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   NHF > Events > Annual Meeting
NHF's 56th Annual Meeting
 NHF NATIONAL YOUTH LEADERSHIP INSTITUTE

October 27 - 29, San Diego, CA

Please apply online >>

or

download an application form >>


Overview
The National Hemophilia Foundation is pleased to hold its second annual NHF National Youth Leadership Institute (NYLI), a program for young adults. We encourage all young adults to apply and be part of this special event.

NYLI has been created to foster the development of future leaders of the bleeding disorders community and encourage young adult participation. NYLI will be a three-day meeting and take place in conjunction with NHF’s 57th Annual Meeting in San Diego, California, October 27-29, 2005.

NYLI will serve as a forum to introduce young adults to the broader bleeding disorders community, learn about important issues and meet people with common interests. The curriculum will consist of specially designed educational sessions for young adults with leadership potential. It will focus on leadership skills, teambuilding activities and problem-solving techniques. Additionally, the attendees will have an opportunity attend the Annual Meeting’s adult sessions and participate in a fun and educational field trip.

 

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Who Can Apply?
Chapters and local hemophilia associations are invited to send up to two young adult delegates. Delegates should be diverse young men and women* affected by bleeding disorders, aged 18 years and older, including siblings, who exhibit above average leadership potential. See Young Adult Job Description. Note that youth who are younger than 18 years of age are invited to come as long as they attend the meeting with a parent/guardian. The parent/guardian must also agree to provide any additional supervision as needed.

*Note that young adult delegates affected by bleeding disorders includes those with a bleeding disorder, their nonaffected siblings, carriers or youths whose parents, relatives or close friends have bleeding disorders.

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Who Else Can Participate?
Chapters and local hemophilia associations are encouraged to nominate one mentor. The mentor should be an adult volunteering in a chapter, association, camp and/or hemophilia treatment center and should meet the mentoring criteria in the Mentor Job Description. This person would agree to serve as a role model for the young adult delegate and provide guidance and support. Most importantly, the mentor must agree to help the young adult carry out the skills learned during the NYLI training and implement prevention activities in the local area.

The mentor does not need to travel to the Annual Meeting, but should make time available (approximately five hours per month) after the NYLI training to provide direction and feedback to the young adult. [Note that there may be funds available to mentors that are willing to travel to the Annual Meeting. If you are interested in sending a mentor, please indicate this on the application.]

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Eligibility and Selection Process
Each chapter and local hemophilia association is invited to nominate up to two young adult delegates from their organization to attend the NHF National Youth Leadership Institute. From among the pool of candidates, NHF will select the top candidates that exhibit above average leadership potential and a willingness to become active leaders in their local bleeding disorders community and/or camp. NHF will develop a strategy and action plan for the young adult to implement a prevention program at the chapter/association or camp.

Applications will be reviewed and evaluated by a volunteer review team which includes one representative each from an HTC and chapter, one NHF volunteer consumer and one camp director. Criteria will include leadership ability, extracurricular and community service, recommendations and an application essay. Applications will be reviewed and awarded based on the criteria described above and available funding. The winners will be announced in August.

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Scholarship Funding
The scholarship will include all paid expenses for the young adult delegate (eg, travel, hotel, meals, etc.).

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Application Requirements
The young adult applying should complete all of the following requirements:

1) Application form (including a 250 word essay);
2) One character recommendation from any non-related individual, such as a teacher, guidance counselor, coach, etc.;
3) One staff recommendation provided by the chapter, association or HTC the youth is affiliated with.

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Deadline
All applications must be postmarked or completed online by July 29, 2005. If you choose to download the application, you may forward your completed application to the following address:

Lauren Daitch, MPH
Education Manager
National Hemophilia Foundation
116 West 32nd Street, 11th Floor
New York, New York 10001
Phone: 1-800-42-HANDI (ext. 3756)
Fax: (212) 328-3799
Email: Ldaitch@hemophilia.org

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Young Adult Delegate Job Description


Goal of NHF National Youth Leadership Institute
The goal is to encourage young adult participation in National Hemophilia Foundation and chapter/association activities, enhance the knowledge and understanding of preventive practices among young people and foster the development of future leaders of the bleeding disorders community.

Description of Role
Young adult delegates will serve as peer educators by helping young people learn about bleeding disorders and motivate them to get involved in youth programs across the country. After the NHF National Youth Leadership Institute training, young adult delegates will be equipped with enhanced leadership qualities, problem-solving skills and presentation tactics for promoting key prevention education messages to the young adult consumer population in their local areas.

Eligibility for Young Adult Delegate
The young adult delegate must be a young man or woman, aged 18 and older, affected by a bleeding disorder (this includes youths with a bleeding disorder, their nonaffected siblings, carriers or youths whose parents, relatives or close friends have bleeding disorders).

Skills Desired
• Demonstrated leadership skills (eg, sports, school organizations, extracurricular activities);
• Involvement in volunteer activities (including those pertaining to bleeding disorders);
• Excellent follow-through capabilities and a willingness to stay focused on the specific activity and remain committed beyond the training phase;
• Demonstrated outstanding academic achievements;
• Ability or willingness to present in front of small and large groups;
• Strong written communication skills;
• Demonstrated ability to work in a team environment;
• Respect for, awareness of, and adherence to the principles and concepts taught at the NHF National Youth Leadership Institute training;
• Ability to foster and maintain effective relationships with the bleeding disorders community, including young adults, consumers, summer camp personnel, HTC representatives and chapter/association staff.

Availability
All young adult delegates should be able to dedicate five hours a month to peer education activities and must make a one-year time commitment

Responsibilities
• Give a small or large group presentation to young people affected by bleeding disorders at a chapter/association event and/or summer camp;
• Attend and participate in national, local chapter/association and summer camp meetings;
• Help NHF and the chapter/association plan educational opportunities in the local area;
• Help NHF and the chapter/association understand issues particular to young adults;
• Report back progress on an ongoing basis to NHF representatives;
• Help prepare articles for NHF and chapter/association publications and/or Web sites.

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Mentor Job Description

Goal of NHF National Youth Leadership Institute
The goal is to encourage young adult participation in National Hemophilia Foundation and chapter/association activities, enhance the knowledge and understanding of preventive practices among young people and foster the development of future leaders of the bleeding disorders community.

Description of Role
This person would agree to serve as a role model for the young adult delegate and provide guidance and support. After the NHF National Youth Leadership Institute training, mentors will help the young adult delegate promote prevention messages to the young adult consumer population in their local areas.

Eligibility for Mentor
The mentor must be an adult volunteering in chapters, associations or hemophilia treatment centers.

Skills Desired
• A history of outstanding performance working within your organization;
• Recognition as an outstanding mentor who maintains positive relations with staff, young adults and peers;
• Possession of strong interpersonal and collaborative skills;
• Ability to discuss instructional materials and present ideas in a clear and concise manner;
• Ability to promote teamwork by sharing knowledge, cooperate with others and participate in meetings
• Ability to supervise, train and empower young adult delegate to become leaders within his/her community;
• Ability to foster and maintain effective relationships with the bleeding disorders community, including young adults, consumers, summer camp personnel, HTC representatives and chapter/association staff.

Availability
All mentors should be able to dedicate five hours a month to peer education activities and must make a one-year time commitment

Responsibilities
After the Annual Meeting, the mentor should help provide opportunities within the local community for the young adult to:
• Give a small or large group presentation to young people affected by bleeding disorders at a chapter/association event and/or summer camp;
• Attend and participate in national and local chapter/association meetings;
• Help prepare articles for NHF and chapter/association publications and Web sites.

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Apply for Youth Leadership Institute

Please apply online >>

or download an application form >>

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