2008-2009 Recipient

Heidi Lane, PT, PCS Primary Children’s Medical Center, Salt Lake City, UT

“Outcomes Following Ankle Arthrodesis for People with FVIII/FIX Deficiency: A Look at the Universal Data Collection Project” In the clinic, for those of us who treat PWBD with advanced stage joint disease of the ankle, pain is greatly reduced following ankle fusion. However, what still remains unclear about these patients, and yet is available through the Center for Disease Control's Universal Data Collection project, are the following variables: current overall activity level; use of cane, crutches or walker (in the last year); number of days missed from work due to LE bleeds (in the last year); use of a wheelchair (in the last year); ankle ROM and report of additional lower extremity target joints post ankle fusion. We plan to perform a retrospective analysis of the above data points in patients who have undergone ankle fusion. Data will be pulled from one annual visit prior to the ankle fusion, and two successive annual visits following the fusion. The purpose for pulling data from two successive annual visits following the procedure is to allow for adequate recovery time in patients. Additionally, the same data points will be pulled for a group of patients with similar range of motion as the experimental group, but who do not undergo ankle fusion. The intent of this study is to provide FVIII/FIX deficiency patients with a better sense of their expected outcomes following ankle fusion, based on the data gathered from the bleeding disorders community via the UDC.

 

 

2009 – 2010                         David Oleson, PT, PCS

Oregon Health and Science University

Portland, Oregon

 

Project Title:          Comparison of Two Types of Ankle Braces (carbon fiber AFOs and fracture boots) in the Management of Ankle Pain in Hemophilia

 

2009 – 2010                         Patricia Tobase, PT, DPT, OCS

University of California, San Francisco

San Francisco, California

 

Project Title:          Outcome Tools to Utilize Pre and Post Orthopedic Interventions for Hemophilic Arthropathy

 

2008 – 2009                         Heidi Lane, PT, PCS

Primary Children’s Medical Center

Salt Lake City, Utah

 

Project Title:          Outcomes Following Ankle Arthrodesis for People with FVIII/FVIX Difficiencey: A Look at the Universal Data Collection Project

 

2007 – 2008                         Jenny Robison, PT

Vanderbilt University Medical Center

Nashville, Tennessee

 

Project Title:          The Effect of Inframalleolar Orthotics on Temporal Gait Characteristics and Foot Pressures in Children with Hemophilia

 

2006 – 2007                         Ruth D. Mulvany, MS, PT

University of Tennessee

Memphis, Tennessee

 

Project Title:          “What is the effect of rocker-bottom shoe wear on the comfort and gait of people with hemophilic ankle arthropathy?”

 

2005 – 2006                         Gina D. Betley, MSPT

Children's Center for Cancer and Blood Diseases of Las Vegas

Las Vegas, Nevada

 

Project Title:          Current Perceptions and Recommendations of Hemophilia Treatment Centers Regarding Exercise and Sports Participation and Potential for Joint Damage in von Willebrand Disease

 

2004 – 2005                         Wendy Burke, PT, DPT, OCS

University of Southern California

Los Angeles, California

 

Project Title:          The Effects of Kinesiotaping on Edema in a Hemophilic Population After Total Knee Replacement

 

2003 – 2004                         Angela Forsyth, MSPT

Penn Hemophilia and Thrombosis Program – Presbyterian Medical Center

Philadelphia, Pennsylvania

 

Project Title:          Project to Collect Joint Range of Motion (ROM) Measurements in a Sample of Adults and Children

 

2001 – 2002                         Sharon Funk, BS, PT

Mountain States Regional Hemophilia and Thrombosis Center

Aurora, Colorado

 

Project Title:          Joint Assessment Instrument for Young Children with Hemophilia