> BLEEDING DISORDERS INFO CENTER >
NEWLY DIAGNOSED > PSYCHOSOCIAL
Sites | Psychosocial
Treatment Recommendations | Baby & Toddler
Child Raising | Parents FAQ | Hemophilia
Treatment Centers |
Child Abuse Issues | In School
Yearbook | NHF Youthworld
People with bleeding disorders face physical, psychological, financial,
and employment challenges. How well they meet these challenges depends on
many issues. These include the severity of their disorder, the quality and
availability of medical care, their level of insurance coverage and ability
to pay for care, and the strength of their personal support networks.
Parents raising a child with a bleeding disorder have many issues to address.
Some are practical concerns, like health insurance coverage and choosing
the best treatments for the child. Another concern is how to deal with the
child's emotional responses to living with a chronic health problem. If
the child with a bleeding disorder has siblings, they too will have emotional
responses to living in a family with a member who has a chronic health problem.
Finally, one must balance helping the child lead as active a life as possible
with protecting his or her well-being.
For adults and children alike, the physical hardships and limitations imposed
by bleeding disorders often have emotional and social impacts. A hospitalization
or a period of limited mobility is stressful as well as disruptive to school,
work, and family life. Planning one's life around health concerns or making
job decisions based on access to adequate health insurance also can have
a profound personal and practical impact. Adults who have a severe bleeding
disorder sometimes encounter discrimination by prospective employers. These
are just some of the issues faced by people with chronic health conditions
and their families.
The information contained on the NHF web site is provided for your general
information only. NHF does not give medical advice or engage in the practice
of medicine. NHF under no circumstances recommends particular treatment
for specific individuals and in all cases recommends that you consult your
physician or local treatment center before pursuing any course of treatment.
All information and content on this web site
are protected by copyright. All rights are reserved. Users are prohibited
from modifying, copying, distributing, transmitting, displaying, publishing,
selling, licensing, creating derivative works, or using any information
available on or through the site for commercial or public purposes.