative Updates

Ireland Drops Lawsuit Against U.S. Pharmaceutical Companies

eNotes - July 2006

Lead Story

Newly Published International Guidelines for VTE

Medical News

FDA and Boehringer Ingelheim Alert Healthcare Professionals to Serious Bleeding

FDA Approves Three-In-One HIV Combination Therapy

Report on Long-Term Factor VIII Expression from Gene Therapy

Operation Platelet: Covert Approach to Clot Formation

Gene Therapy, Golden to the Core

NHF and Community News

Strong Community Advocate and Research Supporter Dies at Age 55

Register Now for NHF's Annual Meeting

NHF Launches New Virtual Exhibit Hall

Junior National Championship Program Takes Off

Industry News

Wyeth Offers Greater Emergency Room Access to Product

Blood Safety News

Canada Confirms Seventh Case of Mad Cow Disease

Talecris Notifies Public of Carton Printing Errors

Advocacy and Legislative Updates

Canadian Government Extends Hepatitis C Compensation

Act Now: Support the Genetic Information Nondiscrimination Act

eNotes for June 2006

Featured Stories

State Medicaid Directors Receive Guidelines on New Premium and Costs Sharing Options

NHF Launches New Virtual Exhibit Hall

Medical News

Study Indicates Healthy Air Travelers Not at Increased Risk for DVT

U.S. HCV Trial Favors Weight-based Dosing of Combination Therapy

MicroRNA a Key Component of Gene Therapy Study

FDA Will Require Wholesalers to Track Drugs

NHF and Community News

New MASAC Recommendations Available on NHF Web site

NHF Gene Therapy and Novel Technologies Workshop Summary Available Online

NHF Launches New Online Clinical Trials Resource Center

Indy 500 Provides Venue for Unique Fundraising and Awareness Campaign

Junior National Championship Program Takes Off

Community Comes Together for Kids Who Care Fundraiser Walk

HFM Marks 50th Anniversary and Commemorates Past Community Members

Register Now for NHF's Annual Meeting

Industry News

International Team Reports on VWD Census and Upcoming Treatment Study

Grifols Donates Product to WFH

Bayer Honors Recipients of International Awards Program

Wyeth Study Finds Two Recombinant Factor VIII Products Equivalent

Avigen Cites Progress in Potential Bleeding Disorder Therapy

ZLB Behring Foundation Awards Grants

Novo Nordisk Plans Additional Education Summits

eNotes - May 2006

Lead Story

Genetic Test May Predict Onset of Serious Complication in Hepatitis C Patients

Medical News

Enrollment Open for Hepatitis C Vaccine Trial

NHF and Community News

HFM Appoints New Board Members

UK Hematologist and Researcher Dies At 61

NHF 2006 Camp Directory Available Online

Travel Grant Scholarships for NHF Annual Meeting

NHF Appoints Vice President for Development

NHF On the Road 2006 Update

MCHB Hemophilia Program Has New Director

Industry News

Bayer Reports Results of Early-Stage Clinical Trials for New Factor VIII Products

Blood Safety News

USDA Releases Specifics on Third Mad Cow Case

Advocacy and Legislative Updates

HHS Announces HIV/AIDS Funding

Enzi Bill Defeated in Senate

eNotes - April 2006

Lead Story

Prominent Hematologist and NHF Volunteer Appointed to CDC Post

Advocacy and Legislative Updates

Act Now to Oppose Harmful Insurance Legislation

Medical News

Specialty Pharmacy Launches Program for Inhibitor Patients

Novelos Seeks IND Status for New Hepatitis Drug

Breakthrough by Stanford Researcher May Lead to New Hepatitis C Treatment

Baxter Marks Progress of World Federation of Hemophilia’s GAP Program

Blood Safety News

Canadian Hemophilia Society Against Narrowing Blood Donations Ban

Report Stresses Swift Response and Improved Data to Control Infectious Diseases

NHF and Community News

Racing for Hemophilia Fundraising in Full Swing

A New Online Tool for Consumers with Insurance Questions

Camp Superfly II is Underway

HFM Announces Two Advocacy Awards

NHF Announces Changes to Board of Directors

NHF Game Night 2006

Prominent Hematologist and NHF Volunteer Appointed to CDC Post

eNotes - March 2006

Lead Story

NHF Washington Days 2006 a Success

Advocacy and Legislative Updates

NHF Washington Days 2006 a Success

District of Columbia and Maryland May Face Cuts to AIDS Funding

Congress Considers Two Controversial Health Insurance Bills

Cover the Uninsured Week Coming in May

Medical News

International Survey Reveals Trends in Hemophilia A Management

HFM Receives Grant from Baxter to Expand AdvoyMobile Usage

Study Targets Non-Genetic Factors of HCV Clearance in Hemophilia Patients

Novo Nordisk Opens Hemostasis Research Facility in New Jersey

Blood Safety News

Baxter Demonstrates Removal of Bird Flu from Its Plasma-Derived Products

USDA Reports a New Case of Mad Cow Disease

NHF and Community News

Register Online for NHF’s 58th Annual Meeting and Save 15% or More

High School Senior Makes Positive Adjustment After Thrombophilia Diagnosis

Fourth Annual NACCHO Features Awards to Three Summer Camp Programs

Legislative Updates

Nonprofit Petitions Congress for a Modernized Ryan White CARE Act

Congress Passes Legislation for State High-Risk Pools

eNotes - February 2006

Lead Story

Largest AIDS Treatment Study Cut Short

Medical News

FDA Objects to Certain Promotional Materials for Kogenate FS®

Mount Sinai Enhances Diagnostic Capabilities

Baxter International Foundation Health Recovery Fund Helps Restore Services

Source MDx Receives NIH Grant for New Diagnostic Test

Blood Safety News

International Team of Scientists Warn Against Emerging Pathogens

NHF and Community News

First Step Training Program Expanded

Bayer and NHF Unveil Racing for Hemophilia National Fundraiser

Legislative Updates

Nonprofit Petitions Congress for a Modernized Ryan White CARE Act

Congress Passes Legislation for State High-Risk Pools

eNotes - January 2006

Lead Story

Canadian Researchers Report Progress in Hepatitis C Vaccine Development

Medical News

Study Investigates Technique for Improving Immune Responses to Chronic Viral Infections

University Scientists Study Molecule’s Role in Blood Coagulation

Schering-Plough Initiates Worldwide Clinical Trial on HCV/HIV Co-infection

Two Companies Reach Agreement to Develop Recombinant Factor IX Product

NHF and Community News

Amish Families Raise Funds to Help Pay Healthcare Costs in Ohio

Young Hemophilia and AIDS Activist Dies at 26

NHF Announces 2006 Project Red Flag Scholarships

NHF On the Road 2006 Will Feature Preparedness, Prevention and Thrombophilia

eNotes - December 2005

Lead Story

Pennsylvania Department of Public Welfare Will Include All Clotting Factor Products on Medicaid Preferred Drug List

Medical News

Study Looks at the Benefits of Prophylaxis versus On-Demand Treatment in Children with Hemophilia

Harvard Researchers Study Thrombosis Risk Factors

Commonly Used Pain Reliever May be Responsible for Increased Poisonings

NIAID Awards Wyeth Contract to Develop HIV Vaccine

Ribasphere® Receives FDA Approval for Use in HCV Patients

Study Estimates 900,000 VTE Events Per Year in U.S., Many Preventable

Maxygen and Roche Agree to Develop Factor VIIa Product

Genzyme Acquires Significant Portion of Avigen’s Gene Therapy Technology

Blood Safety News

Study Results Demonstrate TSE Removal from Blood in Lab Animals

Meeting in UK Raises Concerns about Blood Safety

NHF and Community News

Lead Attorney in Class Action Settlement Dies at 70

PSI Offers Assistance to Those with Chronic Illnesses

Legislative Updates

NHF Washington Days 2006 Will Focus on Preserving Access to Quality Care

eNotes - November 2005

Lead Story

Fight Over Pennsylvania PDL Enters Home Stretch

Medical News

Biotechnology Company Receives Federal Funds to Develop HIV Vaccine

Study Reveals Immune Response Risk to Gene Therapy in Hemophilia B Mice

Australian Researcher Suggests Link between Thrombophilia and Cerebral Palsy

Bayer Receives FDA Approval for Kogenate FS® with BIO-SET®

NIH Recruiting Patients and Family Members for Platelet Disorder Study

Hepatitis C Treatment Study Open to Latino and Caucasian Patients

Armenian Government and Hemophilia Organization Confront Treatment Access

NHF and Community News

New MASAC Recommendation Addresses Treatment 

NHF Expands Annual Meeting Program

NHF Awards Two New Clinical Fellowships

New Resources Available through NHF’s HANDI Resource Center

NHF’s National Youth Leadership Institute Scores High Marks

Missouri Teens Victorious in Junior National Championship Finals

Blood Safety News

U.K. Man Who Had Lived in Texas is Diagnosed with vCJD

New Documentary Film Chronicles Arkansas Prison Blood Scandal

Legislative Updates

HANJ Names PACT Grant Recipients in State Advocacy

Medicare Agrees to Higher Reimbursement Rate for Outpatient Clotting Factor

 

eNotes - October 2005

Lead Story

NHF Unveils Redesigned Web Site, Customizable eNotes

Medical News

FDA Approves Generic AIDS Drug

Specialty Pharmacy Employee Fired after Revelation of Illegal Profit Scheme

Irish Hemophilia Population Receives Guidance from U.S. Law Firm

Device Reminds HIV Patients to Take Medications

New Kogenate Storage Guidelines Promise Added Convenience

Accredo Purchases Specialty Pharmacy Business

Upcoming Educational Summit to Focus on Inhibitors

NHF and Community News

AIDS Walk Raises Funds and Honors Young Educator

U.K. Woman Treats Symptoms of VWD with Over-the-Counter Medication

Legislative Updates

Ricky Ray Program Office Set To Close

eNotes - September 2005

Lead Story

September 30, 2005
NHF and Community Respond to Gulf States Hurricanes

Medical News

September 29, 2005
Baxter Announces Collaborative Research to Improve Recombinant Factor VIII

September 12, 2005
University of Nebraska Receives NIH Grant for New Hemophilia B Treatment

September 3, 2005
Report Suggests a Connection between Blood Type and DVT Risk

August 31, 2005
New Index Helps to Measure Fibrosis Levels in HIV/HCV Patients

August 30, 2005
Hemophilia Patients Losing Crucial Health Coverage in Tennessee

August 29, 2005
Texas Researcher Works Toward Blood Test for Mad Cow and vCJD

August 23, 2005
University of Iowa Reports Gene Therapy Progress in Mice

August 21, 2005
Potential Link Made Between Factor VII and Recurrent Fetal Loss

NHF and Community News

September 1, 2005
Four Boys Reach National Championship Finals

Legislative Updates

September 30, 2005
Durbin Releases Hold on Insurance Bill

September 29, 2005
Proposed Medicare Reimbursement Rate Insufficient for Factor Given to Hospital Outpatients

 

 

 

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