NHF eNotes is NHF's online news bulletin designed to provide the latest news to the bleeding and clotting disorders community.
eNotes—January 2012
Lead Story
Research Breakthrough in Gene Therapy for Hemophilia B
Medical News
TSA Launches Helpline for Fliers with Medical Conditions and Disabilities
FDA Approves HIV Vaccine for Human Trials
Advocacy Updates
Register Now for Washington Days 2012
HHS Releases Guidance on Essential Health Benefits
NHF & Community News
Last Chance to Buy Annual Meeting Session CDs
Planning Underway for 2012 Hemophilia Walks
NHF Announces Spring Soiree Honorees
Participants Needed for Quality of Life Survey
High School Athlete Was Semifinalist for Rudy Awards
Attend Blood Disorders in Public Health Conference in Atlanta
NHF Collaborates on New Bleeding and Clotting Conference
Industry News
Baxter Announces Approval of ADVATE for Prophylaxis and Longer-Acting rFVIII Trial
eNotes—December 2011
Lead Story
Farewell Windy City, Florida to Follow
Medical News
BloodCenter of Wisconsin Adds New VWD Tests
Investigators Create Therapy-Producing Blood Vessels in Mice
Researchers Compare Pharmacokinetics of Two VWD Therapies
Advocacy Updates
Advocacy Today and Tomorrow
Save the Date for Washington Days 2012
NHF & Community News
Now’s the Time to Buy Your Annual Meeting Session CDs
Participants Needed for Quality of Life Survey
Three New Ways to Support NHF
NHF’s 2011 Hemophilia Walk Season is a Success
NHF Announces Collaboration with New Bleeding and Clotting Conference
Plan Now for Blood Disorders in Public Health Conference in Atlanta
Industry News
FDA Approves Pfizer’s BeneFIX® 3,000 IU Dosage
eNotes—November 2011
Lead Story
You Can Register Onsite for NHF’s Annual Meeting in Chicago
Medical News
New Practice Guidelines for HCV Genotype 1
UNC Investigators Report HIV Replicates in Other Cells
Take Time to Participate in the Quality of Life Survey
Advocacy Updates
NHF Testifies at HHS Health Benefits Meeting
NHF & Community News
Teens Needed for Annual Meeting Focus Groups
NHF’s 2011 Hemophilia Walks Wind Down
Industry News
Baxter’s Recombinant VWF Product Starting Phase 3 Clinical Trial
Bayer Standardizes Syringe for Kogenate®FS Vial Sizes
eNotes—October 2011
Lead Story
Register for NHF’s Annual Mtg in Chicago, Win a Trip to Orlando
Medical News
CDC Revises Guidelines to Reduce Transplant-Related Infections
HCV Drug Resistance Test Now Available in US
Kidney Damage Elevated in Patients with HIV and Diabetes
Blood Safety News
UK Lifts Lifetime Ban on Blood Donations from MSM
Advocacy Updates
Plasma Users Group Takes Stand on Health Reform and Medicare
NHF & Community News
NHF and CDC Invite Teens to Join Annual Meeting Focus Groups
Fun and Fundraising at NHF’s 2011 Hemophilia Walks
eNotes—September 2011
Lead Story
New Guidelines to Prevent Blood Clots in Pregnant Women
Medical News
NHF Recruiting Participants for HERO Survey
NC Chapter Seeks Participants for Quality of Life Study
Blood Safety News
CDC Reports Transmission of Babesia in Blood Transfusions
Advocacy Updates
Save the Date for Washington Days 2012
GAO Releases Health Reform Implementation Report
NHF & Community News
Register Now To Receive Annual Meeting Discount
Registration Extended for Annual Meeting Kids & Teens/Babycare Programs
Last Chance To Apply for NHF’s National Youth Leadership Institute
Fall into Fun at NHF’s Hemophilia Walks
NHF Announces New Walk Chapters for 2012
2012 Spring Soiree Honorees Unveiled
September is National Preparedness Month
NHF Announces 2011 Kevin Child Scholarship Winner
Pain Awareness Month Activities
Industry News
Pfizer Announces Improvements to XYNTHA® and BeneFIX®
eNotes—August 2011
Lead Story
Register Now To Receive Annual Meeting Discount
Medical News
NHF Selects New NHF-Baxter Clinical Fellows
NHF Awards Two Judith Graham Pool Postdoctoral Research Fellowships
NHF Announces 2011 NHF/Novo Nordisk Career Development Award Recipient
Advocacy Updates
HHS Releases Next Steps on MSM Blood Donation Issue
Congress Passes Legislation to Raise Debt Ceiling
New Contact Information for NHF Washington Representatives
NHF & Community News
Apply Now for NHF’s National Youth Leadership Institute
Soak up the Sun and Have Fun at NHF’s Hemophilia Walks
NHF Welcomes Hawaii Chapter
September is National Preparedness Month
Registration Open for 2012 National Conference on Blood Disorders
Industry News
Baxter Reports Progress on Hemophilia and Recombinant VWF Treatments
Biogen Idec and Swedish Orphan Biovitrum Report Clinical Progress
CSL Donates Factor to WFH’s GAP Program
Inspiration Presents Data on Recombinant FVIII Product
Bayer HealthCare Announces 2011 BHAP Winners
eNotes—July 2011
Lead Story
Genome "Editing" Corrects Hemophilia B in Mice
Advocacy Updates
National Prevention Strategy Released
HHS Finalizes Appeal Process for Health Insurance Denials
NHF & Community News
Register Now To Receive Annual Meeting Discount
Check out NHF's New Steps for Living Web Site
Stride Right Into Summer, Join a Hemophilia Walk
Sample NHF's 2011 Summer Camp Directory
NHF Announces Victory for Women Grant Recipients
APF Launches Pain Campaign for Hispanics
Industry News
FTC Approves Grifols-Talecris Merger, Kedrion Acquisition of Koate-DVI
eNotes—June 2011
Lead Story
NHF Announces New Board Chair, Officers and Members
Medical News
FDA Approves Two New HCV Drugs
Advocacy Updates
PCIPs Enrollment Now Easier, Less Expensive
Bleeding Disorder SAFE Act Reintroduced in Congress
NHF & Community News
Registration Open for NHF’s Annual Meeting in Chicago
Visit Steps for Living, NHF’s New Online Education Resource
Last Chance To Apply for Annual Meeting Grants for First-Timers
Poster Abstracts Deadline Extended for Annual Meeting
Still Time To Register for Summer Inhibitor Summits
2011 Hemophilia Walks Step It up This Summer
Sample NHF’s 2011 Summer Camp Directory
NHF’s MASAC Issues Three New Recommendations
Industry News
FDA Approves Longer Storage for Bayer’s Kogenate® FS
CSL Behring Receives NORD Corporate Award
eNotes—May 2011
Lead Story
Michigan Researchers Develop Disease-Specific Stem Cell Lines
Medical News
Penn Reviews 20 Years of Gene Therapy Research
Advocacy and Legislative Updates
FY 2011 Federal Funding Update
Labor Department Releases Health Insurance Benefits Survey
NHF and Community News
Spring Soiree, A Smashing Success
Meet Us in the Windy City at NHF’s Annual Meeting
Last Call for Annual Meeting Poster Abstracts
Apply Now for Annual Meeting Grants for First-Timers
Deadline Nearing for V4W Academic Scholarships
Apply Now for Kevin Child Scholarship
Hemophilia Walks Coming Your Way
Register Now for Summer Inhibitor Summits
NHF To Launch Online Education Curriculum
2011 Summer Camp Directory Coming Soon
Industry News
Amunix to Collaborate with Biogen Idec on Recombinant Therapies
Novo Nordisk Launches Virtual Surgical Center
eNotes—April 2011
Lead Story
Report Targets Source of Contaminated Alcohol Pads
Advocacy and Legislative Updates
HHS Releases National Heath Care Strategy
NHF and Community News
NHF Hosts Spring Soiree This Week
NHF’s Annual Meeting: Meet Us in the Windy City
NHF Announces Call for 2011 Annual Meeting Poster Abstracts
Apply Now for Annual Meeting Grants for First-Timers
Women Can Apply for V4W Academic Scholarships
NHF Accepting Kevin Child Scholarship Applications
Hemophilia Walks Coming Your Way
Register Now for Summer Inhibitor Summits
NHF Announces New Online Education Curriculum
Industry News
MedPro Rx Supports KIDBase Program
eNotes—March 2011
Lead Story
FDA Approves FXIII Deficiency Product
Medical News
Study Shows Benefits of Early Prophylaxis in Children
International Study Finds Misdiagnosis in Rarest VWD Type
Blood Safety News
UK Scientists Create vCJD Blood Test
New Plasma Test Screens for Parvovirus B19 and Hepatitis A
Advocacy and Legislative Updates
Hundreds Converge on Capitol Hill for Washington Days 2011
Government Eases Eligibility Requirement for Children in PCIP
NHF and Community News
NHF’s Annual Meeting: Meet Us in the Windy City
NHF Announces Call for 2011 Annual Meeting Poster Abstracts
Apply Now for Annual Meeting Grants for First-Timers
Women Can Apply for V4W Academic Scholarships
NHF Accepting Kevin Child Scholarship Applications
2011 Hemophilia Walk Season Officially Opens
Baxter Healthcare Commits $1.25 million for Hemophilia Walk
Support Victory for Women—Share the Video, Buy a Scarf
Plan Now for Inhibitor Summits This Summer
CDC Guide Available for Hemophilia Healthcare Providers
Industry News
Inspiration Biopharmaceutical’s Recombinant FIX Performs Well in Clinical Trial
Grifols’ Alphanate Label Reflects Capacity to Prevent TSE Infection
Novo Unveils Mobile App to Improve Bleeding Disorder Diagnosis
CSL Donates FVIII to WFH Program
eNotes—February 2011
Lead Story
Millions in Grants for UF’s Hemophilia Research Program
NHF and Community News
Last Chance to Register for Washington Days 2011
Still Time To Buy Annual Meeting Session CDs
Register Now for Hemophilia B Symposium
NHF Accepting Kevin Child Scholarship Applications
Apply Now for Annual Meeting Grants for First-Timers
CDC Guide Available for Hemophilia Healthcare Providers
Support Victory for Women—Share the Video, Buy a Scarf
2011 Hemophilia Walk Season Kicks off Next Month
Industry News
CSL Announces LEAD Grant Recipients
Grifols Develops Flash Drive for Hemophilia Patients
eNotes—January 2011
Lead Story
Hemophilia B Gene Therapy Trial Yields Promising Results
Medical News
Survey Underscores HTC Prophylaxis Adherence
Blood Safety News
Red Cross Bans Blood Donations from CFS Patients
FDA Committee Discusses Emerging Blood Supply Threats
NHF Comments on Biosimilars Approval Process
NHF and Community News
Register Now for Washington Days 2011
Purchase Annual Meeting Session CDs Now
Support Victory for Women—Share the Video, Buy a Scarf
2011 Hemophilia Walk Season Has Begun
NHF’s MASAC Issues Two New Documents
Collecting for a Cause at Annual Meeting
Industry News
Novo Reports Progress on Two Therapies
Biogen Idec and Swedish Orphan Biovitrum Announce Trial of Longer-Acting rFVIII
Baxter Presents New VWD Treatment Data
eNotes—December 2010
Lead Story
Rare Case of Transfusion-Transmitted HIV Infection Reported
Advocacy and Legislative Updates
NHF Responds to IOM Health Benefits Survey
Take Online Consumer Assessment Survey
NHF and Community News
Good-bye Bayou. See You in Chicago!
Annual Meeting Sessions Now on CD
NHF Extends Deadlines for Letters of Intent for JGP Postdoctoral Research Fellowship and Career Development Award
Support Victory for Women—Share the Video, Buy a Scarf or Calendar
Save the Date for Washington Days 2011
Successful Walk Season Crosses Finish Line
Industry News
Inspiration Reports Clinical Study of OBI-1 in Hemophilia A Patients
Octapharma Announces First Trial Recipients of rFVIII from Human Cell Line
Baxter to Acquire Archemix’s Hemophilia Therapy Assets
“Next Generation” of HeliTrax® System Now Available
eNotes—November 2010
Lead Story
Plants Help Prevent Inhibitors and Allergic Reactions
Medical News
Study Shows Oral Tranexamic Acid Treats Menorrhagia
Actavis Issues Pain Patch Voluntarily Recall
Advocacy and Legislative Updates
IOM Releases Report on Rare Diseases
HHS Waives Annual Cap Rules in Certain Circumstances
Law Signed to Improve Access to Clinical Trials
NHF and Community News
Still Time to Register for NHF’S Annual Meeting in the Big Easy
Consensus Conference Will Be Conducted During NHF’s Annual Meeting
Vote for NHF to Win a Grant to Fight Obesity
Successful Walk Season Crosses Finish Line
NHF Announces Kevin Child Scholarship Winner
Industry News
Octapharma Announces Research Application Deadline and Launch of New Web Site
eNotes—October 2010
Lead Story
Research Update: Lab Rats Could Enhance Hemophilia Research
Medical News
Review of Care and Treatment: Bleeding Disorders Patients in the ER
Wall Street Journal Article Stresses Importance of Medical IDs
Advocacy and Legislative Updates
Governors Decide on Key Legislation
NHF Co-Hosts Washington Premiere of “Bad Blood”
NHF and Community News
Register Now for NHF’S Annual Meeting in the Big Easy
Consensus Conference Convenes During NHF’s Annual Meeting
Walk Forward This Fall
Online Education Modules Accessible to Providers Anytime
eNotes—September 2010
Lead Story
Research Update: DNA Affects VWD Testing in African Americans
Medical News
Baxter Issues Drug Warning for FEIBA Products
CHOP Researchers Study Factors V and VIII Activation
London Researchers Study Menorrhagia in Girls with Bleeding Disorders
Advocacy and Legislative Updates
NHF Comments on Insurance Regulations
NHF and Community News
Register Now for NHF’s Annual Meeting in the Big Easy
Walk Forward This Fall
NHF Announces Nursing and Social Work Fellowship Recipients
Be Heard During Pain Awareness Month
NHF Announces PRF Scholarship Winners
Industry News
Sign up for PPTA’s September Health Reform Webinar
Chicago HTC Receives Octapharma Research Award
Baxter’s ADVATE® Maintains Safety, Low Inhibitors Risk in Study
FDA Approves New Syringe for Pfizer’s XYNTHA®
NovoSeven® RT Receives FDA Approval for Larger Vial Size
eNotes—August 2010
Lead Story
Register Soon to Receive Annual Meeting Discount
Advocacy and Legislative Updates
New Health Insurance Plans to Provide Free Preventive Care
Blood Safety News
Federal Blood Safety Committee Reviews Donor Deferral Rules
NHF and Community News
2010 Hemophilia Walks Hitting the Pavement
Last Chance to Register for Inhibitor Summits
CSL Behring Announces 2010 Junior National Championships
Research is Our Future Reaches the Social Network
NHF’s MASAC Issues New Documents
Industry News
Biogen Idec and Swedish Orphan Biovitrum Report Progress on Hemophilia Therapies
Pfizer Reports on Hemophilia Studies at WFH Congress
UCF Professor Receives Research Grant from Bayer
PPTA To Host Health Reform Webinar
eNotes—July 2010
Lead Story
NHF Announces New Board Chair, Members
Medical News
Swedish Study Assesses Osteoporosis Prevention in People with Severe Hemophilia
Results of Obesity Review in Mississippi’s Hemophilia Population
Researcher Receives NIH Grant for Hemophilia A Inhibitor Study
Advocacy and Legislative Updates
New Regulations Released Affecting Health Insurance Market
NHF Represented on Key Health Reform Working Group
Blood Safety News
American Red Cross Fined More Than $16 Million for Blood Safety Violations
NHF and Community News
Register Now to Receive Annual Meeting Discount
2010 Hemophilia Walks Still Underway
Still Time to Register for Inhibitor Summits
CSL Behring Announces 2010 Junior National Championships
College Scholarships Calling Your Name?
2010 Camp Directory Now Available
NHF Announces 2010 Judith Graham Pool Postdoctoral Research Fellowship Recipient
Research is Our Future Nears Campaign Goal
Industry News
CSL Behring Announces Latest LEAD Grant Awards
eNotes—June 2010
Lead Story
FDA Hearing on Expanding Access to Antivirals for HCV Patients
Medical News
Mayo Clinic Study Shows Women with Bleeding Disorders’ Satisfaction with Global Endometrial Ablation
AANP Launches Educational Initiative for Young Women with VWD
2010 NHF-Baxter Clinical Fellowship Award Recipients Announced
Advocacy and Legislative Updates
NHF Presents at FDA Blood Safety Workshop
HHS Secretary Urged to Enforce Ending Lifetime Caps
Blood Safety News
CDC Scientists Profile Threats to Blood Safety
FDA Announces Revised vCJD Industry Guidelines
NHF and Community News
Register Now to Receive Annual Meeting Discount
First-Time Annual Meeting Attendees Eligible for Grants
NHF 2010 Walk Season in Full Stride
Register Now for Summer Inhibitor Summits
CSL Behring Announces 2010 Junior National Championships
College Scholarships Calling Your Name?
2010 Camp Directory Now Available
Research is Our Future Nears Campaign Goal
Industry News
Octapharma’s Wilate Now Available from Distributors
Grifols to Acquire Talecris, Pending Approval
eNotes—May 2010
Lead Story
NHF’s Response to PPTA Call for Comments on Plasma Standards
Medical News
Mayo Clinic Examines Circumcision-Induced Bleeding
UNC Uses Stimulus Funds for Animal Research Facilities
Mount Sinai Hematologist and Researcher Receives Lifetime Achievement Award
Blood Safety News
NHF Supports Dublin Consensus Statement
Advocacy and Legislative Updates
Maine Passes Law to Ban Health Insurance Caps
National Pain Issues Included in Healthcare Reform Bill
NHF and Community News
Last Chance To Apply for NHF’s PRF Academic Scholarships
Kevin Child Scholarship Applications Due Soon
Got Leadership Skills? NYLI Needs You
NHF’s Annual Meeting: Marching to New Orleans in November
NHF Announces Call for 2010 Annual Meeting Poster Abstracts
Hang Out in the Hamptons with the “Royal Pains” Crew
First-Time Annual Meeting Attendees Eligible for Grants
NHF 2010 Walk Season in Full Stride
Register Now for Summer Inhibitor Summits
Research is Our Future Nears Campaign Goal
2010 Camp Directory Coming Soon
Industry News
Grifols Announces New Needle-Free Factor Mixing Device
eNotes—April 2010
Lead Story
H1N1 Flu Update
Medical News
Research Update: Gene Therapy for Hemophilia B Enters New Development Phase
Agencies Streamline Orphan Drug Submission Process
Advocacy and Legislative Updates
Health Reform Prioritizes Creating National High-Risk Pool
Update on 2011 Budget for CDC’s Hemophilia Program
Congresswoman McCarthy Introduces Bleeding Disorder SAFE Act
Blood Safety News
Health Agencies Investigating Possible Transmission of XMRV via Blood Supply
NHF and Community News
Apply Now for NHF’s PRF Academic Scholarships
Got Leadership Skills? NYLI Needs You
NHF’s Annual Meeting: Marching to New Orleans in November
NHF Announces Call for 2010 Annual Meeting Poster Abstracts
First-Time Annual Meeting Attendees Eligible for Grants
NHF and Baxter Launch 3rd Hemophilia Walk Season
NHF 2010 Walk Season is Underway
2010 Inhibitors Summits Have Arrived
Time to Support Research is Our Future
HemAware Now Online
Passing of Hematologist Robert Janco, MD
Industry News
CSL Behring Awards New LEAD Advocacy Grants
eNotes—March 2010
Lead Story
FDA Warns Consumers of Possible Side Effects Related to Confusing Maalox® Labels
Medical News
H1N1 Flu Update
NHLBI Grants to Drive Stem Cell Research for Blood Disorders
Research Update: Lungs Help Regulate Clotting
Advocacy and Legislative Updates
Advocating En Masse at Washington Days
Blood Safety News
CDC Announces New Surveillance System
NHF and Community News
HemAware Now Online
Leadership Weekend Equips Chapters with Tools and Skills
NHF and Novo Nordisk Launch Campaign for Our Future - Phase II
Apply Now for NHF’s PRF Academic Scholarships
NHF 2010 Walk Sites Now Planning and Preparing
NHF’s Annual Meeting: Marching to New Orleans in November
Industry News
Octapharma USA Announces Research Grants Application Deadline
eNotes—February 2010
Lead Story
eNotes—January 2010
Lead Story
H1N1 Vaccine Distribution
Medical News
New HCV Therapy Shows Promise in Early Trials
FDA Approves New von Willebrand Disease Product
Vigorous Athletic Activity May Not Harm Children with Hemophilia
Advocacy and Legislative Updates
Updated Analysis of Health Reform Bills Available
NHF and Community News
Last Chance to Purchase Annual Meeting CDs
Registration Now Open for Washington Days 2010
"Conversations" Book Available Through HANDI
NHF 2009 Walks Break the Tape
Campaign Update
New MASAC Documents Issued During NHF Annual Meeting
Industry News
MedPro Rx Now Accepting Scholarship Applications
Bayer Provides Summer Leadership Internship
eNotes—December 2009
Lead Story
H1N1 Vaccine Distribution
Medical News
FDA Approves New Indication for Tranexamic Acid
Advocacy and Legislative Updates
Health Reform Overview
Blood Safety News
CDC Reports West Nile Virus Transmission Modes
Limited Use of vCJD Filter in UK Criticized
NHF and Community News
Get Your Annual Meeting CDs Now
Register Soon for Washington Days 2010
NHF 2009 Walks Break the Tape
Campaign Update
Social Media and the Web-- Staying Savvy on Safety and Privacy Issues
Industry News
WFH Receives Largest Donation to Humanitarian Aid Program
Ataluren Trial in Hemophilia Patients with Nonsense Mutations
Baxter Launches Education Advantage Scholarship Program
eNotes—November 2009
Lead Story
H1N1 Vaccine Distribution
Medical News
Study Documents Disparities in Hemophilia A Prevalence
Patients in Italy Respond Well to Hepatitis C Treatment
Research Update: Investigators Review Confusing Case of VWD Misdiagnosis
Advocacy and Legislative Updates
House Passes Health Reform Legislation
Ryan White Program Reauthorized
HIV Travel Ban Lifted
NHF and Community News
It’s a Wrap—Annual Meeting’s Success in San Francisco
Annual Meeting CDs Now Available
Washington Days and Leadership Weekend Link Arms Again
NHF 2009 Walks Break the Tape, Locations Announced for 2010
Campaign Update
Social Media and the Web-- Staying Savvy on Safety and Privacy Issues
NHF Announces Letter of Intent Deadline for JGP Postdoctoral Research Fellowship
NHF Announces Institutional Application Deadline for Clinical Fellowship Program
Industry News
Biogen Idec and Biovitrum AB Announce Clinical Trials for rFIXFc
Pfizer Acquires Wyeth
Baxter Announces PACT Grant Winners
eNotes—October 2009
Lead Story
FDA Approves Vaccines for H1N1 Virus
Medical News
HTCs Report on Adult Prophylaxis for Hemophilia A
Australian Boys with Bleeding Disorders Perform Well in Fitness Tests
Advocacy and Legislative Updates
Wilkes Takes Center Stage to Spotlight the Underinsured
Update on Lifetime Caps in Health Reform
Health Insurance Reform Update
Standards of Care Legislation Advances in the PA House of Representatives
Tell Your Story
Blood Safety News
Company Reports on vCJD Blood Test at WFH Forum in Montreal
NHF and Community News
NHF Receives CDC Cooperative Agreement Award
Still Time to Register and Save at NHF’s 61st Annual Meeting in San Francisco
NHF Announces New Inhibitor Publication
NHF Walks Step up the Pace
Washington Days and Leadership Weekend Link Arms Again
Join the Bleeding Disorders Community on Facebook and Twitter
Update on Campaign for Our Future
Industry News
Octapharma Holds Symposia During ISTH Congress
Bayer Facility Stays in Berkeley, Slated for Improvements
Wyeth Announces Scholarship Recipients
eNotes—September 2009
Lead Story
Duke Study Links Genetic Determinant with HCV Therapy Success
Medical News
Concerns Still Raised as H1N1 Influenza A (Swine Flu) Cases Spread Nationwide
Research Update: T Cells are Key Players in Immune System Tolerance of Clotting Factor
Advocacy and Legislative Updates
Wilkes Takes Center Stage to Spotlight the Underinsured
NHF Supports CDC’s Proposed Lifting of HIV Travel Ban
Update on Ryan Dant Health Care Opportunity Act
Healthcare Reform: Myths and Misunderstandings
Accessing COBRA Benefits After Layoffs
Blood Safety News
NHF Releases Position on Biosimilars
NHF and Community News
Still Time to Register for Annual Meeting in the City by the Bay
Join the Bleeding Disorders Community on Facebook and Twitter
Calling All Social Media Experts
Hit the Road with NHF’s Walks
NHF Nosebleeds Brochure Now Available in Spanish
NHF Announces PRF Scholarship Recipients
Scholarship Winner Lives for Golf
Philly HTC Wins WFH Award
Update on Campaign for Our Future
Get Involved in Pain Awareness Month Activities
Industry News
Bayer Announces Self-Infusion Training Program and FDA Approval of Larger Kogenate®FS Vial Size
CSL Behring’s Helixate®FS Receives FDA Approval for Prophylaxis in Children
eNotes—August 2009
Lead Story
Research Update: Aging Hemophilia Patients Experience Clinical Challenges
Medical News
Concerns Still Raised as H1N1 Influenza A (Swine Flu) Cases Spread Nationwide
Duke Researchers Review Hysterectomy Risks in Women with VWD
Advocacy and Legislative Updates
Two Days Left to Participate in Healthcare Reform Call-in Campaign
Health Reform Legislation Progress
Straight Talk about Medicare and Healthcare Reform
NHF Joins New Plasma Users Coalition
Blood Safety News
FDA Releases Plasma Screening Guidelines for Parvovirus B19
CEO Represents NHF at Blood Products Advisory Committee Meeting
NHF and Community News
Register Now to Receive Annual Meeting Discount
Hit the Road with NHF’s Walks
Calling All Social Media Experts
Team Hemophilia Shapes up Campers
NHF Announces 2009 Career Development Award and Judith Graham Pool Postdoctoral Research Fellowship Recipients
NHF Announces 2009 Clinical Fellowship Awardees
NHF Announces 2009 Nursing, Social Work and Physical Therapy Fellowships
Donate Now to Campaign for Our Future
Industry News
Flamel and Baxter to Develop Longer-Acting Hemophilia Therapies
CSL Behring Improves Data Management System for Hemophilia A Patients
Bayer Announces 2009 International Awards Recognizing Promising Clinicians, Researchers and Nurses
eNotes—July 2009
Lead Story
Research Update: Synthetic Interferon, a New Option for HCV Patients
Medical News
Concerns Still Raised as H1N1 Influenza A (Swine Flu) Cases Spread Nationwide
Research Update: “Sleeping Beauty” Helps Correct Hemophilia A in Mice
Data Reported on Severe Type 3 VWD Patients
Pioneering Bleeding Disorders Researcher Dies at 87
Advocacy and Legislative Updates
Current State of Health Reform
Blood Safety News
NHF CEO Meets with FDA
NHF Submits Testimony to TSEAC
NHF and Community News
Register Now to Receive Annual Meeting Discount
Scholarships for Savvy Students
Team Hemophilia Shapes up Campers
2009 Hemophilia Walks in Motion
Donate Now to Campaign for Our Future
Industry News
Wyeth and Catalyst to Develop FVIIa Products
eNotes—June 2009
Lead Story
Concerns Still Elevated as H1N1 Influenza A (Swine Flu) Cases Spread Nationwide
Medical News
Research Update: FVIIa Successfully Treats Canine Hemophilia
International Panel To Publish Findings on Menorrhagia
Italian Study Assesses Total Knee Replacement in Hemophilia
Medicare Not Ready to Pay for Genetic Tests for Warfarin Dosing
Obama Appoints NYC Health Commissioner as CDC Director
Advocacy and Legislative Updates
Senate Healthcare Proposals Include Lifting Lifetime Caps
Blood Safety News
FDA Investigation Reveals Heparin Cases Were Isolated
NHF and Community News
Register Now to Receive Annual Meeting Discount
10 Days Left Until Poster Abstracts Deadline
Educational Participant Grants for First-Time Meeting Attendees
Scholarships for Savvy Students
Team Hemophilia Shapes up Campers
NHF Welcomes NYC Chapter
2009 Hemophilia Walks in Motion
WFH Award Goes to Orthopedic Surgeon in Colorado
Donate Now to Campaign for Our Future
eNotes—May 2009
Lead Story
Concerns Raised as H1N1 Influenza A (Swine Flu) Cases are Reported in 41 States
Medical News
Research Update: Gene “Hijacked” to Produce Factor VIII
Research Update: Inhibitor Development in Blacks with Hemophilia A Linked to Genotypes
Research Update: Hemophilia Patients with HCV/HIV Benefit from HAART
Dutch Boys with Hemophilia Demonstrate Physical Fitness
Canadian Researcher Reviews CVADs Side Effects in Immune Tolerance Therapy
Advocacy and Legislative Updates
Fight to Raise Lifetime Caps Advances
NHF and Community News
61st Annual Meeting Registration Now Open—Register Early, Save Money
NHF Announces Call for Annual Meeting Poster Abstracts
Educational Participant Grants for First-Time Meeting Attendees
2009 Hemophilia Walks in Motion
Last Chance for Women To Apply for 2009 PRF Scholarship
Enter the “Fight HIV Your Way” Contest
Mark Your Calendars for Spring Summit 2009
Gifted Art Student Dies at 27
Donate Now to Campaign for Our Future
eNotes—April 2009
Lead Story
Genavia to Access Origen’s Transgenic Animals to Manufacture Factor VIII
Medical News
Study Shows Prophylactic Use of APCC Effective in Inhibitor Patients
Immune Tolerance Study Shows Promise for Hemophilia A
Multi-site Study Compares Menorrhagia Drugs’ Efficacy
Advocacy and Legislative Updates
PriceWaterhouseCoopers Study Demonstrates Need to Raise Lifetime Caps
Blood Safety News
FDA Committee Discusses Additional Blood Safety Measures for Donors
NHF and Community News
NHF Announces Michael O’Connor as New Board Chair
San Francisco Here We Come
Educational Participant Grants for First-Time Meeting Attendees
Limited Funding for First Step Programs
2009 Hemophilia Walks in Motion
Women Encouraged To Apply for 2009 PRF Scholarship
Mark Your Calendars for Spring Summit 2009
Donate Now to Campaign for Our Future
eNotes—March 2009
Lead Story
Obama Administration Demonstrates Commitment to Healthcare
Medical News
Hemophilia B Gene Therapy Vector Shows Promise
Blood Safety News
Report Calls for Compensation for UK Blood Scandal Victims
NHF and Community News
San Francisco Here We Come
Record Turnout for Washington Days
NHF Announces 2009 Hemophilia Walk Sites
Women Encouraged To Apply for 2009 PRF Scholarship
Mark Your Calendars for Spring Summit 2009
Donate Now to Campaign for Our Future
Industry News
Lentigen and Expression to Collaborate on Hemophilia A Therapies
Inspiration Begins Clinical Trial for Recombinant Factor IX Drug
eNotes—February 2009
Lead Story
Bayer Sponsors Team Hemophilia Camp Initiative
Medical News
FDA Licenses First Concentrate for Factor I Deficiency
Study Indicates Stem Cells Can Fight AIDS
NHF and Community News
Record Turnout Expected for Washington Days 2009
Last Chance to Apply for Bayer's Summer Leadership Internship
Time to Register for Hemophilia B Symposium
Women Encouraged to Apply for 2009 PRF Scholarship
NHF Announces Spring Summit 2009
Campaign for Our Future Kicks off at Annual Meeting
NHF Announces 2009 Hemophilia Walk Sites
NACCHO 2009: Camps Are Us
Industry News
FDA Approves ATryn, First Drug from Genetically Engineered Animals
Pfizer To Acquire Wyeth
Blood Safety News
Lawsuits by Taiwanese Hemophilia Patients to Proceed in US Court
UK Government Continues Withholding Blood Contamination Evidence
Advocacy and Legislative Updates
Obama Signs SCHIP Bill; Medicaid Expansion Pending Recovery Bill
eNotes—January 2009
Lead Story
WFH Publishes Haemophilia Issue on Rare Bleeding and Clotting Disorders
Medical News
New Test Developed by SLU Researchers May Predict HCV Therapy Success
University of Rochester Team Makes Progress on Advanced FVIII
NHF and Community News
Two Weeks Left to Register for Washington Days
One Week Left to Order Your Annual Meeting CDs
Apply Now for Bayer’s Summer Leadership Internship
Time to Register for Hemophilia B Symposium
Richard Oliver Johnson, Sr., Dies at 57
Long-time Louisiana Chapter Member Dies at 71
Campaign for Our Future Kicks off at Annual Meeting
NHF Announces 2009 Hemophilia Walk Sites
Industry News
Baxter Announces Recombinant VWD Trial
Avigen Sells Coagulation Drug Rights to Baxter
Blood Safety News
Variant vCJD Case Prompts Fears of New Cases
FDA Approves First Nucleic Acid Test for HIV in Donated Plasma and Tissue
eNotes—December 2008
Lead Story
Wisconsin Researchers Use Bone Marrow to Treat Mice with Hemophilia A
Medical News
Duke Study To Investigate HIV Resistance Factors in Hemophilia
NHF and Community News
Register Soon for Washington Days 2009
Annual Meeting CDs on Sale Now
Campaign for Our Future Kicks off at Annual Meeting
NHF Announces 2009 Hemophilia Walk Sites
New Mild Hemophilia Brochure Available
Industry News
Bayer Schering to Fund HTC Network in China
FDA Grants Orphan Drug Status to Recombinant FIX Product
eNotes—November 2008
Lead Story
NHF CEO Featured in Black Enterprise Magazine
Medical News
Norwegian Researchers Identify Risk Factors for Obstetric Bleeding
Duke Study Shows IUD Can Reduce the Length of Heavy Periods
IHP Launches New Hemophilia Certificare Program for Nurses
Manno Appointed Chair of NYU Pediatrics Department
NHF and Community News
Register Onsite for NHF’s 60th Annual Meeting in Denver
Hemophilia Walks Exceed Expectations
Washington Days and Leadership Weekend Combine Forces in 2009
New Interactive Pain Management Web Site Promotes Communication
Industry News
FDA Approves Prophylactic Use of Kogenate® FS
ADVATE® Performs Well in New Study on Children
Companies Sign Agreement on Factor VIIa Drug Candidate
Blood Safety News
Blood and Product Safety: Everyone’s Responsibility
Advocacy and Legislative Updates
New Law Ensures Insurance Coverage to College Students During Medical Leave
eNotes—October 2008
Lead Story
FDA Reports Low Risk for Heparin Contamination in Factor Products
Medical News
ASH Launches Web Site to Educate Consumers on Blood
Company Issues Warnings After Patients Develop Leukemia
Study Suggests Single Dose Regimen Helps Treat Joint Bleeds in Inhibitor Patients
NHF and Community News
Register for NHF’s 60th Annual Meeting by 10/31 and Save $50
Hemophilia Walks Exceed Expectations
Washington Days and Leadership Weekend Combine Forces in 2009
Nevada Governor Proclaims November 1st Renée Paper Day
Industry News
Grifols Launches New Drug Tracing System
PPTA Web Site Provides Plasma Therapy Information
Blood Safety News
Scottish Researchers Demonstrate TSE-Infection via Blood Donations
eNotes—September 2008
Lead Story
New Study Will Monitor Postpartum Bleeding in VWD Patients
Medical News
ITP Drug Receives FDA Approval
Canadian Researchers Find Some Women at Lower Risk for Recurrent Thrombosis
NHF and Community News
Still Time to Register for NHF’s 60th Annual Meeting in the Mile-High City
NHF Announces PRF Scholarship Winners
The Sky’s the Limit for Scholarship Winner
NHF Introduces New Fundraising Campaign
Hemophilia Walks Coming Your Way
Industry News
CSL Ltd. Acquires Talecris
New Clotting Drug Granted Priority Review by FDA
Blood Safety News
Scottish Man Accuses Physician of Withholding HIV Diagnosis
Advocacy and Legislative Updates
New GINA Guide Available Online
eNotes—August 2008
Lead Story
President Signs Repeal of Ban on Travel to U.S. for People with HIV/AIDS
Medical News
Dutch Study Measures Aerobic Capacity in Boys with Hemophilia
Puget Sound Blood Center Founder/Director/Researcher to Retire
NHF and Community News
60th Annual Meeting Registration—Register Now for Discount
NYLI Deadline Extended
NYLI Rounds up Teens for Texas Retreat
Walk into the New Year—Host a Hemophilia Walk at Your Chapter
American Pain Foundation: Calling All Artists
NHF Introduces New Fundraising Campaign
Team Hemophilia on Tour Racing Ahead
Hemophilia Walks Coming Your Way
NHF Announces 2008-2009 Fellowship and Research Award Recipients
Industry News
NHF Chapters Receive CSL Advocacy Grants
Bayer Acquires Maxygen’s Recombinant Factor VII Drug Candidate
AMT and St. Jude Partner to Develop Hemophilia B Gene Therapy
Ipsen Acquires OBI-1 Drug
Advocacy and Legislative Updates
Lifetime Insurance Caps Bill Introduced In U.S. House of Representatives
eNotes—July 2008
Lead Story
NHF’s MASAC Issues First Standards for Clotting Factor Providers
Medical News
Groundbreaking Researcher Dies at 91
NHF and Community News
60th Annual Meeting Registration—Register Now for Discount
NHF Offers Travel Grants to First-time Annual Meeting Attendees
NHF’s First Step Offers Refresher Course
NYLI Recruits New Leaders
NYLI Rounds up Teens for Texas Retreat
NHF Introduces New Fundraising Campaign
Student Scholarship Information at the Click of a Mouse
Team Hemophilia on Tour Racing Ahead
Hemophilia Walks Coming Your Way
New MASAC Recommendations Issued
Industry News
CSL Behring Awards Researchers
Bayer Honors 2008 Awardees at WFH Congress
First Clinical Trial Completed for Longer-Acting Factor VIIa Drug
Baxter Reports Advances in Preclinical Research
eNotes—June 2008
Lead Story
President Bush Signs Genetic Information Nondiscrimination Act into Law
Medical News
CDC Appoints New Division of Blood Disorders Director
Scientists Report Advances in Novel Gene Therapy Vector
Modified FVIII Protein May Block Inhibitors
Pakistani Physicians Discuss Complications in Women with Bleeding Disorders
NHF and Community News
Registration Still Open for New York State Advocacy Training Day
60th Annual Meeting Registration—Register Early, Save Money
Student Scholarship Information at the Click of a Mouse
Team Hemophilia on Tour Hits the Track at Indy
NYC Hemophilia Walk Exceeds Expectations
NHF’s First Step Offers Refresher Course
NYLI Rounds up Next Group of Leaders
NHF’s It’s Time for Cure Campaign Concludes
PBS Airs Episode on VWD
Industry News
Catalyst Biosciences Developing Factor VIIa Drug for Hemophilia Patients
FDA Approves New Recombinant FVIIa Formulation
New Recombinant Factor IX Drug Reaches Clinical Trial Stage
Advocacy and Legislative Updates
CMS Clarifies Position on SCHIP Eligibility
eNotes—May 2008
Lead Story
Genetic Information Nondiscrimination Act Passes in House and Senate
NHF and Community News
60th Annual Meeting Registration—Register Early, Save Money
Student Scholarship Information at the Click of a Mouse
Team Hemophilia on Tour Hits the Street Running at Indy
Hemophilia Walk Kicks off in NYC in June
Preview of WFH’s 2008 Congress in Istanbul
NHF’s First Step Offers Refresher Course
World Hemophilia Day Focuses on Awareness and Outreach
NYLI Rounds up Next Group of Leaders
Michigan Chapter Honors State Legislators
Industry News
Bayer Launches Electronic Data Device
eNotes—April 2008
Lead Story
Heparin Contaminant Identified
Medical News
Researchers Discover Safer Anti-clotting Therapy
NHF and Community News
NHF's Washington Days Breaks Records and Expands Its Reach
60th Annual Meeting Registration-Register Early, Save Money
Call for Poster Abstracts for NHF's 60th Annual Meeting
Student Scholarship Information at the Click of a Mouse
Preview of WFH's 2008 Congress in Istanbul
NYLI Rounds up Next Group of Leaders
Hemophilia Walk Kicks off in NYC in June
NHF Announces New Board Members
WFH Appoints New CEO
Industry News
Promising New Recombinant Factor IX Drug Receives FDA Approval for Clinical Studies
Wyeth Announces FDA Approval of Recombinant Factor VIII Drug
Drug Candidate for TTP Entering Phase 2 Trial
Advocacy and Legislative Updates
NHF Voices Concern on Proposed Medicaid Changes
eNotes—March 2008
Lead Story
NHLBI Issues First US VWD Guidelines
Medical News
Transplanted Liver Cells Correct Hemophilia A in Mice
Patient Side Effects Cause Baxter To Suspend Heparin Production
CLSI Publishes New Guidelines for Coagulation Testing
NHF and Community News
60th Annual Meeting Registration—Register Early, Save Money
Hemophilia B Spring Symposium This Weekend
Apply Now for PRF Scholarship
Preview of WFH’s 2008 Congress in Istanbul
Hemophilia Walk Kicks off in NYC in June
NACCHO Announces Award Winners
eNotes—February 2008
Lead Story
FDA Approves New HIV Drug for Hard-to-Treat Patients
Medical News
Researchers Discover Minor Leg Injuries Can Increase Thrombosis Risk
FDA Approves Revised Label for Contraceptive Patch
NHF and Community News
Register Now for Washington Days 2008—You Can Make a Difference
NHF Announces 2008-2009 First Step Grants
Mark Your Calendars for Hemophilia B Spring Symposium
PRF Scholarship Announces Women’s 2008 Scholarships
Hemophilia Walk Kicks Off in NYC in June
Industry News
Baxter Developing New Hemophilia B Therapies
Blood Safety News
Unusual vCJD Case Diagnosed in UK
Japanese Victims of HCV Blood Scandal To Receive Compensation
Canadian Government Drops Remaining Charges Against Perrault
Advocacy and Legislative Updates
President Slashes Healthcare in 2009 Budget
eNotes—January 2008
Lead Story
Register Now for Washington Days 2008—You Can Make a Difference
Medical News
Scientists Use Stem Cells To Correct Sickle Cell Anemia in Mice
HTC Publishes Study on Epidural Anesthesia in Pregnant Women with VWD
British Patient Undergoing Gene Therapy Develops Leukemia
Danish Research Shows Sustained Clot Formation in Hemophilia A Patients Treated with Dual Therapy
NHF and Community News
Last Chance to Submit Project Red Flag Grant Applications
Bayer HealthCare Offers Summer Internship for College Students
Mark Your Calendars for Hemophilia B Spring Symposium
Industry News
ATryn® Receives Orphan Drug Designation
CSL Behring Reports on Potential for Longer-Lasting Factor VIIa Therapy
Nektar Announces Agreement with Baxter to Develop New Hemophilia A Therapy
Advocacy and Legislative Updates
No Compromise Reached on Expanding SCHIP--President Signs Stopgap Measure Extending Current Program for One Year
eNotes—December 2007
Lead Story
The Need for Continued Vigilance—Organizations Publish Open Letter on Blood Safety Issues
Medical News
California HTC Performs Retrospective Review of Elbow Procedures
Ohio HTC Receives CDC Grant for Amish Health Awareness
NHF and Community News
Last Chance to Purchase Audio CDs for Annual Meeting Sessions
Registration Forms Due Next Week for NYLI’s First-Ever Teen Retreat
Project Red Flag Grant Applications Now Being Accepted
Bayer HealthCare Offers Summer Internship for College Students
New NHF Publication on Nosebleeds Now Available
New MASAC Recommendation on Prophylaxis Available on NHF Web Site
Industry News
Hemophilia B Drug Submitted for IND Status Approval
Blood Safety News
FDA Alerts DDAVP Manufacturers of Prescribing Information Change
eNotes—November 2007
Lead Story
Hemophilia Treatment Center Releases Study Data on Menorrhagia in Adolescent Patients
Medical News
Hematologist/Researcher Elected to Institute of Medicine
NHF and Community News
CDs on Sale for Annual Meeting Sessions
NHF’s NYLI Plans First-Ever Retreat for Teens
Women’s Bleeding Disorders Advocate Dies at 49
Industry News
Pharming Group Receives FDA Orphan Drug Status for Fibrinogen
Apria to Acquire Coram, Inc., for $350 Million
Humate-P® No Longer Requires Refrigeration
Advocacy and Legislative Updates
Children’s Health Insurance Expansion Still on Hold
eNotes—October 2007
Lead Story
Bush Vetoes SCHIP Reauthorization--Act Now to Ask Congress to Override
Medical News
New Genetic Test for Warfarin Dosing Receives FDA Approval
Plasma Shortfall in China Spurs Government and Community Response
Blood Safety News
FDA-Approved Test Could Improve Safety Record of Platelet Transfusions
FDA Approves Second West Nile Screening Test
Scottish Researcher Warns That vCJD Remains a Threat
NHF and Community News
Register for Annual Meeting by 10/19, Avoid Processing Fee
NHF's NYLI Plans First-Ever Retreat for Teens
WFH Appoints Interim CEO/Executive Director
NHF's HANDI Resource Center Offers New Provider Publications
eNotes—September 2007
Lead Story
Joint Outcome Study Results Published in the New England Journal of Medicine
Medical News
Maraviroc Receives FDA Approval
FDA Approves Revised Labeling for Coumadin®
Study Published on Hemophilia B Gene Therapy by Intramuscular Injection
NHF and Community News
Still Time to Register for Annual Meeting
American Pain Foundation Calls for Submissions for Pain and Creativity Exhibit
Seattle Social Worker Retires after Decades of Service
Internationally Recognized Hematologist and Researcher Dies at 73
New Provider Resources from NHF’s HANDI Resource Center
Blood Safety News
Irish Government Briefing Provides Update on Compensation Payments
Advocacy and Legislative Updates
Status of State Children’s Health Insurance Program Expansion
eNotes—August 2007
Lead Story
NHF Announces New Interim CEO
Medical News
Study Identifies Predictors for HCV Treatment Success or Failure
Experts Debate Gene Therapy Vectors
Gene Therapy Clinical Trial Patient Dies
New Oral HIV Drug Close to Approval in Europe
NHF and Community News
Last Chance to Receive 5% Discount on Annual Meeting Registration!
Deadline Extended for Annual Meeting Poster Abstracts
Last Call for National Youth Leadership Institute 2007 Applications
Scholarship Founder Dies at 78
Scholarship Winner Plans Career in Broadcasting
NHF Announces Fellowship Winners
Industry News
EpiVax Receives Grant to Study Modified FVIII Proteins
Wyeth Takes Over Distribution of BeneFIX® in Europe
Baxter Study Shows Benefits of Prophylactic Use of Advate®
New Hemophilia B Drug Candidate Presented at ISTH Congress
Bayer Reports Potential Longer-Acting Recombinant Factor VIII with PEG
Advocacy and Legislative Updates
Increased Funding for CDC Hemophilia Program in House Bill
Illinois Governor Signs Hemophilia Advisory Review Board Bill
eNotes — July 2007
Lead Story
Texas Governor Signs Bleeding Disorders Advisory Council Act
Medical News
UK Researchers Study Postpartum Bleeding in Women with Factor XI Deficiency
European Hematology Association Recognizes Thrombophilia Expert
Study Reveals Pregnancy Complications in Women with von Willebrand Disease
NHF and Community News
Register Now to Receive 5% Discount on Annual Meeting Registration!
NHF’s Hemophilia Walk and Yacht Cruise Raise Funds and Awareness
Last Call for Poster Abstracts for NHF’s Annual Meeting
Apply Now for National Youth Leadership Institute
Industry News
Bayer Announces WFH’s 2007 International Nursing Fellowship Award Recipients
New Test Designed to Address Variable Warfarin Dosing
CSL Behring Foundation Provides Grants for Bleeding Disorders Research
Novo Nordisk Starts Clinical Trials of Longer-Acting Factor VIIa Product
Two Pharmaceutical Companies To Market New Recombinant Thrombin Product
Wyeth Announces New Self-Infusion Training Kit
Blood Safety News
UK Government Knew Blood Was Contaminated, Inquiry Shows
eNotes - May 2007
Lead Story
HCV Vaccine Shows Promise in Chimpanzees
Medical News
National Academy of Sciences Elects Bleeding Disorders Researcher
VCU Researchers Evaluate Liver Biopsy in Hemophilia
NHF and Community News
Register Now to Receive 10% Discount on Annual Meeting Registration
Team Hemophilia Races for NHF at the Indy 500 and Beyond
NHF to Host First National Preparedness Initiative Coalition Meeting
Call for Poster Abstracts for NHF’s Annual Meeting
Apply Now for National Youth Leadership Institute 2007
NHF’s Social Worker Symposium Was a Success
First Step Train-the-Trainer Workshop Hosted Teams from Across the Country
On the Road with NHF in New Orleans
Industry News
Humate-P® Receives FDA Approval for Additional Use
HepaLife Announces Progress in Developing Artificial Liver Device
Talecris Provides Grant for WFH Program in Developing Countries
Grifols Boosts Plasma Collection Capacity
Advocacy and Legislative Updates
Bleeding Disorders Advisory Council Bill Passes in Texas
eNotes - April 2007
Lead Story
Only 2 Days Left to Receive Your 15% Discount on Annual Meeting Registration!
Medical News
Pioneering Hematologist and Researcher Honored by UCI
UCSF Scientists Examine Procedure to Relieve Cirrhosis Complications
New Drug Candidate Could Circumvent Disease-Causing Genetic Mutation
NHF and Community News
Team Hemophilia Races for NHF at the Indy 500
NHF to Host Hemophilia Walk in NYC
New Online Discussion Group for People in Pain
Apply Now for National Youth Leadership Institute
NACCHO Offers New Youth/Teen Program
Camp Superfly III Attracts Record Number of Teams
Blood Safety Researcher Dies at 60
Visit Our Virtual Exhibit Hall
Industry News
FDA Approves New Biologic for Clotting Disorder
Blood Safety News
Iraqi Red Crescent Society Sues Drug Companies
Public Inquiry to Examine UK Blood Scandal
Japanese Courts Order Drug Companies to Pay Hepatitis C Compensation
UK Survey Shows Respondents Favor vCJD Blood Test
Advocacy and Legislative Updates
Genetic Information Nondiscrimination Act of 2007 Passes in the House
Scientists Lobby for Increased NIH Funding
States Will Move to Name-Based Tracking of HIV Patients This Year
Legislation Protecting Access to Care Advances in Several States
eNotes - March 2007
Lead Story
There’s Still Time to Make Your Voice Heard
Medical News
A New Class of HIV Therapies Facing Approval
Scientists Identify Protein Involved in HCV Infection
Mice Teach Humans about von Willebrand Disease
NHF and Community News
NHF Board of Directors Announces New Chair and Officers
Register Online Now to Save Money on Annual Meeting Registration
Team Hemophilia Races for NHF
Women’s Bleeding Disorders Advocate Dies at 40
Register Now for June Leadership Weekend in the Windy City
NACCHO Announces New Youth/Teen Program
National Youth Leadership Institute Calls for Applications
NACCHO Camp Award Recipients Announced
Visit Our Virtual Exhibit Hall
Industry News
Grifols To Expand Manufacturing Capacity
California Company and Stanford Researchers To Develop FIX Therapy
Wyeth Announces FDA Approval for BeneFIX® Product Enhancements
Blood Safety News
USDA Closes Only Mad Cow Disease Testing Laboratory in Northwest
vCJD Risk Information Available on New FDA Web Page
Enhanced Screening System for West Nile Virus Receives FDA Approval
Advocacy and Legislative Updates
Important Legislation Passes in Iowa House and Senate
State Awareness Day at Texas Capitol Gets Results
Kaiser Family Foundation Publishes Medicare and Medicaid Primers
eNotes - February 2007
Lead Story
Advocacy Group Petitions for Removal of Some Oral Contraceptives
Medical News
Study Uses DNA Testing to Monitor Warfarin Therapy
St. Jude Opens New Clinic for Children with Cancer and Blood Disorders
Research Update: “A Bare Bones Approach to Gene Therapy”
NHF and Community News
NHF Announces Hemophilia Awareness Month Fundraisers
Register Soon to Receive Discount for NHF’s 2007 Annual Meeting in Orlando
Bayer Awards $100,000 Grant to NHF's NYLI
NHF Receives $300,000 Grant from Novo Nordisk
NHF Web Site Provides College Scholarship Information
NHF Nominee Appointed as Consumer Liaison Representative
Coalition for Hemophilia B Hosts Spring Symposium in NYC
Visit Our Virtual Exhibit Hall
Industry News
CSL Behring Will Continue to Sell Helixate® FS
Alphanate® Receives FDA Approval for Some VWD Patients
Wyeth Enters Into Collaborative Research Agreements
Jerini and Baxter AG Formalize Research Collaboration
Blood Safety News
Robot Streamlines Hemophilia Lab in Canada
Researchers Suspect Possible Viral Cause of BSE
Advocacy and Legislative Updates
NHF’s Washington Days 2007 Provides Forum for You To Meet New Congressional Leadership
eNotes - January 2007
Lead Story
U.S. Weighs Blood Safety and Supply Concerns
Medical News
Emory University Scientists Study CDC Inhibitor Data
UC Scientists Study Local Population for Brain Bleeding in Warfarin Patients
A New Diagnostic Test for Hemophilia A
NHF and Community News
NHF Offers Camp and First Step Grants for Chapters and Associations
NHF Announces Hemophilia Awareness Month Fundraisers
Coalition for Hemophilia B Hosts Spring Symposium in NYC
Bayer HealthCare Offers Summer Internship
Project Red Flag Provides College Scholarships for Women
Former Ohio Chapter ED Dies at 59
Visit Our Virtual Exhibit Hall
Industry News
Lipoxen and Baxter Agree to Develop Improved Recombinant Factor VIII Products
Biogen Idec to Purchase Syntonix and Its Experimental Hemophilia B Drug
CSL Behring Announces Update on Global Name Change
Blood Safety News
Genetically Engineered Cattle Are Potentially Resistant to Mad Cow Disease
New UK Case of vCJD Infection through Transfusion
Advocacy and Legislative Updates
NHF’s Washington Days 2007 Provides Forum for You To Meet New Congressional Leadership
NHF Helps Dissuade Alabama Medicaid from Changing Its Factor Reimbursement Policy
Genetic Information Nondiscrimination Act Reintroduced
President Bush Orders Easing of Travel Restrictions on HIV-Positive Travelers
eNotes - December 2006
Lead Story
FDA Confirms Low Risk for Creutzfeldt-Jakob Disease
NHF and Community News
Only Five Days Left to Order Your Annual Meeting Session CDs
NHF’s Train-the-Trainer Program Coming to New Orleans
NHF To Offer Several Grants for Chapters and Associations
Visit Our Virtual Exhibit Hall
Industry News
Baxter Demonstrates Prolonged Half-Life for Hemophilia A Therapy in Mice
Novo Nordisk Study Suggests Secondary Prophylaxis Reduces Number of Bleeds
Blood Safety News
AIDS Activist Detained by Chinese Government for Second Time
FDA Approves First Chagas Disease Blood Test
Advocacy and Legislative Updates
Bleeding Disorders Community Members To Meet New Congressional Leadership at NHF’s Washington Days 2007
New Zealanders Infected by Hepatitis C to Receive Compensation
Congress Votes in Favor of Compromise Bill for AIDS Funding
eNotes - November 2006
Lead Story
College in Wisconsin Receives Federal Grant for VWD Research
Medical News
Professional Medical Organizations Collaborate on Menstruation Report
Tissue Factor May Help Predict Clots
FDA Grants Approval to Market Thrombophilia Test
Hemophilia Nurse Honored for Pediatric Care and Educational Efforts
Research Update: When Things Don’t Add up: The Immunology of HIV/HCV Coinfection
Research Update: Study Focuses on Surface Wounds in Hemophilia B
Research Update: CDC to Release Progress Report on Hemostasis and Thrombosis Centers
Industry News
Grifols Announces Factor Coverage Program
CVS Merges with Caremark, Creating Pharmacy Services Company
Bayer to Expand Berkeley Manufacturing Plant
NHF and Community News
NHF Announces New MASAC Chair
New MASAC Recommendations Available on NHF Web Site
Annual Meeting Session CDs Now Available
NHF’s Train-the-Trainer Program Coming to New Orleans
Former WFH Director Dies at 63
Key Founder of Southern California Chapter Dies at 83
NHF Launches State-of-the-Art Virtual Exhibit Hall
Advocacy and Legislative Updates
Kaiser Study Compares Medicare Part D Plans, Highlights Changes
Bleeding Disorders Community Members To Meet New Congressional Leadership at NHF’s Washington Days 2007
eNotes - October 2006
Lead Story
Gene Therapy Research Focuses on Nonviral Delivery
Medical News
Two Pharmaceutical Companies to Develop a Recombinant Factor VIIa Product
Canadians Improve Tool to Measure Quality of Life
NovoSeven® Approved for Use in Acquired Hemophilia Patients
FDA Issues New Guidelines for Manufacturers of Biologics
Research Update: Blood Test Measures Risk for Recurrent Venous Thromboembolism
Research Update: Less is More with Synthetic Inhibitors for Activated Protein C
NHF and Community News
Opening New Doors at NHF’s Annual Meeting
JNC Winners Kept Their Eyes on the Ball and the Prize
Youth Lead by Example at NHF’s Annual Meeting