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Ensuring your child
is happy, confident and physically well in school is a team effort. Meet
with school staff, including teacher, principal, office secretary, physical
education teacher, and school nurse. If possible, include your hemophilia
treatment center nurse coordinator.
People with no experience
of bleeding disorders know extremely little about them. Offer the staff
children's books as an introduction. Don't overload them with information.
Make sure they know how to reach you at all times.
If you leave educational
material with school officials, it's a good idea to attach your child's
photo to it.
Work out a plan with
teachers and the school nurse for how to identify a problem, when to call
you and what to do.
Teachers should avoid
overprotection, singling out your child, denial of hemophilia or bleeds,
Keep the school nurse
up to date with your child's health.
Your child may miss
school at times. When they have a bleed or hospitalization, you can keep
them up in their schoolwork. Alert teachers that the child may miss some
school. Ask a tutor to help out. Other options for people having difficulty
keeping up with schoolwork are home schooling and tutoring.
Your child may realize
how different he is as he interacts with peers. He may deal with feeling
different by ignoring bleeds or crying wolf. This is a normal part of development.
Teach your child nonviolent
ways to handle bullies.
Help your child develop
strong self-esteem by teaching him about hemophilia in an age-appropriate
way, by sharpening skills, and by finding activities in which he can excel.
The information contained on the NHF web site is provided for your general
information only. NHF does not give medical advice or engage in the practice
of medicine. NHF under no circumstances recommends particular treatment
for specific individuals and in all cases recommends that you consult your
physician or local treatment center before pursuing any course of treatment.
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