Research generates the evidence needed to improve treatment, care and quality of life. Studies are conducted in phases: identify a topic, develop the research question, design the methods, collect information, analyze the results, and share what was discovered. It is imperative to get perspectives representative of everyone the research question impacts. This means including people from diverse backgrounds, different races, genders, ages, cultures, and geographic locations, to name a few. In this session, we will discuss this issue and why it is especially important in the inheritable bleeding disorders community. Come and find out how to make sure research findings are representative and useful, and why it matters.
