First Washington Days
The first Washington Days advocacy event is held in 1996 on Capitol Hill in Washington, D.C.
The first Washington Days advocacy event is held in 1996 on Capitol Hill in Washington, D.C.
In March 1986, President Reagan proclaims the month "Hemophilia Awareness Month" -- this celebratory awareness month will later become Bleeding Disorders Awareness Month.
A 1993 newsletter lambasts NHF for deciding "for its constituents instead of deciding with them" in regards to the ongoing HIV crisis.
NHF’s Medical and Scientific Advisory Council (MASAC) issued a standards-of-care recommendation in 2008 to assist pharmacies providing clotting factor concentrates for home use to patients with bleeding disorders.
Dr. James F. Garrett, director of federal research into vocational rehabilitation at the U.S. Department of Health, Education and Welfare, receives NHF's first-ever Humanitarian Award.
A 1968 Miami newspaper denotes Timmy Strohbach as "the first poster boy" of NHF.
NHF partners with McMaster University to create guidelines for hemophilia management care models.
Physician-researchers conduct a survey on behalf of NHF's Medical and Scientific Advisory Council to gauge current practices regarding newborn intracranial hemorrhage and obstetrical care and mode of delivery of pregnant hemophilia carriers. The survey queried obstetricians, neonatologists, and hematologists in the United States.
In a 1994 edition of Blood Coagulation & Fibrinolysis, Dr. H.R. Roberts draws a comparison of the European Accord to MASAC's recommendations for prophylaxis treatments.
Over the course of 18 months, NHF worked with chapters throughout the U.S. to learn more about the nature and needs of adolescents with hemophilia. Results were presented at the 1968 meeting of the World Federation of Hemophilia in Montreal, and were also published in the December 1969 of Vocational Guidance Quarterly.