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RESOURCES
Resources
A list of several national and international resources for more information
about bleeding disorders includes:
The National
Hemophilia Foundation (NHF)
NHF seeks to enhance the quality of life and promote the health of people
with bleeding disorders. With 47 chapters nationwide, NHF engages in a
number
of activities. It supports clinical research and provides education to
professionals, the bleeding disorders community, and the public at large.
It also delivers
patient and community services, advocates on behalf of the bleeding disorders
community, and makes health policy recommendations. Finally, it addresses
HIV and related health problems and offers a range of information services
and publications through HANDI, its information center. Click here
to learn more about NHF.
HANDI
This is an information center for bleeding disorders professionals and consumers.
HANDI produces and distributes a variety of materials. It responds to over
7,000 calls per year asking for information on many subjects, including
new issues like genetic engineering, genetic testing options, recently approved
treatments, and blood safety technologies. HANDI's information specialists
handle telephone requests from 9AM to 6PM Eastern Time, Monday through Friday.
Click here to learn more about HANDI
and its publications.
Local Chapters
The 47 local chapters of NHF provide materials, information, advocacy, help
in accessing appropriate health services, links to emotional support, financial
assistance, and other services. Click here to learn more or contact NHF's
HANDI at 800-42-HANDI or handi@hemophilia.org
Hemophilia
Treatment Centers (HTCs)
Hemophilia Treatment Centers offer comprehensive medical and psychosocial
resources for persons with bleeding disorders. They also offer risk reduction
information and counseling, HIV education, resource materials, and referrals
to other agencies. To find an HTC nearest you, contact NHF's HANDI.
On the World
Wide Web
NHF has collected a variety of online resources for your convenience. Click
here to visit our WWW Resources
page.
Disclaimer
The information contained on the NHF web site is provided for your general
information only. NHF does not give medical advice or engage in the practice
of medicine. NHF under no circumstances recommends particular treatment
for specific individuals and in all cases recommends that you consult your
physician or local treatment center before pursuing any course of treatment.
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