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Access to Care Today, Achieving Cures Tomorrow

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Access to Care Today, Achieving Cures Tomorrow

Access to Care Today, Achieving Cures Tomorrow

To fully achieve our vision, the National Hemophilia Foundation has enacted the ACT initiative to meet the imperative need to build our national capacity to maintain, and achieve where lacking, access to care for people with bleeding disorders.  Access to care means:

  • Adherence to state of the art standards of care,
  • Access to Hemophilia Treatment Centers
  • Access to treatment products appropriate for the individual, and
  • Adequate reimbursement for these life-saving therapies.

Through this initiative, NHF and its local chapters will be equipped with the necessary skills and resources to achieve enhanced:

Government Awareness and Support

Government Awareness and Support
Advocate with state and federal authorities to provide access to care that meets state of the art standards of care for people with bleeding disorders.

Education for All Life Stages

Education for All Life Stages
Provide education and information to train and empower individuals and their families, including underserved populations, to advocate for themselves within the healthcare system, understand their insurance options, and adopt prevention strategies.

Access to Care at HTCs and Beyond

Access to Care at HTCs and Beyond
Develop supportive services for HTCs to ensure optimal care delivery. Identify, educate and develop relationships beyond HTCs with insurers and health care provider networks to better to optimize care for patients with bleeding disorders including access to dental and other specialty services.

Research and Training

Research and Training
Provide information and dedicate resources to fund research for a cure, the development of a multidisciplinary team of healthcare professionals who will specialize in the care of people with bleeding disorders, and to address unmet research needs including achieving a better understanding and management of care for those with inhibitors, rare bleeding disorders and women with bleeding disorders.

and, to develop these areas we will build our national network including…

Strong Local Organizations

Strong Local Organizations
Assist local organizations to attain state of the art communications capabilities and in the delivery of effective health promotion and wellness programs. Enhance their capacity through collaborative fundraising, training in best practices including staff development and volunteer governance.


On behalf of the National Hemophilia Foundation and Novo Nordisk, we are pleased to continue our partnership on the ACT Initiative (Access to Care Today, Achieve a Cure Tomorrow), to ensure a coordinated system of programs and services for people with bleeding disorders across the country. 

As Visionary Corporate Sponsor and Lead Benefactor, Novo Nordisk’s principal gift in 2008 jumpstarted the initiative and led the way for our Corporate Partners Baxter Healthcare Corporation, Bayer HealthCare, Biogen Idec Hemophilia, CSL Behring, Grifols, Pfizer Hemophilia to become involved.  The movement continued as other allied organizations and individual donors joined forces with us and, collectively, we brought the national bleeding disorders community closer together.  At the outset of this effort, we knew that it was not one group of individuals or one organization that was going to make this possible.  We believed that this vision would only come to fruition by engaging stakeholders from all sectors of the bleeding disorders community. Continue Reading...