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Nursing Excellence Fellowships

2009-2010 Recipient

Jocelyn Bessette Gorlin, RN, CPNP
The Children’s Hospitals and Clinics of Minnesota
Minneapolis, Minnesota

Use of Emergency Medical Identification in the Pediatric Hemophilia Population: A National Study

Nurses and health care providers  recommend Emergency Medical Identification (EMI) such as Medic Alert for children of all ages with hemophilia and other bleeding disorders, but most are unsure of what type should be used and where they should be located. This is because there are no guidelines on how EMI should be worn. This project will develop guidelines for the use of Emergency Medical Identification (EMI) and develop educational information for families of children with hemophilia. Guidelines will show recommended ages to wear EMI, its use with infants, and where it should be worn or if it should be carried. In addition, this project will review barriers for not wearing EMI based on our research, including perceived lack of need, sizing concerns for infants, and the fear of being different as expressed by adolescents.

Click Here to Learn About Previously Funded Recipients


All grant and fellowship applications are subjected to a rigorous peer review process. Applications are critiqued on scientific merit and relevance to NHF research priorities. Applications are reviewed and scored in terms of significance, approach, innovation, investigator, and environment. A volunteer group of scientific and lay leaders reviews applications received. The NHF Medical and Scientific Advisory Council (MASAC) and the NHF Board of Directors grant final funding approval.

The purpose of the National Hemophilia Foundation Nursing Fellowship is to provide support for a registered nurse currently employed or interested in hemophilia care to conduct nursing research or clinical projects. Endorsement by a federally funded hemophilia treatment center is recommended. Only registered nurses from an accredited nursing school enrolled in a graduate nursing program or practicing hemophilia nursing care may apply.

Collaboration with multidisciplinary care providers and/or between 2 or more hemophilia centers is accepted and encouraged. Collaboration efforts may include, for example, social work, physical therapy and genetics. It thus may be possible for a hemophilia center team to apply jointly for two or more of the nursing, social work and physical therapy excellence fellowships as a cooperative project or research endeavor. Additionally, regional applications will be considered.

Current topics of interest include, but are not limited to, the development of clinical pathways, measurable outcomes in bleeding disorders care, service utilization, epidemiology and patient and community education tools. Other topics include rehabilitation, therapeutic modalities, psychosocial issues, women's health in bleeding disorders, liver disease in clients with bleeding disorders and HIV/AIDS. The objectives of the fellowship are to improve the delivery of care and expand the knowledge of nursing science surrounding bleeding disorders.

Each year one new research fellowship of up to $13,500 will be awarded.


A letter of intent should be submitted to NHF. This should be a brief letter identifying the applying researcher and organization and the intended area of research.

Multidisciplinary applications are welcomed. If a multidisciplinary project is sought, you are encouraged to indicate in the letter of intent and in the application how the project would proceed if only one Fellowship is awarded.

For inquiries regarding applications, policy and procedures and programmatic information, contact:

Morgan Johnson, CAE, Manager of Healthcare Provider Programs
National Hemophilia Foundation
116 West 32nd Street, 11th Floor
New York, NY 10001
(800) 424-2634 ext. 3745 or (212) 328-3745
Fax: (212) 328-3799

Direct inquiries regarding fiscal matters to:

Department of Finance and Administration
National Hemophilia Foundation
116 West 32nd Street, 11th Floor
New York, NY 10001
(800) 424-2634 ext. 3726 or (212) 328-3726
Fax 212-328-3766