NATIONAL HEMOPHILIA FOUNDATION
The National Hemophilia Foundation (NHF), founded in 1948, is dedicated to finding the cures for bleeding disorders and to preventing and treating the complications of these disorders through education, advocacy and research.

WHO WILL ATTEND?
More than 2,000 people attend, including consumers, healthcare providers and industry representatives.

Providers: physicians, nurses, social workers and physical therapists.

Industry: representatives from leading pharmaceutical companies, homecare companies and nonprofit organizations.

Consumers: adults and children with hemophilia, von Willebrand disease and other bleeding disorders, family members and/or significant others.

WHY SHOULD I ATTEND? (top)

• To find out about the latest in treatment advances, the core of NHF’s advocacy program and much more.
  
• To facilitate your access to care, your avenues of information and your role in finding a cure.
  
• To familiarize yourself with other people with bleeding disorders, exhibitors and healthcare professionals.
  
• To attend educational sessions designed just for you that feature information from the nation’s leading experts.
  
• To remember to Do the 5! as part of NHF’s National Prevention Program:
  
  1. Get an annual comprehensive checkup at a hemophilia treatment center.
     
  2. Get vaccinated—hepatitis A and B are preventable.
     
  3. Treat bleeds early and adequately.
     
  4. Exercise to protect your joints.
     
  5. Get tested regularly for blood-borne infections.
     
• To see your children learn while having fun by signing them up for the Youth & Adolescent program (ages 4 to 17).
  
• To focus on key issues that affect you, ie, women’s issues, thrombosis, HCV, genetics, inhibitors, new products, ethics and much more.
  
• To be in Dallas to celebrate 56 years of Annual Meetings!

REGISTRATION/GENERAL INFORMATION

All on-site registrations will be assessed the regular on-site registration fee. All attendees MUST be registered in order to receive a badge for entry to all sessions, exhibits and events. The registration desk is located at Landmark Circle (in front of the Landmark Ballroom) on the lobby level of the Hyatt Regency at Reunion.

Registration Hours
• Wednesday, November 3 5PM–8PM
• Thursday, November 4 8AM–6PM
• Friday, November 5 8AM–3PM
• Saturday, November 6 8AM–12PM

NHF Booth Directory
NHF staff and volunteers will be on hand to answer your questions regarding NHF membership and programs. The following NHF booths will be located on the lobby level of the Hyatt Regency at Reunion:

• NHF COMMUNICATIONS BOOTH
(HemAware, NHF e*Notes, www.hemophilia.org)

• PROJECT RED FLAG: Real Talk About Women’s Bleeding Disorders

• FIRST STEP: National Prevention Program for families of Infants and Young Children

• DEVELOPMENT
Come and see our new It's Time for A Cure family fundraising webpage demonstration and pick up a special gift when you ask about Get Out the Song!, our new national event!

• HANDI
Information specialists will be on hand to answer your questions, provide NHF publications and distribute current articles related to bleeding disorders and their complications.

EMERGENCY CARE (top)
NHF has advised the local medical center of our group’s arrival to help facilitate any treatment that may be needed.

WHEELCHAIR ACCESSIBILITY (top)
The Hyatt Regency at Reunion is wheelchair-accessible. We have reserved all available wheelchair-accessible sleeping rooms on a first-come, first-served basis. If you require a special room or have any other special needs, please call the Hyatt Regency at Reunion directly. Note: The hotel does not provide wheelchairs. For information on renting wheelchairs, please contact Kim Milian at NHF at (212) 328-3706.

NO SMOKING POLICY (top)
NHF’s Annual Meeting adheres to the hotel’s strict no-smoking policy in meeting rooms and the lobby area.

ATTIRE (top)
Casual or business attire is appropriate for attending all events at the meeting. Note: The temperature in the hotel’s meeting rooms may vary—a sweater or light jacket is suggested. The average high in Dallas in early November is 70°F, with an evening low of 50°F.

TREATMENT SUITE/SHARPS DISPOSAL (top)
NHF will not provide a treatment suite or sharps containers during the annual meeting.

CHILDCARE (top)
Childcare is scheduled from 7am-5pm on Friday, November 5 and Saturday, November 6. There is no onsite registration for this program. See Youth and Adolescent Program Section for details.
Childcare program sponsored by Baxter

Continuing education credits (top)
Applications for Continuing Medical Education credits (CME) and Continuing Education Units (CEU) and a list of approved sessions are available at the Annual Meeting. The processing fee, required for all CME and CEU credits, has now been incorporated into the provider/industry registration price. CME credits are available through joint sponsorship with The University of Wisconsin, Medical School, Office of CME. CEU credits are available through joint sponsorship with the American Association of Critical Care Nurses and National Association of Social Workers. Applications and evaluation forms, which are required in order to receive CME/CEU credits, are available at the CME/CEU table next to NHF's Registration at Landmark Circle on the lobby level of the Hyatt Regency at Reunion.

Note: Evaluations forms for each credited session must be completed and submitted to NHF on site in Dallas in order to receive CEU/CME credits.

FULL DISCLOSURE STATEMENT (top)
All faculty participating in continuing medical education activities are expected to disclose to the program audience any real or apparent conflict(s) of interest related to the content of their presentation(s). Full disclosure of faculty relationships will be made at the activity.

TAPING OF SESSIONS (top)
All educational sessions will be recorded and available for sale at the NHF Annual Meeting and on the NHF Web site after the Annual Meeting. Order forms will be available onsite.

speaker ready room (top)
There will be a Speaker Ready Room equipped with testing equipment for Annual Meeting speakers to run through their presentations. The hours of operation are:

Wednesday, November 3      5PM-7PM
Thursday, November 4         8AM-7PM
Friday, November 5             8AM-7PM
Saturday, November 6         8AM-11AM

spanish translation (top)
Spanish translation will be offered for the below consumer education sessions.

Orientation/Welcome Session
Opening Session
Everything You Thought You Knew About Bleeding Disorders But Didn't
NHF Blood Safety Update
Thursday Rap Sessions
Ask the Expert: Pregnancy Options
Transitioning
Parenting Skills
Ethics
Siblings
State Advocacy Update
Ports/Prophylaxis/Options
Global Hemophilia Concerns
Insurance: Navigating the Insurance Maze

Las sesiones de educación para el consumidor serán traducido en español:

Sesión de Orientación/Bienvenida
Apertura de Sesión
Todo usted Pensabas que Sabías sobre Trastorno Hemorrágicos, pero no Hizo
Actualización de defensa de NHF
Jueves sesiones de “Charlas”
Pregunte al Experto: Opciones de Embarazo
Transición
Habilidades de Padres
Éticas
Hermanos
Actualización de defensa del estado.
Puertos/Profiláctica/Opciones
Preocupaciones de Hemofilia Globales
Seguro: Navegación del Laberinto de Seguros

Para la información sobre la traducción en español, por favor visite la área de Recepción del NHF en el Círculo de Señal en el nivel de vestíbulo del Hotel Hyatt.

EXHIBITS (top)
The Marsalis Hall at the Hyatt Regency at Reunion will feature the latest products and services offered to the bleeding disorders community. Visit the Exhibit Hall to speak one-on-one with product manufacturers, service organizations, publishers and nonprofit groups.

EXHIBIT HOURS

• Thursday, November 4 6:30PM to 9:30PM
  
• Friday, November 5 11AM to 6:30PM
  
• Saturday, November 6 9:30AM to 1PM

POSTER SESSIONS (top)
Poster displays offer attendees the opportunity to read about current research and programming activities being conducted throughout the bleeding disorders community on such topics as hemophilia, HIV/AIDS and other bleeding disorders. Posters will be on display in the exhibit hall during all exhibit hours. It should be noted that some abstracts among those accepted will be published in a HemAware magazine supplement, which is distributed at the Annual Meeting. The top posters will appear in Haemophilia, the World Federation of Hemophilia’s international journal.

QUILT DISPLAY (top)
The NHF quilt display is a positive and creative universal symbol. By uniting the community through human connections, these quilts symbolize feelings of hope, grief, joy, anger, pain and a determination to link together people affected by HIV/AIDS. The quilts will be displayed in the Marsalis Hall during all exhibit hours.

Celebration, REMEMBRANCE AND LEAF MAKING (top)
The Ceremony is scheduled to take place on Friday, November 5, 2004, from 6:45PM to 7:45PM in Landmark Ballroom A (subject to change). Leaves can be inscribed with the name of a loved one or with an individual’s wish for the future of the community. These will be read at the ceremony. Leaf-making will be available in the Kessler Room (subject to change), with all materials provided on:

• Thursday, November 4 11AM to 4PM
  
• Friday, November 5 9AM to 5PM